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Whole families on UC, PIP, DLA and carers' allowance for each other?

1000 replies

Hutinthemiddleofnowhere · 05/09/2026 23:03

This isn't a bashing, rather a genuine observation and we're privileged in the UK to have support with benefits and disabilities.

Having adopted 2 siblings with special needs over a decade ago it opened me up to a whole new world to me. With DC in specialist schools and needing a lot of intervention from agencies and medical support I've met so many parents and children. As a teacher this was so insightful and, while having always been extra devoted to students who had difficulties, my own experience as a parent took it to another level.

Teaching, I was always aware and sympathetic to those who barely made it to lesson, almost fell asleep but professionally had to adhere to the 'not participating' and when told to 'fuck off' it was call out. I knew there would be further investigation as to why they act like this by more able and senior colleagues. Didn't take it personally but, as you can imagine, it's difficult when you have several students like this while under the pressure of teaching a tricky maths part of the syllabus.

So as a parent of ND DC I experienced it from the other side. It was very difficult because our DC were causing disruptions due to their severe diagnosis.

Throughout our journey and specialist schools I saw a lot of reality. This comes (finally) back to my point. Year after year it became blatantly obvious that the vast majority of children have parents with their own issues, whether hereditary or learnt behaviour.

I got a job at the primary school as a liason officer so met most parents. All lovely and care about their DC but sadly struggled with managing themselves, their homes etc. Those few who weren't eligible for taxis and escorts (walkable distance) relied heavily on GPs to take and pick up from school. There were some parents who did drive and drop off, like me, but it was about 5%.

So mostly the parents were on UC, claimed PIp for anxiety and MH, got DLA for all DC and also carers' allowance for looking after DC. While i visited it was clear they were were reclusive, their days were spent watching TV, gaming, DC picked up in a taxi and they had struggled to get out of bed, knew they are provided breakfast at school, went back to bed. Yes I've seen this on an early morning visit multiple times.

I understand but also a part of me felt frustrated that they had fallen into a rut, able bodied, could have long conversations, but have had so much support that has enabled this.

As a school we reached out to parents to come and integrate, provided workshops, held informal educational classes how we can help our DC. As a parent and before being employed there I attended these and it so nice to meet other parents. The reality... they just sat there, being served coffee by an already busy TA, talked all the way through the presentations then left, after already leaving several times for a smoke during an hour and half get together. Still as an attending parent at this point I could see TA was struggling so stepped in to help serve the refreshments, set up equipment and clear up afterwards. One Mum asked me to open a window, another asked to give her some biscuits...I was the same as them, a parent, but they were just totally oblivious to the situation.

Then walking out, having cleaned up and they were chatting outside, all I heard was that was so boring, I know how to bring up my kids, waste of time coming out, so what you doing now, probably Netflix.

Then getting the role and seeing deeper into their lifestyles it confirmed that actually so many of these parents had come from a generational cycle with low aspirations and no encouragement within modern education, social workers or support from us all could change their mindsets of behaviour. Sadly it really is a case of we get money, DC have their consoles, school provides meals and exercise, bags of amazing stuff at Christmas and end of year which we don't even say thank you for, we can complain online if we don't like something etc.

This is just the basic circumstances, delve deeper and you would be shocked at how some of these poor kids live. A whole different thread would have to be made about drug dealing, violence, not allowing DC in the house so they have to become one of the balaclava gangs and so much more.

As parents, even if we have our own issues, we all need to put our DC first, not rely on others to do it for us.

OP posts:
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YourGoldLurker · 14/09/2026 08:59

x2boys · 14/09/2026 08:58

Obviously you should ring fence it and keep it specifially for disabillity aids
Even if have no food in the house
You can sit there starving whilst admiring your shiny new disabillity aid.

I do use food banks sometimes though. I should get bonus points for that.

roaringdragon · 14/09/2026 09:07

And for some people increased rent absolutely is a disability related expense.

@Cornishclio it often takes an appeal but if your DD doesn’t want to continue to EHE, she could look at EOTAS/EOTIS if she wants to.

aCatCalledFawkes · 14/09/2026 09:21

I am just about to apply for DLA and carers allowance after finding myself between a rock and a hard place. Not only has my 15yr old been diagnosed with autism and adhd, with the autism being quite serious, he's also got to have scoliosis surgery. I have been made redundant from work, the stack of paperwork I have to get through is massive and the amount of care he needs his exhausting at the start of yr 11. I'm trying desperately to find a job but ideally need to be close to home and available - I'm not sure what happens during his recovery from surgery as I can't imagine he will be able to be left unattended straight away.
Last year I was a high rate tax payer, I have paid in to the system all my life. This year has been a shocker and a real eye opener, but for people congratulating themselves on not claiming benefits, if you have asked me last year I would of said never again after a stint of claiming tax credits before and yet here I am.

Beece · 14/09/2026 09:25

x2boys · 14/09/2026 08:45

Well its irelevant wether its ok to you or not you dont make the rules
Disabillity benegits are to be used to benefit the disabled person
I would say having a roof over her head benefits her .
I cant tell you exactly what we spend my sons DLA( soon to PIP) on as it all goes in one pot
I can tell you i spend an absolute forttune replacing he clothes hes destroyed
Fixing things hes broken etc.

Edited

Having a roof over their head benefits everyone. If someone uses their PIP for housing and not their disability, they don’t need it for their disability and shouldn’t get it for their disability. And if they get it under the current rules, the rules need changing.

PIP is to ensure disabled people are on an equal financial footing to those without disability. Usually disabled people are still on a worse footing - I get that - but they shouldn’t be on a better footing. That’s unfair on everyone.

TigerRag · 14/09/2026 09:26

Beece · 14/09/2026 09:25

Having a roof over their head benefits everyone. If someone uses their PIP for housing and not their disability, they don’t need it for their disability and shouldn’t get it for their disability. And if they get it under the current rules, the rules need changing.

PIP is to ensure disabled people are on an equal financial footing to those without disability. Usually disabled people are still on a worse footing - I get that - but they shouldn’t be on a better footing. That’s unfair on everyone.

Even though it could be a disability expense if they need somewhere bigger because they use a wheelchair or need to store bulky medical equipment?

Beece · 14/09/2026 09:26

YourGoldLurker · 14/09/2026 08:48

The bigger picture is why can't she afford her rent. Probably in a private let and the UC rent element she gets doesn't cover all of it.

Absolutely! The bigger point is why can’t everyone afford their rent, disabled or not.

x2boys · 14/09/2026 09:27

Beece · 14/09/2026 09:25

Having a roof over their head benefits everyone. If someone uses their PIP for housing and not their disability, they don’t need it for their disability and shouldn’t get it for their disability. And if they get it under the current rules, the rules need changing.

PIP is to ensure disabled people are on an equal financial footing to those without disability. Usually disabled people are still on a worse footing - I get that - but they shouldn’t be on a better footing. That’s unfair on everyone.

Its non means tested so a millionaire could claim it if eligible .

YourGoldLurker · 14/09/2026 09:28

Beece · 14/09/2026 09:25

Having a roof over their head benefits everyone. If someone uses their PIP for housing and not their disability, they don’t need it for their disability and shouldn’t get it for their disability. And if they get it under the current rules, the rules need changing.

PIP is to ensure disabled people are on an equal financial footing to those without disability. Usually disabled people are still on a worse footing - I get that - but they shouldn’t be on a better footing. That’s unfair on everyone.

Maybe people need to go and look at the PIP rates and see that some people get around 280 pounds extra a month. No. That's not why Pip exists. It's not about financial footings.

Beece · 14/09/2026 09:28

TigerRag · 14/09/2026 09:26

Even though it could be a disability expense if they need somewhere bigger because they use a wheelchair or need to store bulky medical equipment?

Nice try. She worked full time. She wasn’t in a wheelchair (ASD doesn’t require a wheelchair!)z. She just needed the financial top up that PIP gave her. She had no expenses from ASD. She had ASD and the government gave her cash for that.

She was doing nothing wrong - it’s the system that’s wrong for handing people money they didn’t need - just for being disabled.

Beece · 14/09/2026 09:29

x2boys · 14/09/2026 09:27

Its non means tested so a millionaire could claim it if eligible .

That’s fine. If the millionaire uses the money for their disability.

YourGoldLurker · 14/09/2026 09:29

Beece · 14/09/2026 09:28

Nice try. She worked full time. She wasn’t in a wheelchair (ASD doesn’t require a wheelchair!)z. She just needed the financial top up that PIP gave her. She had no expenses from ASD. She had ASD and the government gave her cash for that.

She was doing nothing wrong - it’s the system that’s wrong for handing people money they didn’t need - just for being disabled.

Plenty of people do need it and not every pip application is successful

TigerRag · 14/09/2026 09:30

Beece · 14/09/2026 09:28

Nice try. She worked full time. She wasn’t in a wheelchair (ASD doesn’t require a wheelchair!)z. She just needed the financial top up that PIP gave her. She had no expenses from ASD. She had ASD and the government gave her cash for that.

She was doing nothing wrong - it’s the system that’s wrong for handing people money they didn’t need - just for being disabled.

It's possible that because of her ASD she can only live in certain areas. I can't live too far from my parents because I need support from them. Whilst I'm lucky that my tent is covered it's not the same for everyone

Kirbert2 · 14/09/2026 09:30

TigerRag · 14/09/2026 09:26

Even though it could be a disability expense if they need somewhere bigger because they use a wheelchair or need to store bulky medical equipment?

Well, exactly.

I live in a large council house due to my son's medical needs. It really isn't always as simple as PIP/DLA = mobility aid or you aren't using it correctly.

x2boys · 14/09/2026 09:30

Beece · 14/09/2026 09:28

Nice try. She worked full time. She wasn’t in a wheelchair (ASD doesn’t require a wheelchair!)z. She just needed the financial top up that PIP gave her. She had no expenses from ASD. She had ASD and the government gave her cash for that.

She was doing nothing wrong - it’s the system that’s wrong for handing people money they didn’t need - just for being disabled.

Well clearly she met the criteria
And just so you are aware some people with severe autism do need a wheerlchair to.keep them safe

roaringdragon · 14/09/2026 09:32

Beece · 14/09/2026 09:28

Nice try. She worked full time. She wasn’t in a wheelchair (ASD doesn’t require a wheelchair!)z. She just needed the financial top up that PIP gave her. She had no expenses from ASD. She had ASD and the government gave her cash for that.

She was doing nothing wrong - it’s the system that’s wrong for handing people money they didn’t need - just for being disabled.

Some with autism need a wheelchair or SN buggy to keep them safe or because of overwhelming or because of fatigue linked to autism or…

There are other ways higher accommodation costs can be a disability related expense, though, including for ASD.

YourGoldLurker · 14/09/2026 09:32

Just for being disabled. Yes because disabled people have such easy lives eh

x2boys · 14/09/2026 09:33

Beece · 14/09/2026 09:28

Nice try. She worked full time. She wasn’t in a wheelchair (ASD doesn’t require a wheelchair!)z. She just needed the financial top up that PIP gave her. She had no expenses from ASD. She had ASD and the government gave her cash for that.

She was doing nothing wrong - it’s the system that’s wrong for handing people money they didn’t need - just for being disabled.

Only they dont just hand PIP over just for being dissabled because for thec umpteenth time it goes of need not diagnosis.

YourGoldLurker · 14/09/2026 09:38

Maybe the supermarkets could install some software so that when you scan a loaf in Lidl they immediately know you are on disability benefits and a screen will flash up saying put it back. That's not why you were given it

Kirbert2 · 14/09/2026 09:39

x2boys · 14/09/2026 09:33

Only they dont just hand PIP over just for being dissabled because for thec umpteenth time it goes of need not diagnosis.

and you can't know for sure how someone is using their disability benefits or what their full needs are or if they do or don't need PIP by watching a heavily edited documentary likely edited to encourage judgement and frothing.

YourGoldLurker · 14/09/2026 09:51

Its funny how all the anecdotal evidence that's wheeled out serves to make everyone look like a scammer

Beece · 14/09/2026 09:51

TigerRag · 14/09/2026 09:30

It's possible that because of her ASD she can only live in certain areas. I can't live too far from my parents because I need support from them. Whilst I'm lucky that my tent is covered it's not the same for everyone

Yada, yada yada. I VERY much doubt that someone has on their pip form ‘I need cash cause I can only live in a naice middle class area’, don’t you?

TigerRag · 14/09/2026 09:52

Beece · 14/09/2026 09:51

Yada, yada yada. I VERY much doubt that someone has on their pip form ‘I need cash cause I can only live in a naice middle class area’, don’t you?

You obviously know they don't ask what you would spend pip on if you received it?

Kirbert2 · 14/09/2026 09:52

Beece · 14/09/2026 09:51

Yada, yada yada. I VERY much doubt that someone has on their pip form ‘I need cash cause I can only live in a naice middle class area’, don’t you?

Well, no because DLA/PIP forms don't ask one question about what you would spend the money on. The forms aren't about that at all.

TigerRag · 14/09/2026 09:53

YourGoldLurker · 14/09/2026 09:51

Its funny how all the anecdotal evidence that's wheeled out serves to make everyone look like a scammer

It's funny how they never report people who they think are playing the system

Beece · 14/09/2026 09:53

x2boys · 14/09/2026 09:33

Only they dont just hand PIP over just for being dissabled because for thec umpteenth time it goes of need not diagnosis.

But she doesn’t NEED the money for her disability. We should give people money based on what they NEED. Not what they don’t.

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