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Whole families on UC, PIP, DLA and carers' allowance for each other?

1000 replies

Hutinthemiddleofnowhere · 05/09/2026 23:03

This isn't a bashing, rather a genuine observation and we're privileged in the UK to have support with benefits and disabilities.

Having adopted 2 siblings with special needs over a decade ago it opened me up to a whole new world to me. With DC in specialist schools and needing a lot of intervention from agencies and medical support I've met so many parents and children. As a teacher this was so insightful and, while having always been extra devoted to students who had difficulties, my own experience as a parent took it to another level.

Teaching, I was always aware and sympathetic to those who barely made it to lesson, almost fell asleep but professionally had to adhere to the 'not participating' and when told to 'fuck off' it was call out. I knew there would be further investigation as to why they act like this by more able and senior colleagues. Didn't take it personally but, as you can imagine, it's difficult when you have several students like this while under the pressure of teaching a tricky maths part of the syllabus.

So as a parent of ND DC I experienced it from the other side. It was very difficult because our DC were causing disruptions due to their severe diagnosis.

Throughout our journey and specialist schools I saw a lot of reality. This comes (finally) back to my point. Year after year it became blatantly obvious that the vast majority of children have parents with their own issues, whether hereditary or learnt behaviour.

I got a job at the primary school as a liason officer so met most parents. All lovely and care about their DC but sadly struggled with managing themselves, their homes etc. Those few who weren't eligible for taxis and escorts (walkable distance) relied heavily on GPs to take and pick up from school. There were some parents who did drive and drop off, like me, but it was about 5%.

So mostly the parents were on UC, claimed PIp for anxiety and MH, got DLA for all DC and also carers' allowance for looking after DC. While i visited it was clear they were were reclusive, their days were spent watching TV, gaming, DC picked up in a taxi and they had struggled to get out of bed, knew they are provided breakfast at school, went back to bed. Yes I've seen this on an early morning visit multiple times.

I understand but also a part of me felt frustrated that they had fallen into a rut, able bodied, could have long conversations, but have had so much support that has enabled this.

As a school we reached out to parents to come and integrate, provided workshops, held informal educational classes how we can help our DC. As a parent and before being employed there I attended these and it so nice to meet other parents. The reality... they just sat there, being served coffee by an already busy TA, talked all the way through the presentations then left, after already leaving several times for a smoke during an hour and half get together. Still as an attending parent at this point I could see TA was struggling so stepped in to help serve the refreshments, set up equipment and clear up afterwards. One Mum asked me to open a window, another asked to give her some biscuits...I was the same as them, a parent, but they were just totally oblivious to the situation.

Then walking out, having cleaned up and they were chatting outside, all I heard was that was so boring, I know how to bring up my kids, waste of time coming out, so what you doing now, probably Netflix.

Then getting the role and seeing deeper into their lifestyles it confirmed that actually so many of these parents had come from a generational cycle with low aspirations and no encouragement within modern education, social workers or support from us all could change their mindsets of behaviour. Sadly it really is a case of we get money, DC have their consoles, school provides meals and exercise, bags of amazing stuff at Christmas and end of year which we don't even say thank you for, we can complain online if we don't like something etc.

This is just the basic circumstances, delve deeper and you would be shocked at how some of these poor kids live. A whole different thread would have to be made about drug dealing, violence, not allowing DC in the house so they have to become one of the balaclava gangs and so much more.

As parents, even if we have our own issues, we all need to put our DC first, not rely on others to do it for us.

OP posts:
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Greenismyfavouritecolournow · 13/09/2026 15:12

YourGoldLurker · 13/09/2026 14:51

I had a triple leg fracture that had to be operated on. I broke three bones in my leg My leg had to be pinned back together. I have a ten inch plate in my left leg and two screws in my ankle. I couldn't weight bear for months, I was told not to and was housebound. (I live in an upstairs flat).

I didn't give up my job. I had just been offered a job that I couldn't take up because they took so long with the reference checks that I was in hospital by the time that the checks went through. If you're trying to suggest I gave up a job to sit on benefits you are completely wrong.

You're sorry I broke my leg. Really doesn't sound like it.

Of course I’m sorry you broke your leg. Why would I not be sorry that someone went through an agonising ordeal. I know a couple of people with pins or plates in joints. It does take time to heal and is incredibly painful. It’s not usually a lifelong disability so I’m assuming you are making a recovery.
Also I’m confused about what your situation has to do with some people exaggerating or dragging out illnesses etc to stay on benefits longer than necessary. Those defending why YOU get help aren’t the people we are referring to when we talk about people playing the system.
If I had to work a crappy minimum wage job in a factory ( which I did as a student ) I’d happily say my pnd never left and that I’m crippled with anxiety. I can always collect the medication. Doesn’t mean I have to take it . I would rather survive on less money than have to stand 40 hours a week in chilling conditions packing food.
I’d rent a house myself and my boyfriend could stay over if it meant we got more money. I’d do a few hours a week cleaning local houses for cash when my kids are in school. I’d buy and sell stuff I find in charity shops or get from Facebook to make some extra cash. If my rent was paid, I had fsm for my kids and uc to feed and clothe them I’m sure I could manage. Better than working 40 hours a week for an extra 100 a week which I can get cash in hand for cleaning.

YourGoldLurker · 13/09/2026 15:30

Greenismyfavouritecolournow · 13/09/2026 15:12

Of course I’m sorry you broke your leg. Why would I not be sorry that someone went through an agonising ordeal. I know a couple of people with pins or plates in joints. It does take time to heal and is incredibly painful. It’s not usually a lifelong disability so I’m assuming you are making a recovery.
Also I’m confused about what your situation has to do with some people exaggerating or dragging out illnesses etc to stay on benefits longer than necessary. Those defending why YOU get help aren’t the people we are referring to when we talk about people playing the system.
If I had to work a crappy minimum wage job in a factory ( which I did as a student ) I’d happily say my pnd never left and that I’m crippled with anxiety. I can always collect the medication. Doesn’t mean I have to take it . I would rather survive on less money than have to stand 40 hours a week in chilling conditions packing food.
I’d rent a house myself and my boyfriend could stay over if it meant we got more money. I’d do a few hours a week cleaning local houses for cash when my kids are in school. I’d buy and sell stuff I find in charity shops or get from Facebook to make some extra cash. If my rent was paid, I had fsm for my kids and uc to feed and clothe them I’m sure I could manage. Better than working 40 hours a week for an extra 100 a week which I can get cash in hand for cleaning.

It might not be lifelong but unless you have had a triple leg fracture then you might not understand how your leg feels the day after you walk for example. In the beginning the pain was excruciating but now it's more painful the day after I walk anywhere. I get discomfort from the metal in my leg. This is common. I get discomfort depending on weather changes -also common with broken bones. I'm not as stable as I used to be because I have a real fear of stairs and falling down them again (thats how I broke it to start with ). I didn't set the projected recovery time for my broken leg and how long I would be entitled to disability benefits. The DWP did. Im absolutely not expecting my LCWRA award to continue once it runs out. I didn't get it for mental health - I was refused three times even though I was suffering from PTSD anxiety and depression and I'm not putting myself through that process again.

As I said in previous posts trying to get LCWRA made my mental health worse. I applied for it because of mental health reasons and by the time my assessment came around I had broken my leg. As I also said in previous posts I had to go to tribunal to get it. It was only ever a short term award and it won't be continued.

I have been accused of playing the system. Both on here and elsewhere online. Nothing really wrong with you is the usual comment.

YourGoldLurker · 13/09/2026 16:40

I think what some people aren't seeing is that an application for disability benefits even backed up with medical evidence isn't always going to be successful. 1 in 2 people who apply for Pip in England and Wales (new claims) with a psychiatric disorder are unsuccessful

So if people are saying they would just do this and do that. What would they do if they went through the process of trying to get disability benefits and the answer was no you don't qualify?

OonaStubbs · 13/09/2026 16:58

It all needs to go. Money needs to once again become something you get for working, not something you get for nothing.

TigerRag · 13/09/2026 17:00

OonaStubbs · 13/09/2026 16:58

It all needs to go. Money needs to once again become something you get for working, not something you get for nothing.

And replaced with what? Or will the government pay for the help and equipment I need which will cost far more than the current system?

OonaStubbs · 13/09/2026 17:02

TigerRag · 13/09/2026 17:00

And replaced with what? Or will the government pay for the help and equipment I need which will cost far more than the current system?

Replaced with nothing.

TigerRag · 13/09/2026 17:03

OonaStubbs · 13/09/2026 17:02

Replaced with nothing.

So what do we live on? Given that for many disabled people the only reason they can work is because they pip I imagine they'll have to give up work which will cost more money

roaringdragon · 13/09/2026 17:08

If you scrap all disability benefits and benefits for carers, you will actually increase the cost to the state.

That is because more will turn to social care packages, CHC funding and/or residential education placements. There will be more/longer admissions to hospitals for the disabled person. More carers will reach carer burnout and cost the NHS money. More will pursue transport to education placements. More will turn to hospital transport or the low income HTCS…

And for many of those who are already in receipt of means tested social care packages, their contribution will decrease, so the cost to the LA will increase.

OneLilacHedgehog · 13/09/2026 17:08

Most people who get pip do not work.

YourGoldLurker · 13/09/2026 17:11

OonaStubbs · 13/09/2026 17:02

Replaced with nothing.

So how do people who have disabilities that incur additional costs cope. For example people with certain types of cancer. People with COPD. Raynaud's. Chronic heart and lung disease. How do these people cope living on nothing. Because yesterday you said that UC should not exist either.

TigerRag · 13/09/2026 17:15

OneLilacHedgehog · 13/09/2026 17:08

Most people who get pip do not work.

I don't know why this surprises people

Kirbert2 · 13/09/2026 17:15

OonaStubbs · 13/09/2026 16:58

It all needs to go. Money needs to once again become something you get for working, not something you get for nothing.

Caring for my disabled child isn't 'nothing'.

What would I do with my disabled child whilst I work?

YourGoldLurker · 13/09/2026 17:16

OonaStubbs · 13/09/2026 16:58

It all needs to go. Money needs to once again become something you get for working, not something you get for nothing.

Before COVID unemployment in the UK was at around 3.8 per cent. There will always be people out of work.

YourGoldLurker · 13/09/2026 17:17

Kirbert2 · 13/09/2026 17:15

Caring for my disabled child isn't 'nothing'.

What would I do with my disabled child whilst I work?

People who say we should all live on nothing don't have the answers to these types of questions. They are just too focused on punishing people they see as scroungers

ThingsAreNotWhatTheyWere · 13/09/2026 17:48

TigerRag · 13/09/2026 17:15

I don't know why this surprises people

I know, it's almost like sick and disabled people can't win, isn't it? Either they're not really ill or disabled to deserve anything, or they aren't working (enough) because....that's all they can manage. Who'd have thought it?!

YourGoldLurker · 13/09/2026 17:49

OonaStubbs · 13/09/2026 17:02

Replaced with nothing.

There are some people who cannot work because they are terminally unwell. Should they be denied assistance from the state?

captainfloaty · 13/09/2026 17:52

OonaStubbs · 13/09/2026 16:58

It all needs to go. Money needs to once again become something you get for working, not something you get for nothing.

Are you including the state pension in this?

Jimmyneutronsforehead · 13/09/2026 18:06

OonaStubbs · 13/09/2026 16:58

It all needs to go. Money needs to once again become something you get for working, not something you get for nothing.

Is there a shortage of dog bashing threads today

Lougle · 13/09/2026 18:24

Greenismyfavouritecolournow · 13/09/2026 14:27

Where did I mention disabled people? But don’t fool yourself there are people who will pretend to have conditions just so they don’t have to work. Not everyone is honest like you. People do play the system . You’re breaking down a single payment but you have to look collectively at the bigger picture.
Rent help, sickness benefits, fsm, prescriptions, dental , warm homes, then you add in the carers payments- if you can get the first child diagnosed then you know what to do to get the second and so on. If you do not believe this happens then more fool you.
Just because you are genuine doesn’t mean everyone is.
And no I wouldn’t give my job up for benefits because I earn considerably more than benefits and I’m invested in my retirement plans and my children’s futures. HOWEVER , if I was working a crappy job on minimum wage and had perhaps experienced pnd I’d be tempted to drag it out a bit to stay at home for longer. Why would I go to work for an extra ££ a week when I could lower my expectations and have all the time in the world to do what I want? I can get household items from freecycle or Facebook, I can get free food from food banks, I can pick up some stuff from charity shops and sell them on Vinted. Wee spot of cash in hand cleaning for the local pub or a few hours in the local Chinese. If you don’t think this happens then fair enough but it does and I’ve seen it in my own village. Tenants claiming they live alone to get housing benefits when their partner supposedly lives with his mum down the road. I don’t always blame them because they are just trying to survive but it does happen.

Do you know how damaging it is to self-esteem when your circumstances are such that you can't work? I can't work. I used to work as a nurse. I did my extended training in critical care. I can't work because I have 3 DC with SEN, all of which have needed specialist education, and one of whom needs 24/7 care. There has never been childcare for her, bar a few years in primary school when she had a SEN club at her special school. Nobody wants her. The LA is prepared to pay for residential colleges. None have accepted her. Social services have offered funding for care agencies. She can't cope with the inconsistency that agency care brings.

We do get Universal Credit, not for her but for our youngest. We don't get UC for DD1 as she's an adult (she gets it in her own name) or for DD2 as she's turned 19 (she will get it in her own name). I still have to look after them both. I still have to deal with everything I ever dealt with. 'Children' don't behave in adult ways because they've reached adulthood when SEN is involved.

I felt worthwhile when I worked. Even when I didn't work I used to do voluntary work while DDs were at school. Now, I have her at home. 24 hours per day, 7 days per week, 365 days per year. I can't commit to anything. We have just joined a canoe club. I've had to tell them that whilst I book on to sessions, I may have to withdraw at any time on any day because if DD1 is having a hard day, I can't leave her with my parents. It's that simple.

There is no pleasure in being economically inactive without choice. It would (and will) cost the State far more to enable me to work than to give me a bit of Universal Credit and carer's allowance to stay at home.

I have several long term health conditions myself. I don't get 'sick days' because my work is 24/7, 365 days per year. DD1 can't care for herself. She doesn't develop self-control, impulse control, processing skills, fine motor skills, executive functioning skills and safety awareness because I'm 'feeling a bit unwell'.

All of you who sit behind your screens, idly debating the worth of people who 'can find something to do' instead of working, consider who you may be talking about. Because there are days when I am literally spinning between tasks for my DC and I haven't sat down for a moment. Driving, making and receiving phone calls, meetings, emails, appointments.

It isn't fun and it isn't easier than working. I know because I've been the one keeping patients alive and I had more energy then than I did now, and I got breaks and a wage slip. Now, I get carer's allowance, a £1 for £1 deduction from Universal Credit and the knowledge that there are people who think we are sponging off the State.

x2boys · 13/09/2026 19:18

OonaStubbs · 13/09/2026 17:02

Replaced with nothing.

So what do you suggest happens to those who are too disabled or sick to work ?

x2boys · 13/09/2026 19:23

YourGoldLurker · 13/09/2026 17:49

There are some people who cannot work because they are terminally unwell. Should they be denied assistance from the state?

My son wont ever work he cant evem speak hes 16 and like a toddler
I would love to know some posters think he would be capable of

YourGoldLurker · 13/09/2026 19:32

x2boys · 13/09/2026 19:18

So what do you suggest happens to those who are too disabled or sick to work ?

Hasn't thought that through clearly

Lougle · 13/09/2026 20:31

x2boys · 13/09/2026 19:23

My son wont ever work he cant evem speak hes 16 and like a toddler
I would love to know some posters think he would be capable of

They've probably seen the news about a young person who can't move, can't talk, but has an incredible mind and can use assistive technology to communicate their thoughts. I admire them, completely. But it's not the same when there is a fundamental intellectual disability. 'Learning Disability' is seen as 'a bit slow' or a 'bit thick'. A learning disability is pervasive. It affects everything. It isn't just a bit slow.

x2boys · 13/09/2026 20:53

Lougle · 13/09/2026 20:31

They've probably seen the news about a young person who can't move, can't talk, but has an incredible mind and can use assistive technology to communicate their thoughts. I admire them, completely. But it's not the same when there is a fundamental intellectual disability. 'Learning Disability' is seen as 'a bit slow' or a 'bit thick'. A learning disability is pervasive. It affects everything. It isn't just a bit slow.

Abdolutley
I have actually seen posters on here on education threads saying if teens cant pass GCSE maths and English at grade 4 they must have severe learning disabillitie
Clearly they have no idea what severe learning disabillities actually look like it goes fat deaper then education.

roaringdragon · 13/09/2026 20:54

@x2boys if you haven’t already, you should make a credits only New Style ESA claim for DS.

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