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Whole families on UC, PIP, DLA and carers' allowance for each other?

578 replies

Hutinthemiddleofnowhere · 05/09/2026 23:03

This isn't a bashing, rather a genuine observation and we're privileged in the UK to have support with benefits and disabilities.

Having adopted 2 siblings with special needs over a decade ago it opened me up to a whole new world to me. With DC in specialist schools and needing a lot of intervention from agencies and medical support I've met so many parents and children. As a teacher this was so insightful and, while having always been extra devoted to students who had difficulties, my own experience as a parent took it to another level.

Teaching, I was always aware and sympathetic to those who barely made it to lesson, almost fell asleep but professionally had to adhere to the 'not participating' and when told to 'fuck off' it was call out. I knew there would be further investigation as to why they act like this by more able and senior colleagues. Didn't take it personally but, as you can imagine, it's difficult when you have several students like this while under the pressure of teaching a tricky maths part of the syllabus.

So as a parent of ND DC I experienced it from the other side. It was very difficult because our DC were causing disruptions due to their severe diagnosis.

Throughout our journey and specialist schools I saw a lot of reality. This comes (finally) back to my point. Year after year it became blatantly obvious that the vast majority of children have parents with their own issues, whether hereditary or learnt behaviour.

I got a job at the primary school as a liason officer so met most parents. All lovely and care about their DC but sadly struggled with managing themselves, their homes etc. Those few who weren't eligible for taxis and escorts (walkable distance) relied heavily on GPs to take and pick up from school. There were some parents who did drive and drop off, like me, but it was about 5%.

So mostly the parents were on UC, claimed PIp for anxiety and MH, got DLA for all DC and also carers' allowance for looking after DC. While i visited it was clear they were were reclusive, their days were spent watching TV, gaming, DC picked up in a taxi and they had struggled to get out of bed, knew they are provided breakfast at school, went back to bed. Yes I've seen this on an early morning visit multiple times.

I understand but also a part of me felt frustrated that they had fallen into a rut, able bodied, could have long conversations, but have had so much support that has enabled this.

As a school we reached out to parents to come and integrate, provided workshops, held informal educational classes how we can help our DC. As a parent and before being employed there I attended these and it so nice to meet other parents. The reality... they just sat there, being served coffee by an already busy TA, talked all the way through the presentations then left, after already leaving several times for a smoke during an hour and half get together. Still as an attending parent at this point I could see TA was struggling so stepped in to help serve the refreshments, set up equipment and clear up afterwards. One Mum asked me to open a window, another asked to give her some biscuits...I was the same as them, a parent, but they were just totally oblivious to the situation.

Then walking out, having cleaned up and they were chatting outside, all I heard was that was so boring, I know how to bring up my kids, waste of time coming out, so what you doing now, probably Netflix.

Then getting the role and seeing deeper into their lifestyles it confirmed that actually so many of these parents had come from a generational cycle with low aspirations and no encouragement within modern education, social workers or support from us all could change their mindsets of behaviour. Sadly it really is a case of we get money, DC have their consoles, school provides meals and exercise, bags of amazing stuff at Christmas and end of year which we don't even say thank you for, we can complain online if we don't like something etc.

This is just the basic circumstances, delve deeper and you would be shocked at how some of these poor kids live. A whole different thread would have to be made about drug dealing, violence, not allowing DC in the house so they have to become one of the balaclava gangs and so much more.

As parents, even if we have our own issues, we all need to put our DC first, not rely on others to do it for us.

OP posts:
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Hutinthemiddleofnowhere · Yesterday 00:43

Merryoldgoat · 05/09/2026 23:12

I don’t understand what you’re trying to say. I understand the words individually but you have just strung a variety of observations together based on your experiences.

As a parent of two SEN children, both of whom are in special school, I do not recognise your characterisation of the ‘majority’ of parents.

I've just typed as I've thought. Sorry but yes sadly this has been my experience as a Mum and support at a SEN primary school.

OP posts:
Namechangee11 · Yesterday 00:46

It is a bashing thread.

Hutinthemiddleofnowhere · Yesterday 00:50

Merryoldgoat · 05/09/2026 23:49

What I have noticed is the number of professionals I come into contact with in relation who are astonishingly patronising and have extremely low expectations of both parents and the children.

Once I’ve spent most of a term fighting for the basics, fighting for the resources my children need, whilst holding down a responsible full time job forgive me if I’m not desperate to attend a workshop which is essentially ‘make sure you look after your children’.

The ones who were frequently asked to attend was due to the behaviour of DC and senco intervention to try to help the parents try to understand the importance of structure, boundaries and diet. It may sound condescending but if they're not aware how much a can of monster can affect sleep...

OP posts:
OriginalUsername2 · Yesterday 00:51

What I’m getting from this is that you, with no SEN, adopted children with SEN, met families with SEN running through them and you’re shocked and appalled at their low aspirations?

DragonsFurry · Yesterday 00:59

I have come across a few families like this however I often suspect the parents often have undiagnosed learning needs etc themselves.

On the whole, they are in the minority.

Hutinthemiddleofnowhere · Yesterday 01:01

5128gap · 05/09/2026 23:24

Yes some families are hard to reach.
What did the school do when the parents didn't engage with the workshops and events and found them boring? Did they consider different approaches? Shorter presentations delivered in a way that were more engaging? Opportunities for the parents to contribute in some way rather than being talked at? Different activities? Did they ask the parents what they would want to do?
With hard to reach groups it's really important not to do events 'to' them, but with them, starting from where they're at.

Yes, we've gone for days out as a reward for DC of disengaged parents for a free trip with DC. My conservation then as a parent and not ELA... how come you've got an ehcp for ....our Jake needs one but they won't give him one.

I would rather DC didn't have the need for one but, as teachers, we can see the difference between unavoidable behaviour and those who have been awake until the early hours, ie lack of parental input.

OP posts:
Makkka · Yesterday 01:08

So you have two adopted children both in specialist schools? That tells me the children/adults you come across daily have significant special needs so it’s not really surprising their parents receive cares allowance due the the fact their child clearly can’t function in a mainstream school so stands to reason they also receive DLA?

What’s your point???

Negroany · Yesterday 01:09

I gave no idea what point you are trying to make, but your post is quite vile.

Ayarreet · Yesterday 01:11

What a load of shit. 0/10

Sensiblesal · Yesterday 01:11

I think you might be in the wrong job

Hutinthemiddleofnowhere · Yesterday 01:14

Bushmillsbabe · Yesterday 00:08

I work with children with disabilities, and I don't really recognise this - I can think of maybe 1 family like this, among the hundred+ on my caseload, in that all family members have a disability of some kind, and parents need lots of support to get their children to appts, manage finances etc. But its clear they love them and are genuinely trying their best, but just have limited capacity due to their learning disability and own needs. Most families I see are juggling work, lots of appointments, several children, and doing a great job within a clunky system of education and healthcare.

Of course I know this. The parents need a lot of help to mange themselves so to do this for their children is difficult. Without the support it would be impossible and during covid times it was a huge wake up call that they needed to step and do it at whatever level was manageable.

Parents love their DC but can't always care for them or be positive role models so DC follow the pattern.

That's why I find it so important to try to educate parents to help themselves to help their DC.

OP posts:
ClairDeLaLune · Yesterday 01:14

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

Ayarreet · Yesterday 01:15

Hutinthemiddleofnowhere · Yesterday 01:14

Of course I know this. The parents need a lot of help to mange themselves so to do this for their children is difficult. Without the support it would be impossible and during covid times it was a huge wake up call that they needed to step and do it at whatever level was manageable.

Parents love their DC but can't always care for them or be positive role models so DC follow the pattern.

That's why I find it so important to try to educate parents to help themselves to help their DC.

You are an Angle, OP😇

TheSeventh · Yesterday 01:16

Hutinthemiddleofnowhere · Yesterday 00:50

The ones who were frequently asked to attend was due to the behaviour of DC and senco intervention to try to help the parents try to understand the importance of structure, boundaries and diet. It may sound condescending but if they're not aware how much a can of monster can affect sleep...

So the parents you are seeing are the ones who need most help so youre assuming they're all like that? Or is this how you make yourself feel superior after being invited to one of these interventions as a parent yourself? Either way, you dont become a better person by putting others down.

nocoolnamesleft · Yesterday 01:18

You seem to be saying that the children have special needs because their parents are apathetic, ie it's all nurture. But if that were the case, wouldn't your adopted children no longer be affected, now they're in your dynamic care? But obviously it doesn't work like that, does it?

Ayarreet · Yesterday 01:20

likelysuspect · 05/09/2026 23:57

I work with service users who are very similar, in front line work

One thing that I have always found baffling, is that 2 people can claim carers allowance for caring for the other. So you need a carer, so the state pays carers allowance for that. But equally you are also a carer and the state pays you carers allowance as well.

Its a pittance obviously but the concept is flawed.

That's a load of shit too. You cannot get Carer's Allowance if someone is claiming it for you.

TheSeventh · Yesterday 01:28

Ayarreet · Yesterday 01:20

That's a load of shit too. You cannot get Carer's Allowance if someone is claiming it for you.

You can as long as you both receive a qualifying disability benefit and spend 35 hours a week, each, looking after each other.

It may sound like a con but people with disabilities often do provide care for other people with disabilities despite needing care themselves.

Ayarreet · Yesterday 01:29

TheSeventh · Yesterday 01:28

You can as long as you both receive a qualifying disability benefit and spend 35 hours a week, each, looking after each other.

It may sound like a con but people with disabilities often do provide care for other people with disabilities despite needing care themselves.

Edited

You can't.

Finallysawthelight · Yesterday 01:29

Genuinely had no idea people are getting PIP for mental health issues. I personally know people who have terminal illnesses, a close friend of mine has MS, all of these people have some level of mental health issues due to their ill health. Yet all were refused PIP simply because they were able to "speak properly" to the assessors. The whole system is ridiculous and very flawed!

TheSeventh · Yesterday 01:30

Ayarreet · Yesterday 01:29

You can't.

I work for the dwp

Ayarreet · Yesterday 01:30

TheSeventh · Yesterday 01:28

You can as long as you both receive a qualifying disability benefit and spend 35 hours a week, each, looking after each other.

It may sound like a con but people with disabilities often do provide care for other people with disabilities despite needing care themselves.

Edited

Mutual care exception. Only one can receive it.

TheSeventh · Yesterday 01:32

Ayarreet · Yesterday 01:30

Mutual care exception. Only one can receive it.

That only applies in joint claims.

OonaStubbs · Yesterday 01:34

Benefits are the worst thing that ever happened to this country, and I know I'll get called all the names under the sun for saying that but it's true. It's created a sense of learned helplessness and entitlement amongst so many people that is going to be very hard to eradicate.

Hoppity80 · Yesterday 01:34

I do get what you’re saying op
and I’ve seen a similar culture.

Ayarreet · Yesterday 01:36

TheSeventh · Yesterday 01:32

That only applies in joint claims.

Ah. Yes. You're right. I'm wrong.