SJ: Moving on to Patient V. Message to support at 'MyWebDoctor' with history of patient, referencing issue of patient's identity. Written by parent on behalf of V. Desperate to get on hormone blockers as soon as possible, mood shifting etc. Patient just under 10 years of age
SJ; see a reply from MW to mother, 'very happy to help you (why do they have to go through puberty so young?), there is a big process to go through, who will inject the hormones, is your GP on board?, can the practice nurse do the injections or teach you?
SJ: what is your impression AK on this?
AK: mum's history is comprehensive and clear there is distress. But it is complete inappropriate to start out with the assumption that puberty blockers will be prescribed, negates the purpose of diagnosis and assessment.
SJ: now in AK's report. 2 professionals involved in V's care, both counsellors. Can you set out what you would have expected to happen?
AK: MDT assessment of child, family, expert in child development as well as GI, plus medical professional who is going to possibly prescribe.
SJ: what should be the sequence of contact with GP, other professionals and blood tests before assessment.
AK: we would engage the GP from the beginning following the shared care guidelines, endocrinologist would initiate and possibly GP would take over after 3-6 months.
SJ: Do they same starting points exist with this patient, that they should be followed.
AK: the child is 9 and the same considerations apply, how best to have a 9 year old participate in the assessment. The child didn't speak during the assessment only the parents.
AK: It is important that an expert with experience in dealing with children is engaged in the discussion, can build trust, encourage communication with the child.
SJ: Referring to written questionnaires and referring to get blood tests done. what is the relevance of blood tests.
AK: we wouldn't do blood tests until we were ready to prescribe so after assessment, and we would do it prior to agreeing that treatment could commence.
SJ: Referring to document, 'Gender Identity under the Age of 16'. Questions were read to 9 year old child by mother.
SJ: And if not applicable did not read them the questions. What do you think of that.
AK: The questions are described as under 16 but not appropriate for 9 year old. Reading the answers there is no way of knowing what the child thinks. And some of the questions mum deemed
AK: 'not applicable' we would certainly explore those areas with a 9 year old. Needs an experienced clinician to explore with the child. All of this through the lens of the mother.
SJ: GenderGP 'questionnaire answered fully', please send link for info gathering session.
SJ: Given that mother decided some questions were not relevant, how could counsellor deem questions fully answered?
AK: they weren't fully answered and this is the difficulty.
SJ: From records 'Responses reviewed by MDT, no issues raised' entry by MW.
SJ: is this an actual MDT?
AK: it should have been described as responses from a single member of the MDT, not the actual MDT.
SJ: is MW's role a proactive role or a reactive role?
AK: others should gather the info, but then discussed and agreed all together.
SJ: on the 'no concerns raised', is this adequate?
AK: many responses that I would like to explore further with the child, not to mention the questions that were not answered. I would like to encourage further exploration and differences between gender roles and gender identity.