Oh, there's a thread unroll thing.
threadreaderapp.com/thread/1512032814723919875.html
Now restarting after the lunch break.
SJ: Simon Jackson, QC for GMC
AK: Alanna Kieran, expert witness
RD: Ryan Donoghoue, counsel for GMC
Chair: chair of the tribunal panel
Panel: other members of panel
SJ: discussion of documents regarding Patient W and the statement that there are no medical records available. There apparently are some records, but were not made available until after disclosure was finished.
Chair: documents will be made available.
SJ: Moving on to Patient V. Message to support at 'MyWebDoctor' with history of patient, referencing issue of patient's identity. Written by parent on behalf of V. Desperate to get on hormone blockers as soon as possible, mood shifting etc. Patient just under 10 years of age.
SJ; see a reply from MW to mother, 'very happy to help you (why do they have to go through puberty so young?), there is a big process to go through, who will inject the hormones, is your GP on board?, can the practice nurse do the injections or teach you'
SJ: what is your impression AK on this?
AK: mum's history is comprehensive and clear there is distress. But it is complete inappropriate to start out with the assumption that puberty blockers will be prescribed, negates the purpose of diagnosis and assessment.
SJ: now in AK's report. 2 professionals involved in V's care, both counsellors. Can you set out what you would have expected to happen?
AK: MDT assessment of child, family, expert in child development as well as GI, plus medical professional who is going to possibly prescribe.
SJ: what should be the sequence of contact with GP, other professionals and blood tests before assessment.
AK: we would engage the GP from the beginning following the shared care guidelines, endocrinologist would initiate and possibly GP would take over after 3-6 months.
SJ: Do they same starting points exist with this patient, that they should be followed.
AK: the child is 9 and the same considerations apply, how best to have a 9 year old participate in the assessment. The child didn't speak during the assessment only the parents.
AK: It is important that an expert with experience in dealing with children is engaged in the discussion, can build trust, encourage communication with the child.
SJ: Referring to written questionnaires and referring to get blood tests done. what is the relevance of blood tests.
AK: we wouldn't do blood tests until we were ready to prescribe so after assessment, and we would do it prior to agreeing that treatment could commence.
SJ: Referring to document, 'Gender Identity under the Age of 16'. Questions were read to 9 year old child by mother.
SJ: And if not applicable did not read them the questions. What do you think of that.
AK: The questions are described as under 16 but not appropriate for 9 year old. Reading the answers there is no way of knowing what the child thinks. And some of the questions mum deemed
AK: 'not applicable' we would certainly explore those areas with a 9 year old. Needs an experienced clinician to explore with the child. All of this through the lens of the mother.
SJ: GenderGP 'questionnaire answered fully', please send link for info gathering session.
SJ: Given that mother decided some questions were not relevant, how could counsellor deem questions fully answered?
AK: they weren't fully answered and this is the difficulty.
SJ: From records 'Responses reviewed by MDT, no issues raised' entry by MW.
SJ: is this an actual MDT?
AK: it should have been described as responses from a single member of the MDT, not the actual MDT.
SJ: is MW's role a proactive role or a reactive role?
AK: others should gather the info, but then discussed and agreed all together.
SJ: on the 'no concerns raised', is this adequate?
AK: many responses that I would like to explore further with the child, not to mention the questions that were not answered. I would like to encourage further exploration and differences between gender roles and gender identity.
SJ: counsellors and psychogender therapist, are you familiar with this?
AK: it's not a term that I recognise or I would use myself.
SJ: reads out elements of the report.
AK: first, they are inaccurately reporting the age of the child who is 9, not 12.
AK: areas requiring further exploration: child was very shy and did not speak, mother answered all the questions. I would like to engage directly with the child to understand their feelings. No signs of mental health assessment, for example looking for autism spectrum disorder.
AK: and no discussion of fertility.
SJ: the phrase 'no reason not to prescribe, no reason not to help them'
AK: they haven't actually said how the patient meets the diagnostic criteria. It's not about being helpful or no, it's about meeting the diagnostic criteria.
SJ: reads out parts of the standard letter, will your GP help, do you need counselling,
AK: the statement 'we have completed the administrative side' appears as a tickbox exercise rather than a chance for the child to explore in a therapeutic space.
AK: also, the implication that counselling is the exception or shouldn't be needed, not the norm. Finally, asking for the detailed summary is an attempt to document the patients understanding. It is not sufficient, it fails at that.
SJ: now an email to Patient V & Mother, asking about surgery and stage of puberty. Where does that fit in, is it appropriate.
AK: it is appropriate, blockers are prescribed at Tanner stage 2. That's appropriate but usually undertaken by the paediatric endocrinologist.
SJ: then a reply from the mother, doing the assessment of puberty.
AK: I can only relate my experience, our endocrinologist would absolutely demand to do the exam themselves.
SJ: Quoting ME email I'm thinking about someone else to get your second assessment done.
SJ: an appropriate step?
AK: yes an appropriate step.
SJ: problems with email, also your paediatrician has expressed concerns, I will be making the final decisions, we will have our child psychologist undertake the second assessment.
SJ: what is the paediatricians concern?
AK: that the child was going on blockers, after no real period of assessment and via a private doctor and not the NHS.
SJ: now referring to consent form that combines puberty blockers and cross sex hormones.
SJ: is that appropriate?
AK: it is confusing especially for a 9 year old child. What side effect applies to which. It also implies that its a single step approach blockers plus x sex hormones.
SJ: now quoting MW notes from Skype assessment. Dangerous to not proceed. Recommends that child goes on blockers. What are your comments.
AK: the comments around danger and mental health problems are common in gender distressed children. But that's general not specific to
AK: this patient. Doesn't speak to this child's mental health. Says 'buy time and make further assessments'. But then no further assessments are actually offered or carried out. Treatment should be part of a care plan, showing how it will help,
AK: and what further steps might be contemplated.
SJ: now discussing MW comments on the need for the physical examination of the child and the psychological examination and assessment of the child. Does the Skype consult meet either of these criteria?
AK: no it does not satisfy those criteria. It may provide information to the child, moving towards informed consent. But it doesn't address the physical examination of puberty or mental health assessment by a child psychologist.
SJ: could MW carry out mental health assessment
AK: no I don't imagine he's competent to do that.
Chair: statement in document 'if puberty is allowed to progress further there is a very real danger of self harm or mental health issues'. Is there any evidence of these risks in the patient's records?
AK: I saw nothing that would indicate self harm or mental health problem
AK: this patient had many protective factors to mitigate the general harm.
SJ: in the context of a referral to a paediatric endocrinologist, is it about the time to prescribe.
AK: yes it is important that children have some 'taste' of puberty, hence Tanner Stage 2,
AK: the child may find that puberty is not as distressing as they feared. Also, if puberty hasn't started it gives time for exploration and discussion and to get to know the child.
SJ: A prescription is written that same day as the Skype consultation.
SJ: prescription written 2 minutes after the documentation of the skype consultation.
AK: Yes.
SJ: now moving on to witness statement from Patient V's mother.
SJ: mother 'I made contact with MW on 17 May, provided details, explanation, responded same day, happy to help, biggest question, who was going to administer the blockers. Reference to more than one GP' On 16 July, 20 minute Skype meeting with mother and Patient V.
SJ: 10 minutes of discussion with V present, when MW asked about how V feels about gender etc. Then child left the room. What's your opinion on the adequacy of that?
AK: it is very inadequate, it takes time to establish rapport and trust with a 9 year old child.
AK: not possible in 10 minutes.
SJ: how long does that rapport and trust take in your experience?
AK: we would have probably 6 assessment appointments, some without the parents present after the first few appointments. We would combine information about treatments with
AK: the assessment. Then in subsequent assessments we could see what their level of understanding is, how much information they retain, are their expectations of transition realistic?
SJ: now going back to report, adequacy of ASD assessment.
AK: we always do specific autism spectrum disorder (ASD) screening, even if already diagnosed. It is not to imply that ASD children cannot access blockers, but it is important for communication especially.
SJ: your views on the responsibility of the prescriber
AK: the responsibility lies with the prescriber, to ensure that the diagnosis is met, that the treatment is indicated and has opportunity to succeed.
SJ: why is the diagnostic assessment important?
AK: there are set guidelines for how a diagnosis is made, documented etc. These are important for the treatment plan.
SJ: what are your expectations on exploration of other treatments.
AK: I would go with the WPATH guidelines, extensive exploration of identity.
SJ: why is fertility important
AK: we would explore this, even with a very young child, to the extent they are able to imagine their future. This is where you can see they may have very unrealistic expectations about their future fertility after transition.
SJ: now on to capacity and consent. Did Patient V undergo full psychological counselling and assessment?
AK: no that did not happen
SJ: regular counselling sessions?
AK: no, did not happen.
SJ: reading out various parts of consent form, signature confirms
SJ: my doctor has explained risks, side effects, etc. Reading all that after a 10 minute conversation with a child, what's your assessment, did the child understand what they were signing up to?
AK: no it is wholly inadequate. Much is not relevant and
AK: much too much detail, they could not possibly have understood what they were signing up to.
SJ: MW says Gillick competent, can you see that?
AK: it is not clear, its implied it was determined during the Skype consult.
SJ: how should it be done:
AK: we would have a discussion with the child, together write down all the psycho social documentation. Then they would go the endocrinologist and go through a document on the physical side effects. We document that we have gone through all of the effects with the child.
SJ: you say no attempt by MW to assess the impact of the blockers. What do you mean?
AK: blockers are given to reduce to distress - is distressed reduced? Are there any side effects present? Needs to be a direct review with the child. What is the thinking about hormones?
Breaking now for 15 minutes.
Resuming now.
SJ: going back to Patient S. Born in 1999, contacted GenderGP at 17 years old. Noted in AKs report, S had been known to CAMHS since age 13. One off assessment session, unsurprising insufficient information gathered to make diagnosis. Now referring to witness statement
SJ: of consultant psychiatrist of Patient S. Reads out from statement, 'got fax letter from MW at GenderGP in August, first communication from them. Tried to call MW a few times, unsuccessful.'. Now a letter sent by CAMHS specialist psychiatrist, to patient
SJ: discussing blood tests, mentioned letter from MW.
SJ: Now reading letter - specialist to MW, says won't be able to prescribe for Patient S. Will discharge to own GP once referred for hormones' Why is it important to have direct contact with others who have worked with S?
AK: Patient S has ASD, thus communication difficulty, important to speak with others who have known the patient. Find out what other challenges or concerns there may be. MW didn't take the time to liaise, didn't return the call from CAMHS doctor.
SJ: do you understand the guidelines for a medical practitioner to work together?
AK: I understand the WPATH guidelines, but not the medical requirements.
Now questions from the panel.
Panel: I'm a lay member, so possibly quite simple questions. Going back to Patient V, on fertility. The questionnaire seems to deal with this. Then we see the asterisk. Means it has been completed by mother. Child has said, 'never wanted a baby in the tummy'.
Panel: Is this an example of 'answers given through the prism of the mother'.
AK: yes, it's a closed question and answer. Not casting doubt on mum's recollection but closes out the possibility of an exchange and exploration.
Panel: is this a topic area that would be explored?
AK:Yes, it would be explored in subsequent sessions. It might be consistently expressed or their views might changing or variable.
Panel: in terms of adequacy, is this an adequate interaction or understanding of Patient S's fertility?
AK: No, not adequate.
Panel: more understanding of Tanner Stage 2. Has it been arrived at? Does it need a physical examination or are questions adequate? What about blood tests?
AK: blood tests - ask my medical colleagues. But there would have been a physical examination.
AK: examine the chest, the genitals, the amount of body hair.
Panel: necessary independent examination?
AK: Yes, and also to address general physical health and bone density assessment.
Panel: age of onset of puberty? Age is a factor
Panel: but not the only factor.
AK: yes, relevant but variable and physical examination relevant.
Panel: what is the youngest child you've seen.
AK: in the beginning we sent all 12 -15 to the Tavistock. Now I think the youngest we've treated is 12.
Handing back to chair.