What a brave article to write. And what an absolutely frightening experience of ‘treatment’ (in the short term and in future/long term) of ‘treatment’ that this young person has had and those awful effects they have had to live with. Why weren’t they offered intensive specialist psychological support? Why with that catalogue of horrendous side effects are any other kids being given this treatment? Yet we know NHS GIDS clinics are expanding in the NHS and who knows how many private doctors are also getting in on this lucrative act. It doesn’t bear thinking about.
While it’s welcome that doctors are beginning to ask each other questions about this, and I think it’s the absolute least the medical profession can do, for the Royal College of Paediatric and Child Health to start to enquire into the ethics of this, this isn’t enough.
It’s not doubting their good faith to say that doctors (or any profession when investigating itself) even with the best will in the world, can’t always be impartial about each other.
So we also need to write to our MPs to ask for an enquiry not conducted by peers of the medics offering these treatments. We need MPs to look into this. They have sufficient clout to recommend to change the law so that these treatments can only be given within a new, much stricter legal framework and ideally within a strict independent licensing regime. Or, only offered as part of research. Whatever the current evidence suggests, you can be sure we can’t continue with the basis for prescribing that Jacob describes.
We urgently need a House of Commons Health and Social Care select committee inquiry- so MPs can hear evidence from all sides impartially and then - I would hope- will recommend to their peers that the law is tightened up massively around this in whatever way will best protect children and young people and will actually help to relieve their distress and confusion and will not add new, avoidable, additional burdens to that distress.
If what Jacob describes in the Times article had been given to Jacob as a participant in actual properly-conducted research trial, then given that list of awful side effects any properly run research trial would have been stopped because it would no longer be ethical to continue.
How is this level of harm ethical and legal to continue with as prescribed medical care?- especially for kids who have no proper understanding of the risks, and of the relative lack of benefits- and the certainty of harms. How can doctors be allowed to continue to offer this to their patients given such little evidence of benefit and so much evidence of harm?
Also the points upthread are well made about the imbalance of burdens of benefits and side effects and harms of these treatments between the sexes- this is needing to be explored. The RCPCH enquiry should specifically dedicate part of their work to investigating this.