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Hysterectomy help

161 replies

Momstheword91 · 29/10/2022 17:16

Hi,

just looking for advice as such.

I am booked in for a hysterectomy on the 18th of November. Been waiting nearly 2 years. Had my pre op last week, was given a leaflet and also told my the person I spoke to prior that I’d be in hospital 3-5days as it’s abdominal (either horizontal or vertical).
I had a letter come today confirming the date (unless it’s cancelled beforehand). The letter states it will be in day case unit. On the letter it says no one is allowed to wait and they will be contacted when I’m allowed to go home usually within a few hours. Am I right in thinking this doesn’t apply to me? I’m thinking they messed up because surely they know I won’t be going home the same day or even the next day? Anyone have any advice etc?
I am going to ring up on Monday and ask because it’s not open of a weekend. Just seeing if anyone has anything similar.

thanks :)

OP posts:
Momstheword91 · 25/11/2022 22:44

One thing I have noticed post op is actually how angry I am.

my cut really hurts… if I lay down it doesn’t hurt as much… but then my back hurts or I get stuck. It hurts so much to pull myself up. So then I’m squealing like a kid because of the pain. I’ve covered it over at the min to see if it eases the pain but right now it is burning. I can’t win! Everything is annoying me so bad! I walk around, I start getting dizzy and feeling sick so I have to go back to bed. I go to bed, I’m annoyed that I’m sat on my own, doing nothing. Then my back hurts and I’m repeating the process!

sorry for the rant. No one else to rant too lol.

OP posts:
Ridingladybugs · 26/11/2022 07:31

Rant away! Happy to move to PMs if easier?

I think I feel much more ready to go home today. I definitely needed 3 nights. Can’t believe they try to send people home after 1. I remember when my mum had a hysterectomy and she was in for over a week - I do get why it’s not always good to stay in hospital because of other infections and all the problem with beds, but even so.

Momstheword91 · 26/11/2022 08:22

Ridingladybugs · 26/11/2022 07:31

Rant away! Happy to move to PMs if easier?

I think I feel much more ready to go home today. I definitely needed 3 nights. Can’t believe they try to send people home after 1. I remember when my mum had a hysterectomy and she was in for over a week - I do get why it’s not always good to stay in hospital because of other infections and all the problem with beds, but even so.

I did try to PM you but I have absolutely no idea how to do it. Nothing was happening 🤷🏻‍♀️

Glad you’re feeling upto it. Just make sure you take it easy when you do get home. Even though I know it’s going to be hard.

Yeah, I think it is mainly the bed situ. When I was in, my last night 3 women came in from A&E. None of them were gynae related but there wasn’t anywhere else for them to go.

OP posts:
Blanc4 · 17/11/2023 00:11

Think you will find this is a just a general Routine letter ,
I had a vertical hysterectomy in august everything removed
i was admitted in the day surgery unit , no one allowed to be with me , it wasn’t a problem as the time went so quickly .
after the op when you are in recovery you will be put on a ward where you can have visitors .
I had to stay in for 4 days and my recovery has been long but I’m no longer in pain or bleeding

good luck you will be fine
just remember you only have one chance of recovery so please rest and dont push your self

Momstheword91 · 17/11/2023 06:40

Blanc4 · 17/11/2023 00:11

Think you will find this is a just a general Routine letter ,
I had a vertical hysterectomy in august everything removed
i was admitted in the day surgery unit , no one allowed to be with me , it wasn’t a problem as the time went so quickly .
after the op when you are in recovery you will be put on a ward where you can have visitors .
I had to stay in for 4 days and my recovery has been long but I’m no longer in pain or bleeding

good luck you will be fine
just remember you only have one chance of recovery so please rest and dont push your self

Thanks for replying, this post is from last year though. I am a year post op tomorrow. My recovery was a nightmare in the end! I ended up back in hospital about 4 times. I’m always still in pain, and if anything it made things worse not better minus the bleeding. I was supposed to have an appointment with the consultant who done my op in Jan this year, it got cancelled 3 times and I never heard anything again. I gave up in the end and I just continue as I am. I regret having it done because even though I don’t have to suffer with weeks of bleeding I’m in no better situation as it has caused other issues.

Glad yours went okay and you’ve recovered nicely.

OP posts:
Blanc4 · 17/11/2023 06:54

So sorry I didn’t have my glasses on when I read the post durgh
hope you got it sorted
i had mine. In august and an still off work

Momstheword91 · 17/11/2023 10:06

Blanc4 · 17/11/2023 06:54

So sorry I didn’t have my glasses on when I read the post durgh
hope you got it sorted
i had mine. In august and an still off work

No worries at all.

still haven’t seen anyone but I give up.

how are you feeling now? I had my op 18th November and started a new job 24th Jan. Didn’t want to risk losing it before I started so I just went. Probably made things worse but hey ho!

OP posts:
paradoxicalfrog · 21/11/2023 18:15

91BlackCat · 29/10/2022 17:56

Hi. I had a day case hysterectomy. My husband dropped me off at 8am and I shuffled out to reception at 5pm for collection by my husband. 😄🙄it was a laparoscopic one, where they make incisions in the abdomen and then cut the uterus free and pull out via the vagina. My ovaries and cervix were left ( I was 45). So I think it depends on what type of hysterectomy you are having.

If the uterus is removed via the vagina, how is the cervix retained? Or is the cervix left in situ and dilated in order to extract the uterus?

paradoxicalfrog · 21/11/2023 18:22

Answering my own Q here. It can be done:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4105678/

Blanc4 · 22/11/2023 18:57

They sew the cervix
it’s called a vaginal fault

JFT · 22/11/2023 22:43

Momstheword91 · 17/11/2023 06:40

Thanks for replying, this post is from last year though. I am a year post op tomorrow. My recovery was a nightmare in the end! I ended up back in hospital about 4 times. I’m always still in pain, and if anything it made things worse not better minus the bleeding. I was supposed to have an appointment with the consultant who done my op in Jan this year, it got cancelled 3 times and I never heard anything again. I gave up in the end and I just continue as I am. I regret having it done because even though I don’t have to suffer with weeks of bleeding I’m in no better situation as it has caused other issues.

Glad yours went okay and you’ve recovered nicely.

Hi @Momstheword91

I'm just jumping on this thread to say sorry you feel worse and now you have other issues - do you know if anything can be done to resolve the other problems?

I just read the whole thread as I'm booked for full hysterectomy and possible ureter stents and probable colon resection next week.

Going back to your first post, when my consultant first booked me in, she knew it was a multidisciplinary surgery to be conducted at my local hospital - she should know, she's the one doing it together with colo rectal surgeon and genito urinary - but all the same she wrongly requested admissions to book me for a day surgery outpatient laparoscopic hysterectomy at a much further away hospital!

I'm baffled as to why she did that and suspicious she's tried to fob me off. I found out that there definitely is such a thing as day surgery hysterectomies where women go first thing and leave in the late afternoon. I can't imagine. At that particular hospital they cannot ever do multidisciplinary surgery so to the people who say they book you as a day case then keep you on ward, this isn't true, I was wrongly and inappropriately referred as a day case.

What worries me is what would have happened if I went along with it? I've got Stage 4 Endo and lots of adhesions, as well as investigation of possible ovarian cancer, if a surgeon had just gone in and tried to suck out my uterus via keyhole it would have been catastrophic.

My surgery is described as complex and I've literally been given zero information apart from it can't be done keyhole and I'll be in for at least a few days maybe longer depending how extensive it is. So I'm a bit terrified. Not gonna lie reading this thread hasn't helped but I learned new things.

Main thing I'm worried about at the moment is what I can take to hospital with me. There's been loads of thefts in my local hospital, including doctors and nurses having their phones stolen during appointments! I'd like to take my laptop and noise cancel headphones. I'm hoping they've got lockers on the wards nowadays.

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