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Women's health

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Potential genital herpes, devastated

104 replies

Insheerpanic · 12/08/2022 14:04

I went to the dr this morning as I've been so sore down there for the last week since I had my smear test, thought I was just sore and had severe thrush. Had enough of it so went to dr today. She thinks its herpes and is sending me to a clinic for swabs tomorrow to confirm. I'm devastated been with one partner for 13 years and only had one more partner which I used protection for. Me or DP have never had a breakout or a coldsore, when the dr told me herpes I just started crying and I'm actually in shock. I keep bursting out randomly crying and haven't eaten since I just feel sick. I'm well aware it can lay dormant for years but I'm baffled as to where this has come from, partner has also only been with 2 other people which he used protection with. I'm just sad. And Worried. I'm pretty sure it is as the more I've read the more signs and symptoms I've got. Has anyone been in this position? I know to some people its 'just a virus' and is common but in a way I feel dirty?! I did get sexually abused at 14 and was forced to give oral sex with no protection so thats all been triggered again, I'm just heartbroken. How the fuck do I tell my partner when he gets in. I'm petrified hes going to think I've been elsewhere or I'm dirty or judge me. And I'm scared of future flare ups and how the hell I'm going to live a normal healthy life. I've been through so much and this is just the icing on the cake.

OP posts:
Blsp · 14/08/2022 08:05

Discovereads · 13/08/2022 23:35

@Blsp

You can have unprotected sex providing you don't have a sore.
No she can’t as it could be passed on, unless he has it already too then it won’t matter. Can’t believe I’m correcting you for the 2nd time on this fact. You can pass on herpes without any sores!

The WHO:
”HSV-2 is mainly transmitted during sex through contact with genital or anal surfaces, skin, sores or fluids of someone infected with the virus. HSV-2 can be transmitted even if the skin looks normal and is often transmitted in the absence of symptoms.” www.who.int/news-room/fact-sheets/detail/herpes-simplex-virus

I, too, can't believe you are still here and googling everything i say. In an attempt to save face perhaps? Whatever it is, it's a bit embarrassing. For you.

Practically, in what way do you think the advice of abstaining from unprotected sex only when a sore is present, changes in the face of what you've copied and pasted? Should OP abstain from sex forever? Use condoms forever with a man she's been with for years?

OP i based my response on your situation, not general information copied and pasted from websites but for the benefit of this person who is intent on scaremongering with thoughts of unsterilised equipment and the constant possibility of transmission, I'll explain further.

The virus will usually be dormant in your body and cannot be transmitted during this time. This is the majority of the time.

Transmission can generally only take place in the presence of a sore, which includes the tingling, burning, itching feeling before the sore appears which indicates to you one is on its way. Some people, especially those who do not know they have herpes, don't notice this feeling and can pass it on at this stage. In fact, many people have outbreaks so mild that they don't even know they have herpes and have sex during an outbreak, passing it on.

In some cases, 'asymptomatic shedding' can occur where the virus is reactivated and no longer dormant, is present on the skin but no sore appears. Transmission through asymptomatic shedding is not common. Where this happens, it is far more likely to be in the first 12 months of getting the virus and when there are frequent outbreaks. As, if you've even got it, you've had the virus many years and do not have frequent outbreaks, it is highly highly unlikely this would happen in your case.

On the balance of probability, your husband already has the virus, whether genitally, as coldsores or elsewhere. This is true of the population as a whole. Prior HSV1 infection offers partial protection from hsv2 and vice versa. Two thirds of those who have it do not know they have it. Given you haven't contracted it recently, do not have frequent outbreaks and have been having sex with this man for many years, i see no reason why you'd change your habits in terms of protection, it's a decision for the both of you of course. When used between 25 and 60% of the time, the use of condoms halves the risk of transmission. Transmission is actually more likely male to female, and a man who is circumcised is less likely to contract it.

NHS won't offer antivirals to suppress outbreaks unless you're having many outbreaks a year.

This may all be for nothing though, my experience of the sexual health nurse was that she had absolutely no doubt about what it is. Sounds like perhaps yours had healed more though by time you saw her. It's a case of waiting and seeing I guess. If you test positive i would make sure you ask if it's type 1 or type 2.

I met a new partner around 15 months after contracting hsv1. We've been together a year. I have had one outbreak since i met him and abstained from sex until a few days after it had cleared up. We don't use condoms. To the best of our knowledge he hasn't caught it. If he has, he is asymptomatic. I told him i had it before we first had sex and sent him the nhs leaflet as well as a link to the hva website so he could inform himself.

I'm glad you have spoken about it with your husband. I'm also a worrier but i seldom think about it now and it certainly doesn't spoil my sex life. If i get say an ingrown hair or a bit of irritation i avoid sex until it either goes away or it's clear what it is. For us, it's about balancing enjoyment with the risk of him getting it. Sex is important to us, we do it often. So taking steps that hindered our enjoyment of it i.e always using condoms in order to prevent something that's unlikely to happen anyway doesn't make sense for us. It's a personal decision though!

Discovereads · 14/08/2022 09:47

Transmission can generally only take place in the presence of a sore,

BULLSHIT. Stop with this! Embarrassing for me? Embarrassing for you that you have herpes and think you can have unprotected sex and not pass it on- and have most certainly infected your partner with it.

I repeat what the World Health Organisation FACT SHEET says
HSV-2 can be transmitted even if the skin looks normal and is often transmitted in the absence of symptoms

www.who.int/news-room/fact-sheets/detail/herpes-simplex-virus

OFTEN TRANSMITTED IN THE ABSENCE OF SYMPTOMS

And if you prefer what the US Center for Disease Control says, oh look
”Infections are transmitted through contact with HSV in herpes lesions, mucosal surfaces, genital secretions, or oral secretions. 5 HSV-1 and HSV-2 can be shed from normal-appearing oral or genital mucosa or skin. 7,8 Generally, a person can only get HSV-2 infection during genital contact with someone who has a genital HSV-2 infection. However, receiving oral sex from a person with an oral HSV-1 infection can result in getting a genital HSV-1 infection. 4 Transmission commonly occurs from contact with an infected partner who does not have visible lesions and who may not know that he or she is infected. 7 In persons with asymptomatic HSV-2 infections, genital HSV shedding occurs on 10.2% of days, compared to 20.1% of days among those with symptomatic infections. 8”
www.cdc.gov/std/herpes/stdfact-herpes-detailed.htm

TRANSMISSION COMMONLY OCCURS FROM CONTACT WITH AN INFECTED PARTNER WHO DOES NOT HAVE VISIBLE LESIONS AND WHO MAY NOT KNOW HE OR SHE IS INFECTED

”Transmission through asymptomatic shedding is not common. Where this happens, it is far more likely to be in the first 12 months of getting the virus and when there are frequent outbreaks. As, if you've even got it, you've had the virus many years and do not have frequent outbreaks, it is highly highly unlikely this would happen in your case.“
YET MORE BULLSHIT

*IN PERSONS WITH ASYMPTOMATIC HSV-2 INFECTIONS, GENITAL HSV SHEDDING OCCURS IN 10.2% OF DAYS, COMPARED TO 20.1% OF DAYS AMONG THOSE WITH SYMPTOMATIC INFECTIONS”

You are always contagious, having symptoms only means you’re twice as contagious. There is no such thing as no symptoms= safe to have unprotected sex.

Discovereads · 14/08/2022 09:49

Practically, in what way do you think the advice of abstaining from unprotected sex only when a sore is present, changes in the face of what you've copied and pasted? Should OP abstain from sex forever? Use condoms forever with a man she's been with for years?

Its not my place to tell the OP what to do, but she should have the fucking FACTS for her decision and discussion with her partner. Not a pack of lies telling her that you can only pass on herpes if you have a sore!

NCHammer2022 · 14/08/2022 09:51

TeddyBeans · 12/08/2022 14:17

When I was pregnant I had an outbreak downstairs and swabs confirmed it was an atypical coldsore outbreak. They're different viruses. Wait for your swabs to come back to see if it's the coldsore type or the genital herpes type.

I had the same situation (but wasn’t pregnant), had cold sores my whole life but somehow in my mid 20s had a genital herpes flare up out of nowhere, after being a bit run down. Swabs confirmed it was HSV1 - ie the same virus I already had. I had one further outbreak of genital blisters which wasn’t as bad as the first and have had nothing since, approx 15 years on.

Blsp · 14/08/2022 10:07

Discovereads · 14/08/2022 09:49

Practically, in what way do you think the advice of abstaining from unprotected sex only when a sore is present, changes in the face of what you've copied and pasted? Should OP abstain from sex forever? Use condoms forever with a man she's been with for years?

Its not my place to tell the OP what to do, but she should have the fucking FACTS for her decision and discussion with her partner. Not a pack of lies telling her that you can only pass on herpes if you have a sore!

You're hysterical. All caps and bold. Bloody hell.

Now i know you don't have a medical background due to your obvious ignorance about procedures there. You've not mentioned that you yourself have hsv and tbh i can't imagine you do, because, all your bold and caps and insisting that you are always contagious all of the time, after literally just copying and pasting some percentages that give a completely different story, suggests you don't know how it feels to be newly diagnosed. Can't help but wonder what your motivation is here.

OP, @Discovereads and I are obtaining our information from different places that are telling us different things. The NHS will give you some resources if you get a positive test and so you can draw your own conclusions from the information you choose to read. If this conversation carries on here, I'm worried it will only make you feel anxious and worried based on what's being said, so I'll not engage further. Hope everything works out for you.

Lastoftheenglishroses · 14/08/2022 10:19

@Insheerpanic I had what a thought was a bad case of thrush in late 2020. Drs sent me to the GU clinic who confirmed it was GHSV-1. I felt the same as you and actually even almost 2 years down the line I still struggle. I’m not lucky in that I have many more than the 0.8 average outbreaks per year with type 1. However they are more of an annoyance now rather than pain and nowhere near as bad as the initial outbreak, usually one sore or the classic ‘paper cuts’.

You will never know when/who you contracted it from; it can lay dormant for years and I couldn’t say who I got it from - I have never dated anyone who suffered from coldsores so was 100% passed asymptomatically. The ‘trauma’ from your smear could well have brought it on - friction/trauma to the area is often how an initial outbreak is brought on. As PP have said, immune system hits and being stressed are the biggest triggers going forward. I’ve had outbreaks from being unwell and having COVID. Apparently a lot more infections have been diagnosed during COVID as the virus itself and in some cases the vaccines have triggered initial outbreaks in those who were unaware previously.

Take care of yourself - you can listen to the Positively Positive podcast if they’re your thing and also you can call the HVA helpline which is staffed by volunteers living with HSV1/2 and will talk you through facts and offer support.

lillipilli · 14/08/2022 10:38

This is not quite true. The key word is “could/
might”. Sure if you have sex a day or two before outbreak you will infect someone.

I have genital herpes HVS1 since 2003, a long and traumatic story. The person who gave it to me did wear a condom, so it’s not panacea.

I have been with my husband for 10 years, my outbreaks are very rare and I did not pass it on to him despite not using any protection.

lillipilli · 14/08/2022 10:44

Very well said @Blsp , totally agree with you. Oh , I have also never passed it to my previous boyfriend who I had been with for 5 years after I had been infected. Both ex-bf and my husband were informed about me being a carrier.

NCHammer2022 · 14/08/2022 10:46

Please try to ignore the caps lock dramatics and bolded hysteria in certain posts on this thread. In fact, I’d err away from reading any US advice because they are bizarre about herpes. Stick to NHS guidance which is far more measured while still recommending an appropriate level of caution. I hope you feel better soon.

Discovereads · 14/08/2022 12:55

NCHammer2022 · 14/08/2022 10:46

Please try to ignore the caps lock dramatics and bolded hysteria in certain posts on this thread. In fact, I’d err away from reading any US advice because they are bizarre about herpes. Stick to NHS guidance which is far more measured while still recommending an appropriate level of caution. I hope you feel better soon.

Oh yes ignore the WHO and CDC. Totally ridiculous to discount scientific fact because it’s not said by a British doctor, or in this case contradicts what some random internet person with zero verifiable credentials and references is saying on a British website.

How about the NICE website then? Since that’s British perhaps you’ll take note and not call it “hysteria”

HSV transmission is by direct contact with an infected person who is shedding virus from secretions on oral, genital, or anal mucosal surfaces. Genital herpes can also be acquired from contact with lesions at other anatomical sites, such as the mouth, eyes, and other non-mucosal surfaces (such as herpetic whitlow on fingers or skin lesions).

Most genital herpes infections are acquired sub-clinically (asymptomatically) — at least 80% of people with proven HSV are unaware that they have been infected.

cks.nice.org.uk/topics/herpes-simplex-genital/

Discovereads · 14/08/2022 12:56

lillipilli · 14/08/2022 10:44

Very well said @Blsp , totally agree with you. Oh , I have also never passed it to my previous boyfriend who I had been with for 5 years after I had been infected. Both ex-bf and my husband were informed about me being a carrier.

Well since 80% of people are unaware they have it, you can’t know you didn’t pass it in unless he’s been regularly tested for it using the newer STI test that is DNA based.

NCHammer2022 · 14/08/2022 13:16

Oh yes ignore the WHO and CDC. Totally ridiculous to discount scientific fact because it’s not said by a British doctor, or in this case contradicts what some random internet person with zero verifiable credentials and references is saying on a British website.

Didn’t say ignore the WHO and CDC. Hello fellow random internet person with zero verifiable credentials and references, I said to ignore you and follow NHS advice which doesn’t involve bold CAPSLOCK !!! Terror and moralising. Enjoy your day.

Discovereads · 14/08/2022 13:29

@Blsp
OP, @Discovereads and I are obtaining our information from different places that are telling us different things. The NHS will give you some resources

Yeah, so I was wondering why you never posted a single link for these “different places” telling you “different things” about herpes transmission. Ridiculous things you’ve said like you can only pass it on when you have a sore. Things like unprotected sex is safe when you have no symptoms, you won’t pass it on to a partner.

You’ve sort of implied you’re repeating NHS information in your last post and that it’s “different” from the WHO & CDC information. As for you questioning my motives in ensuring the OP gets links to actual medical advice, does it matter? What’s the greater good for the OP? To have the facts or falsehoods? And since you’re posting falsehoods and stooping to call me “hysterical” because I got just a bit angry at your insistent misinformation, well, I think you’re the one with suspect motivations tbh.

Now I know why you’ve not posted a single reference link to a medical authority. Its because your “different things” and advice aren’t supported by the NHS either, and it appears you’re completely unaware of what the NHS advises too (or are you?)

www.nhs.uk/conditions/genital-herpes/
(bold added for emphasis of key points)

How genital herpes is passed on

Genital herpes is very easy to pass on (contagious) from the first tingling or itching of a new outbreak (before any blisters appear) to when sores have fully healed. You may also be able to pass on the virus even if you do not have any symptoms.

You can get genital herpes:

  • from skin-to-skin contact with the infected area (including vaginal, anal and oral sex)
  • when there are no visible sores or blisters
  • if a cold sore touches your genitals
  • by transferring the infection on fingers from someone else to your genitals
  • by sharing sex toys with someone who has herpes
Protecting against genital herpes

You can reduce the chances of passing herpes on by:

using a condom every time you have vaginal, anal or oral sex – but herpes can still be passed on if the condom does not cover the infected area

avoiding vaginal, anal or oral sex if you or your partner has blisters or sores, or a tingle or itch that means an outbreak is coming

not sharing sex toys – if you do, wash them and put a condom on them

Discovereads · 14/08/2022 13:36

NCHammer2022 · 14/08/2022 13:16

Oh yes ignore the WHO and CDC. Totally ridiculous to discount scientific fact because it’s not said by a British doctor, or in this case contradicts what some random internet person with zero verifiable credentials and references is saying on a British website.

Didn’t say ignore the WHO and CDC. Hello fellow random internet person with zero verifiable credentials and references, I said to ignore you and follow NHS advice which doesn’t involve bold CAPSLOCK !!! Terror and moralising. Enjoy your day.

Zero references? Excuse me but links to WHO, CDC, NICE and NHS are references and bloody good ones too.

I have done no moralising regarding herpes, only regarding posters insisting on misinforming the OP as to the facts of herpes transmission and defending their own unsafe sex practices that contribute to the spread of herpes.

And you haven’t even bothered to look up the NHS information on herpes…obviously…despite waxing eloquent of how more “measured” it is compared to the “bizarre” information from the CDC because they say same the exact same things!

You have a right to your own opinion, but not your own facts.

NCHammer2022 · 14/08/2022 13:40

Discovereads · 14/08/2022 13:36

Zero references? Excuse me but links to WHO, CDC, NICE and NHS are references and bloody good ones too.

I have done no moralising regarding herpes, only regarding posters insisting on misinforming the OP as to the facts of herpes transmission and defending their own unsafe sex practices that contribute to the spread of herpes.

And you haven’t even bothered to look up the NHS information on herpes…obviously…despite waxing eloquent of how more “measured” it is compared to the “bizarre” information from the CDC because they say same the exact same things!

You have a right to your own opinion, but not your own facts.

Never mind, you don’t understand the point I’m making.

Hopefully the OP will follow the advice she’s given by the NHS, as I recommended.

Panickingnow · 14/08/2022 13:50

It may not be it at all.
Two weeks ago I woken up with a pain and red spots in the groin area, also I had a cold sore on my lips the whole week so I immediately thought that I somehow transferred the herpes from my lips down bellow.
I kept checking as it just looked angry bumpy rash, some could say perhaps looks similar to herpes ( also I had herpes on my back about 20 yrs ago so I’m familiar with how it looks and feels)
I put some Sudacream on it to calm it down, to see if it helps and it completely disappeared during the day probably some heat rash or allergy.

Discovereads · 14/08/2022 13:56

NCHammer2022 · 14/08/2022 13:40

Never mind, you don’t understand the point I’m making.

Hopefully the OP will follow the advice she’s given by the NHS, as I recommended.

Which is the same advice as the CDC advice that you called “bizarre”

In fact, I’d err away from reading any US advice because they are bizarre about herpes.

Care to explain your xenophobia?

TeddyBeans · 14/08/2022 14:12

This thread seems to have gained a rather unnecessary political agenda. Poor OP came for advice about a devastating personal problem and posters have turned it into a battleground...

I hope you're doing okay @Insheerpanic

Whattodooo90 · 14/08/2022 14:15

With your husband has given it to you or you’ve had it from that speculum. Have you been booked in for a hiv test?

Wheredoestheblackfluffcomefrom · 14/08/2022 14:38

I’m sure this has been suggested already but I’m in a hurry to go out and wanted to advise you of this.

as quickly as you can get some medication, even if it’s a paid for private GP. The medication is an anti viral, which, if taken quickly can prevent future outbreaks, making this a one off (if it is herpes). Your GP can prescribe this before swabs, it’s time critical.

moving forward there is a preventative medication you can take, I don’t think it’s available on NHS but would be worth every penny for peace of mind.

if it hurts to pee have a jug of tepid water to hand, pour over your foof as you wee, or run a shower etc or pee in a bath.

the hot weather may have caused this to happen now, heat exacerbates Herpes virus.

it might not be herpes, I’ve been where you are now, my swabs came back negative, I took the medication. The swabs are not conclusive if negative. Touch wood I’ve never had a repeat. I instantly thought my parter, now DH had been unfaithful but the quarantine period didn’t add up. Best wishes

lillipilli · 14/08/2022 15:12

@Discovereads if 80% of people are unaware they have it and can pass it to others then everyone should stop having sex whatsoever 😂 that’s a lot of people! Condoms do not give full protectively ion from herpes.

also, I must be unlucky 20% one then as I was 100% aware that something was very wrong after being infected. Intense, itchiness, pain, burning till stars in your eyes when you pee, fever and I also threw up at one point. Not easy to ignore. It came about 5 days after an unwanted sexual contact so definitely not been laying dormant in me before.

Insheerpanic · 14/08/2022 15:17

Thankyou to the posters who have given helpful advice. If its passed without symptoms we both will have it anyway as weve unprotected sex alot over our 13 years to conceive our children and when on the pill etc and lots of oral so bit late for that. Obv I dont want to give him it purposefully (he probs already has it but ofcourse I'm not going to have sexual contact with him during a flare up to try reduce the risk) I've been given antivirals just incase and have been taking these since the dr said it was. I feel pretty much normal now apart from my feet are on actual fire!? Like ive been wearing heels all day and night hurts to stand up and walk on them could be unrelated but very random.. also the stress/rundown I've been in alot of awful situations so I'm surprised it hasn't appeared sooner if its been in me for years! The nurse did say they are seeing alot of cases due to the heat bringing it out in everyone. I said yeah but we always have some warm weather and she said yes but not to this extreme so who knows! Will wait for my results and keep you all informed and I will ask about type 1 or 2. Thankyou all so much. Now the shock has worn off I just think its in me now whats the point worrying about it, hopefully I dont see it again but nothing I can do! X

OP posts:
lillipilli · 14/08/2022 15:24

Glad you are feeling better @Insheerpanic , I hope that the results will come back negative for you. But if they don’t, remember while it is a huge shock at the start, in most cases it doesn’t interfere much with your life.

fUNNYfACE36 · 14/08/2022 15:40

Is there any chance it could be an allergic reaction, Dd20 was in agony with what the nurse thought was early genital herpes, but turned out to be an allergy

fUNNYfACE36 · 14/08/2022 15:40

Is there any chance it could be an allergic reaction, Dd20 was in agony with what the nurse thought was early genital herpes, but turned out to be an allergy