It's been a bit of a week here. I needed to pin the school down on what education is available to DD3 next year, so I copied in the case worker at the LA. It's all pretty rubbish. DD3 wanted to do a sociology GCSE, but the teacher who can teach it is fully committed with RSHE, which is statutory, so no. English Literature is off the table because it needs 2 years and the teacher who DD3 wanted to teach it is leaving.
All they can offer is BTEC level 2 science (GCSE is a lot of content to fit in one year and they've only just got a science teacher), BTEC level 2 in Sport, ICT, creative imedia, or catering. GCSE Statistics.
She finds the catering teacher unbearable, and isn't interested in ICT. So I think she'll do the BTEC in science, GCSE Statistics, and the BTEC in Sport. Not brilliant, but better than nothing.
I finally got to bed at 03.30 am last night. But DD3 was really pleased with her stained glass bird that she made her teacher.
DD2 has barely been at school this week. She thought she was lacking motivation but has realised that she's burned out and anxious about the future. I've had no response to my email to the Caseworker, so I'll lodge mediation next week.
We managed to convince her to try school for weekly points rewards today, but the stupid system means that she was demoted to bronze tier because she hasn't been in much. That meant that instead of doing pottery painting and getting a drink and snack, she had to choose between pottery painting or a drink and snack. Her lovely TA knew it would be really hard for her, so she went to SLT to negotiated that she could do something at school and then get a drink and snack. Stupid system.
DD1 is the curve ball. New care provider is assessing on Monday. Stressful. But her LD nurse called to clarify a couple of things today. Firstly, her liver adenoma - she's not happy that there's been no follow up. The real thing though, is 'her genetic condition'. I said that they hadn't found anything. She then asked about the mutation they found on the DDD study. The Bayler Institute asked for DD1's file a couple of years ago because they had noticed something that a few patients had in common, but that's all I was told. Apparently she has a donor splice variation, which the nurse thinks could be responsible for all her difficulties. So she's writing to genetics for clarification. It's frustrating because I was told the DDD didn't find anything, and as I said to the nurse, I've never heard of this variation and if I'd been told about it I would have researched it to death.