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CHANNEL .....4................TONIGHT......9.00........................BORN TO BE DIFFERENT.....

220 replies

RTKangaMummy · 09/08/2005 20:51

...........

................ 9.00...........

...............PLEASE DO NOT MISS

.

OP posts:
alexsmum · 09/08/2005 22:26

dot i felt exactly the same way...so incredibly blessed and like you said for foolish for finding life tough .life is a breeze compared to these people.

jayzmummy · 09/08/2005 22:26

alexmum....Taking away my sons disability would leave me with a child I wouldnt know. His personality would be completely different....it would be like being given a new child to love....a stranger.
Personally I wouldnt want a cure....but I would want the world around my son to be more understanding and accepting.

Blossomhill · 09/08/2005 22:27

Ditto jayzmummy. Just how I feel about dd. Without her quirky little ways, dd would not be dd!
As Luke Jacksom once said "Different is cool"

alexsmum · 09/08/2005 22:28

kanga i know exactly what you mean,like i said its very insensitive.....but understandable.

MrsGordonRamsay · 09/08/2005 22:28

MGR - I think fio2 was saying that smoking's nothing considering the stress she must be under - a lot of people would need much more than a fag! (sorry fio2 for interfering...).

I thought it was a bit strange - but only because of O2 being flammable and cigarettes being a bad combination..! But she was an amazing Mum, coping with all that - dp and I were gobsmacked at how she handled it all

I thought she was awesome, but I could not reconcile cigarettes and oxygen in the same building.

Fio

I did not set out to uspset anyone.

alexsmum · 09/08/2005 22:30

would you really really not want her disability taken away even if it meant her life and yours would be so much easier? she would still be your child , who you love. surely her disability isn't WHO she is?

RTKangaMummy · 09/08/2005 22:31

BUT I think it is for the parents to say NOT for grandparents who should support the parents rather than pass comment

OP posts:
Blossomhill · 09/08/2005 22:32

The kind of disability my dd has (communication) affects there personality and yes it would change. I would obviously want life to be easier but how would you feel if someone asked if you wanted to change your child's personality?

dot1 · 09/08/2005 22:33

I think a programme like this will automatically bring out a huge range of feelings and responses - it's so emotive... I dashed upstairs to take an extra long look at ds2 (can't open ds1's door without risking waking him up!) and am still feeling sad/worried/unsettled by the programme. When I was watching it I felt really strongly that they should get the operation done on lengthening Hamish's legs - but what do I know? Would all that pain be worth looking more 'normal'??? I'm so aware when I watch stuff like that that I'm speaking from a position of no direct experience. That's why I'm in awe of you lot in positions like this day in, day out. Mainly all I've got to worry about is a whingey stroppy 3 year old and a 1 year old who likes to fling himself down stairs - I'm counting myself very lucky at the moment

alexsmum · 09/08/2005 22:35

of course i wouldn't want my childs personality changed( although i would like stubborness in ds2 removed) but don't understand how it would change a personality to remove a disability. but i am not in a position to know and i bow to you who have a clue. didn't mean to offend .

jayzmummy · 09/08/2005 22:35

alexmum....J's disability affects his social and communication abilities. His ability to understand emotions, the world around him. His personality is unique just as it is with any child....so take away his disability and you take away him.

Sure there are days when its bloody tough.....but would I change him?.....would I want a cure?....NO NEVER.

Whats the saying Blossom????

"I wouldnt change my child for the world.....but I would change the world for my child"

alexsmum · 09/08/2005 22:37

exactly dot- you have spoken the words i couldn't find. i'm speaking from a position of no direct experience- god knows how i would feel if i was in that position.

misdee · 09/08/2005 22:38

i think tonights programme was just bring you upto date with what had happened in the last series. have put it on series link on the sky listings, so i dont miss it next week.

RTKangaMummy · 09/08/2005 22:38

DS doesn't really have a disability anything like these children just Hypermobility and Dyspraxia

And I tell him his brain is wired up differently to his friends when he asks why he can't run or catch a ball or ride a bike etc.

And he accepts that, I am not saying he particlarly likes it but that is just how he is

and yes I am sure that if he felt there was a magic pill he could take to make him like the others in his class he would probably want it

OP posts:
MrsGordonRamsay · 09/08/2005 22:39

Do you know what, I am going to bed.

Just remembered why I rarely stray onto SN threads, they were fairly general observations and I have been ripped apart.

Sorry I bothered, but thanks for the reminder KT, have "booked" the rest of the series, but shall keep my observations to myself.

Very, Very hurt and very, very pissed off.

dot1 · 09/08/2005 22:39

Even if it would make his life easier, Jayzmummy? This is a really rubbish comparison, but dp and I both hope neither of our sons are gay - nothing wrong with it, but my overwhelming urge is for ds's to have as easier life as possible, in as many areas as possible. OF COURSE it won't be a problem if they are, but given the choice I want them to meet nice young ladies and get married and all that.

Hmmm... that example looks even more rubbish now I've written it - not serious enough. Sorry. But I'll leave it in 'cos it expresses a bit of what I'm trying to get at?

dot1 · 09/08/2005 22:44

ooh - I've gone and killed another thread Off to bed aswell...

jayzmummy · 09/08/2005 22:46

Of course I want my son to have an easiy life....I have the same dreams as all other mothers....I want my son to learn to drive..I want him to get married...I want to be a grandmother to his children....and I hope with all my heart that it will happen....but reality is shite and dreams are just what they are!!

If overnight a miracle happened and I woke tomorrow to a "cured" son I wouldnt know who he was. It would be the same as you waking tomorrow to find your child had been replaced during the night by another.....

Blossomhill · 09/08/2005 22:49

MGR - you are allowed your opinions as much as everyone else is! You knew it was going to be contraversial before you even posted

MrsGordonRamsay on Tuesday, 9 August, 2005 9:50:05 PM

I have a few questions that will not make me popular, but I will wait until I have watched the whole programme.

So why so shocked?

alexsmum · 09/08/2005 22:49

no i know exactly what you mean dot.
like i said my boys have eczema, and especially ds2 has had a rotten time with it. he spent his first year practically in gloves with his face bleeding a nd oozing. they both have to bathe with special stuff etc. ds1 has had to tell his mates what the scabs are on his hands etc.if i could wipe this away, i absolutely would without hesitation because i want the easiest life possible for them.

Blossomhill · 09/08/2005 22:50

jayzmummy - again couldn't agree more. My dd can do everything else that any other child can do but is just different, a bit quirky.
Why change just so she fits into "the norm". As Jm said it would be like swapping her with anotehr child and every person that meets my dd falls in love with her. She has such a larger than life personality

alexsmum · 09/08/2005 22:51

mgr, sorry don't get why you are so upset? so strangers disagree with you? so what?

MrsGordonRamsay · 09/08/2005 22:51

Because........ I actually thought the single mum getting pregnant was the one that was going to get me ripped apart.

Not a basically sensible observation re smoking near Oxygen.

alexsmum · 09/08/2005 22:52

blossom of course your child is your beautiful child and you wouldn't change her. but if your child was in the position shelby was in, would you change her if you could? ( serious question?)

Blossomhill · 09/08/2005 22:53

Yes of ocurse I would Alex's mum