aaaarrrggghh wish me luck

[bubblagirl]

had phone call to tell me proposed statement is being sent out tonight im so panicky as i know i only get so much time to appeal and still dont know if school offer the first 12.5 hrs on top of statemented hours well i'll see how it goes tomorrow when it gets here feel so nervous

One thing I have noticed Bubbla, is that you have not mentioned any monitoring by autism outreach. Also does it state that all staff should be trained, skilled in working with children with a diagnosis of autism. His needs are more than speech and communication, therefore he definately needs help with socialising, and it is vital that he recieves support during all unstructured time, he will also require help with p.e (getting changed aswell).
The 'children being good language models' bit is strange and I have never understood the term, it is the responsibility of the lea to provide help with language so that he can access the curriculum, sorry always winds me up this term.
I would go through all reports, which should be attached as appendices, and note anything that is mentioned as 'needs'
objectives, etc, and make sure these are included in statement. If you find anything missing, then note everything down, and arrange meeting with statementing officer to tell them to include this. Look through all reports and see if there is mention anywhere of him needing direct 1:1 support, and point that out too. Look at educational psychologists report, and challenge that person on everything they say which does not fit your ds, then complain to principal e.p, who is also likely to head of sn panel, and must investigate all complaints, this is also a very good way to have direct contact with panel who makes decisions.
Hope that helps.
And chin up, you know that you can do this.
x

it has mention from pre school sn health visitor etc that 1-1 is needed oh and SALT even saying unstructured time also needs 1-1 lunch etc

full support is mentioned through out and 1-1 but not when it comes to his needs for the statement

should say not in the statement all reports say he needs it due to his social and communication problems

oh well had a good cry thought it was so positive and re read again and cant find any mention of 1-1 apart from the reports from professionals they seem to think a boy that can just about function with 1-1 at pre school will function without at a new big school new teachers , new children, he doesnt even communicate willingly at pre school im so annoyed it all looked positive 20 hrs etc but none is 1-1

Hi Bubblagirl

Just seen this again.

A - J is vague because they have not really said how they are going to impliment these strategies. It basically says very little in terms of HOW they going to do this or WHO is going to do this.

To give but two example:-
"d- his understanding of concepts and vocab to be developed through rl experiences and within variety of contexts"

"j- peers who can provide good language models and opportunities for small group and individual work on regular basis"

No re peers full stop.

Again they are stressing the small group and individual work on a regular basis. I would ask how regular exactly, again it is far too woolly to be of any real use or benefit.

Does Part 2 say anything at all about speech and language and or SALT provision?. I am guessing it does not but that needs to be in Part 2.

I can suggest that you talk to someone like IPSEA or SOS;SEN first thing Monday and run parts 2 and 3 past them as it is written. They can tell you what it should say and it will be very different from what Basildon LEA has written. They can also advise you re appealing to SENDIST.

My guess as well is that his hours will be totally made up of small group provision with no firm one to one support being provided. They want to provide support - but for as cheap as possible.

There is also no one to one lunchtime support provided and to get that from this LEA you're going to have to fight hard.

Who is involved in this "meeting around the child?" on the 22nd?. I would seek your own counsel re the Statement before that date.

Sorry I cannot be more positive but you can and should fight this bloody LEA tooth and nail for the provision your son both needs and deserves (I've been up against this particular lot before and won. You can do it too!!!).

Attila x

thanks very much when i read it first time i felt so positive but of course didnt really know what was written i guess

i saw it as 1-1 20 hrs plus 5 yet in reality there is no 1-1 at all

this is much harder than i thought lol

well best get my fighting head on aye may need to ask lots of questions to you all if i can lol

team around the child will be his new school senco his specialist pre school teacher his pre school key worker not sure who else a few cannot make it

anychance you can start taking to them now

the amount of 1-1 will be my biggest concern to especally if w ehave to go ms when had meetings at ms school ht seemed to view that be a extra adult in class

can you ask for meeting if need sor make snotes toaddtopropsed statement saying you wnat clarification on exactly how many hours 1-1 how many group

also that come into contact with bubblaboy are trained in communcation

and double check that the plus 5 hrs is on top if statement hrs

yes i am making notes and im adding what should and shouldnt be in what section the fact no times have been set out no person stated that have autism knowledge

this is so hard i felt so positive earlier glad i wrote some bits on here as originally thought ooh that doesn't seem so bad and then i couldnt have been more wrong just had another good cry get it all out now so i can get my fighting head on

im so annoyed he barely interacts with his 1-1 at pre school he does 2 half hour day 1-1 for just over half of that yet they give him no 1-1 at all at school longer days more people rediculous

right well ive seen loads i need to comment on even pead has suggested he works better with 1-1 so why they have given him none doesnt make sense to me

there is loads they only pick certain things out that others have written and use that but just not the parts that specify how much help will be needed

so my next step i guess will be phoning on monday and running through it and finding out what and where things are missing and going from there

going to be following how you get on ,what about using ispea

im going to phone them on monday and see where we go from there so much for me feeling positive to begin with just goes to show if you have no real idea you could easily mistake it as good

the way they have worded it is just using other peoples quotes without real strategies on what or how they'll implement these things or who with

and it says so many times he will benefit from 1-1 how he needs to be in small groups before large groups to help him settle and yet they have given 20 hrs for whole class small group or individual my problem is if he's in small group say 4-6 other children and some have behavioural problems straight away he would zone out he wont be able to take anything else in so he wont benefit at all

his danger awareness has been mentioned nothing stating how person in group can deal with this its so annoying so many people have said individual or small group and then they state no exact dealing so more likely will be in whole class setting so he wont benefit one bit

aarrrgghhh one last scream really thought it was good the more i re read the more i see it makes no sense

i should say danger awareness is mentioned in reports but nothing in statement

the need to help settle into school is mentioned several times nothing in statement

oh my goodness so much is missing all above the a-j reading through reports there all taken out of several reports from different people so they were originally just suggestions so they haven't answered anything they have just copied what someone else has said all of a-j is in other peoples reports with no what how or when mentioned or who with

there is alot of other things that have been mentioned that is not there at all

what about talking to snap se eif tey can help

yep have they even mentioned how they will do the introduction

no nothing

it mentions autism all way through until part 2 and 3 with help then it sounds more like his just a child who has social and communication problems and with limited help he'll be ok

yeah and its part 2 and 3 that you need it in .
looks like there trying to whitewash it andwould have to wonder just how much use your ds would get of that extra adult in class

ok well wish me luck today i'll be phoning IPSEA i'll drop ds into pre school run into town phone them when i get home its all go today hopefully it wont take too long as dont get long before having to get ds and going to SNAP

i still feel sick to the stomach keep dreaming about it having rows etc rehearsing what id say its really driving me nuts wake up feeling sick when i realise what we have to go through now

if anyone has nay really useful helpful stuff either what i can say or do please let me know i really dont have a clue and feel really alone at the moment im so worried if we dont get 1-1 ds will suffer

also with the individual reports some minor mistakes are in them do i need to contact whoever wrote them?

and in paediatrician report it says from reading pre school report would indicate features of a social communication disorder surely that alone would warrant more help but again not mentioned in statement all very vague

i need to lean on you all please who ever has been here and come out the other end lend me some of your strength and knowledge

Oh bubbla you can lean on me! My DS2 does not have autism but he does have significant special needs, mostly around communication,

I was where you are now this time last year, all of his needs etc were covered in part one but parts 2 and 3 were worded so loosely as to mean nothing really.

In the end I didn't need to go to IPSEA but sent the statement back highlighting all the wording that needed changing with a strongly worded covering letter. (I also had a thread on here that had helped me no end).

I telephoned the point of contact at the LEA and actually they did change it and he now gets full time 1:1, including lunch and play times. He has twice daily speech therapy and the SALT visits him every two to three weeks in school.

Sound determined,(I know you are, but it is easy to become upset when talking to these people ime)confident that you know the rights for your son, and that anything less is just not acceptable.

I know that that makes it sound too easy but hopefully IPSEA will point in you in the right direction as well.

I think this is a shit time of year actually, we are now heading towards annual review and I hate it! It is just another reminder of how things are more difficult.

Hi BBgirl - don't have time to read through all of this in a helpful way, also no experience of statements so far, so no real help but

thanks guys reassuring slightlycrumpled that you managed to get all that changed im going to phone in a minute but panicking about time needed as have to pick ds up at 10 to

oh no its just telling me its really busy bet i wont have time to do it now as have to go SNAP straight from pre school

nope cant get through wont have time today now damn really wanted to get somewhere im taking statement to SNAP and maybe they can shed some light too

Hi Bubblagirl, I'm another Essex resident. I've heard good things about www.familiesinfocusessex.org.uk/ might be worth a call to them to see if they can help

good luck with it all, I'm still waiting to find out if my DS1 is going to get any help at preschool. I think they must still use carrier pigeons to send letters out!

i think they do nfrh ive been given some leaflets telling me how to go step by step through statement so will do that tonight also have to highlight all the areas it mentions 1-1 or how his needs are severe in social and communication problems and also where all the reports say something that the statement doesn't