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SN children

Here are some suggested organisations that offer expert advice on special needs.

2 people in the last week have asked me whether my ds has adhd!

309 replies

essbee · 20/02/2005 19:23

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unicorn · 23/02/2005 22:47

essbee.. parentline

(it's parentline if link doesn't work)

there's a phone number 0808 800 2222.. don't know if it is 24hr etc.

essbee · 23/02/2005 22:48

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wobblyknicks · 23/02/2005 22:48

Yep

essbee · 23/02/2005 22:48

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essbee · 23/02/2005 22:49

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fairyfly · 23/02/2005 22:50

you need to get yourslef some support as soon as possible essbee, thats why we have these systems in place as your not the only one who has worries about their children. This is why once and for all you need to get the best possible care for your son and fight to see why he is so troubled. I just look at it as i do my son, he has a heart problem, i have an emergency line i can ring. Worries have evaporated and i know he has the best care possible.
Go to the doctors as soon as possible and you will find a cure for your sons behaviour, everyone will help you, nobody will judge you and you will be giving your son his happiness back.

roisin · 23/02/2005 22:50

Did they tell you HOW to "get help in place now for us both"?

They are right, I just don't know what you have to do that you haven't done already to make it happen.

essbee · 23/02/2005 22:54

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unicorn · 23/02/2005 22:55

good on you for calling them!

addiss
(addiss)
This one may be good to have a chat with someone in the morning.

alternatively I have found contactafamily
very helpful.

roisin · 23/02/2005 23:00

But you chased camhs today, and the response wasn't exactly helpful! Are you going to phone them again tomorrow and give them an update?

Are you taking him to the GP tomorrow as well?

I don't know how these agencies work; who will prod whom to get things moving. But somebody clearly needs a bomb behind them to make something happen. And it really shouldn't have to be you who has to do the chasing, nagging, hassling before anything happens. It's the last thing you need.

essbee · 23/02/2005 23:01

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JanH · 23/02/2005 23:01

essbee, I just came across this thread , which mentions self-harming (or rather Self-Injurious Behaviour, which is different) as an ASD thing (look at the posts around 10pm on Sun 20th); and I have found this forum which has a thread on self-harm and mentions biting arms

Some of the other posts on that MN thread, talking about total meltdowns etc, sound quite a bit like your DS too...has ASD been mentioned/considered by your GP or anybody else? Maybe you could start another thread in Special Needs asking about ASD, describing as much as you can of DS's behaviour and asking Jimjams etc what their view is? (I just looked up the thread you started last year here - chocol8 mentioned ADHD/AS as a possibility then and he seems to have gone a lot further down that road since then?)

roisin · 23/02/2005 23:02

Sleep well! Good night!

essbee · 23/02/2005 23:02

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SecondhandRose · 23/02/2005 23:30

So sorry to hear this essbee, hope you get some answers tomorrow.

Blossomhill · 24/02/2005 07:52

Essbee - I am so sorry you are going through this right now. I honestly think your gp would be another good person to see and then maybe get a referral to SS ( they are not scary at all) for help too.
Contactafamily are great as well. They have sent me loads of info in the past.

JaysMum · 24/02/2005 09:31

Oh esbee.....I am so sorry for you and your ds. i KNOW exactly how you feel as I encounter this behavior with my own little man.
I just hope and pray that you get the help that you need today....good positive help and support is just what you both need.
Go and see your GP and discuss with him all that has happened and ask to be referred to CAMHS URGENTLY.

Good look Honey....I know it's a tough time but hold on in there and keep loving and cuddling your little man.....

anorak · 24/02/2005 10:24

Hi essbee, I've just read all this. Your poor darling little ds. He just doesn't know how to cope with his anger, does he? And poor you, trying to deal with it.

You really need and deserve some support from the authorities. Keep phoning and pestering them until they provide some proper advice and help for you.

Thank goodness you found out - it appears he wanted you to. I am sure he trusts you and knows you love him.

essbee · 24/02/2005 18:19

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essbee · 24/02/2005 20:53

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unicorn · 25/02/2005 00:32

essbee.. how's things?
I hope you are getting somewhere with your appeals for help.

But,first and foremost I hope, that you are looking after yourself.

It is easier said than done etc etc.. but you seriously must take time out for you.

I hope you can find some way of making that a possiblity.

essbee · 25/02/2005 18:34

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roisin · 25/02/2005 20:26

Essbee - I am sorry to hear you've had a tough day with ds1 again, but am delighted to hear that the school appear to be taking some action too. The Head chasing camhs should have some effect surely?

I hope so. Have a good weekend.

Roisin

essbee · 26/02/2005 01:51

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tigermoth · 26/02/2005 07:36

essbee, just seen this thread. How awful for you. Hope things get moving so your son gets the attention he deserves from people who can help you both, not just fob you off with vague answers and broken promises of future appointments. I am glad you can be so open with his teacher and she takes things seriously.

Having read secondhandrose's messages, I'd hate to come across as patronising as well, but I've had a similar experience to shr with my oldest son. He was so active when he was younger, had really poor concentration and was extremely attention demanding and when he didn't get attention was very naughty (hitting people, running into things, continually shouting and fooling around in public places, climbing on anything, incessent fiddling with any gadget he found till it broke). Some (but not all) friends of mine who knew him well, were convinced he had a behavoural problem. I wondered too. He couldn't concentrate in class. His teachers at all 3 of his schools found him a real handful. If you saw him now, you'd think he was a different boy. I know children his age who have behaviour problems and my son is not like them.

I must second roisin's advice - my son responds better to rewards rather than punishments. At school, if his standard of behaviour drops, I notice the teachers start to pile on the bonus points whenever he is ok and this seems to have more of an impact on him than lots of punishments. But I am saying this knowing my son is 'normally' behaved. I don't know how it would work if he did have a behaviour problem.

Good luck with getting that help, and I hope your weekend is ok - I have work at home to do , too! shouldn't be on mumsnet really