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Just a very quick question re: stimming

103 replies

Chocol8 · 09/02/2005 21:07

Sorry for my ignorance, but could I just ask - does stimming only apply to a physical movement or do noises count as stimming too?

My ds has more recently been making alot of noises either in between speaking and also eating (also cleaning teeth). I used to do this when I was younger and it used to drive my Mum bonkers.

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Chocol8 · 09/02/2005 21:48

Bump

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MrsFROSTgetful · 09/02/2005 22:23

HELLLOOOO!

Well- this is something i don't know for sure about.....except for i know at assessments i've been asked about this....and L does sometimes hum....but in his case it isn't really that repetitive.

However..... a friens of T's (who i am SURE 99.99999999999999999% is AS) does do exactly what you describe....last time i tried to talk to him he was making a strange hum/throat gulping noise- almost rythmically following MY SPEECH....and then when he spoke it was gone- untill he stopped talking then it was off again.

Chocol8 · 09/02/2005 22:35

Well helloooo MrsF! Thank you for replying - I have a meeting with ds's headmistress tomorrow and would like to use the correct lingo - just so that it will confuse her if nothing else!

The noises he makes are repetetive and sometimes quite loud - he cannot stop - he just has to do it. He makes a kind of cracking noise - sounds like something splitting and then a sort of swallowing noise with a kind of grunt in there too, if you can imagine what that sounds like!!!

I am sure this has been bought on by what is happening at school, but is getting worse, not better.

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MrsFROSTgetful · 09/02/2005 22:55

unless anyone posts on here tonight with a better word then i'd use stimming.....as it sounds like he is using his body (voice0 repetitively....which if it were his hands etc would be stimming.

Good luck!!!

stupidgirl · 09/02/2005 23:04

Not an expert, but the book I'm reading about AS describes vocal sounds as stimming. HTH

Chocol8 · 09/02/2005 23:15

Thank you very much MrsF and Stupidgirl - I will mention this tomorrow.

I will need all the luck I can get MrsF - it's gonna be a toughie!

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macwoozy · 09/02/2005 23:16

I always thought stimming was vocal as well as physical,but I could well be wrong, my ds drives me nuts with his, and it's getting louder and louder, he doesn't even realise he's doing it half the time.

Davros · 10/02/2005 15:51

Yes, it is verbal stimming which, as well as repetitive vocal sounds can be all sorts of things like coughing, grunting, my DS does what we call his hoot and also there is verbal stimming that uses words but is repetitive and not appropriate/functional. Sorry to come in too late and assume your meeting is over, how did it go? You could call it repetitive verbal behaviour if stim doesn't work or verbal self-stimulation

Chocol8 · 10/02/2005 18:00

Thank you, yes Davros the meeting is well and truly over - I am not sure whether to start a new thread or not as it's a long story, but the meeting was horrific! It really looks like we'll have to move away to somewhere that can offer a good school with good SENCo.
I am still shocked and saddened by the meeting and have been in tears all morning.

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Davros · 10/02/2005 18:06

Oh no! So sorry to hear that it was so awful. Are you still coming on 25th? I posted on the SN Meet Up thread to find out. We can talk about it then if not before. If you want to CAT me I can phone you if you want to talk before then.

Chocol8 · 10/02/2005 18:09

I really want to come to the Meet Up but if I get some appointments to view schools I will have to give it a miss this time.

Thank you Davros - I will CAT you if that's ok - I am really quite desperate now and need some good advice about this situation.

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JakB · 10/02/2005 18:19

Chocol, I'm so sorry to hear that honey . Do you want to tell us more? Would it help?
Sending {{{hugs}}}
ps DD has got lots of vocal stims- one that sounds like a dolphin and a low 'hum' are her favourite!

coppertop · 10/02/2005 18:31

Oh no, Choc. Sorry the meeting was so awful.

JakB · 10/02/2005 19:30

Choc? We're all here

Chocol8 · 10/02/2005 19:38

Thank you! I have just spent nearly the last hour on the phone to Parent Partnership - she was "gobsmacked" at how the meeting went.

I have to turn the pc over to my ds to visit Bob the Builder now, but will come back with more details later. Thanks again. x

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MrsFROSTgetful · 10/02/2005 20:07

I had a horrible feeling that this would happen.
I wish so much that i was wrong.
It is exactly a year since I started to think we really had to move schools ..... its scarey- but we don't regret it.
People think i am mad as i took my boys out of 'HIGH performing school' in a 'nice' area....and they are now in a 'low performing' school in a 'deprived area'

however what mattered to me was that there are several 'special needs classes' here- which though my son's are not in them- means that there is a better understanding generally of SN ....though turns out they have no experience of AS!!!!

No where is perfect and i still have down days....Home ED is probably the answer-having 2 maybe 3 with AS- but i don't feel able to do this....

Good luck- i ahven't forgotten the socks.....i will try to send them tomorrow!

ImuststopdrinkingBlossomhill · 10/02/2005 20:33

Chocol8 - Hugs to you honey{{{}}}

I know how you are feeling as I have been there knowing that the school my dd was at had failed her

It's so hard isn't it? I do think you are absolutely the right thing in changing schools. Have you ever considered a unit type placement as dd has come on so well since being at hers. Even her behaviour at home has improved immensely.
If you need to talk please CAT me and we can chat xxx

Chocol8 · 10/02/2005 20:47

Helloooo MrsF - back now ds is tucked up in bed (for now at least) and I have the pc back again!

Where do I start? I took my sister with me for support and I honestly think in hindsight that as soon as the head knew she was not PP she could relax and behave badly...which she did.

I went prepared with notes for me as a prompt/reminder, 3 copies of an agenda and all the up to date paperwork/reports. I think she was a bit shocked at the agenda but I had a lot to cover. She laughed and said "he has no earthly chance" when my first question was would the school help me start the statementing process, next she said that as a parent herself "if I had as little faith in the school as you do, I would remove my child from the school". I asked her what exactly she was implying although it was bloody obvious. She just repeated what she had said again.

I was told after about 15 minutes that she felt I was rude and aggressive (crap - I was courteous and never raised my voice once). She constantly spoke over me and I asked her several times not to do this.

She told me that the "professionals" at the liaison meeting in late Jan thought it best not to have the school/home book in place anymore. (he has had one in nursery and school since he was 2) and that she was telling me now - 2 weeks later - that it would not be used anymore. She asked me "do you still want him to have a home/school book when he was 18?". I admit to telling her that was a very stupid question. When I said that now my means of communication with the school had been taken away, I would have to phone or write letters she replied "are you threatening me?" WTF?!!!! Where did that come from?

She told me that what I called "bullying" was not bullying if it was not done by the same child each time! We are now on the 6th (3 of them were tantamount to assault) incident and still they are not taking it seriously!

I was also told that I was overprotective of my son (he's 7) and that he had to take ownership of his behaviour.

Typing this stuff just makes me realise even more how ludicrous this woman is! I could go on, but they were the hilights (or lowlights) of the meeting (which incidentally was only meant to last half an hour before her next appointment" but actually went on for an hour and a quarter.

I said that I felt that it had been a waste of time, however she felt that the meeting had been of benefit. I am NOT going to let this one go - and even though I know my ds is going to have to move schools, she isn't getting off this lightly. I will continue when he has left to show her for what she is. No wonder her SENCo acted like she did if she has that woman as an example.

What happens now? Any suggestions would be welcome....even the horrible ones!

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JakB · 10/02/2005 20:54

OMG! I am absolutely speechless and shocked Chocol. How awful .
I am really shocked on your behalf, particularly by the bullying remark and the sarcastic 'needing a book when he is 18' remark. I've no experience of school issues but there must be a body you can complain to? I'm not surprised you've been in tears. It's bad enough going through something like this but particularly when you're fighting for your son. Much loveXXXx

ImuststopdrinkingBlossomhill · 10/02/2005 20:55

Chocol8 - This may sound completely OTT but I would take ds out now.
They sound awful, truly awful. I think that they sound uncaring and completely unaware of ds's needs. I feel for you as I would have wanted to punch her lights out.

My ds (NT) is 7 as well. His school bend over backwards if I go in and let them know if ds is unhappy about something. IMO 7 is still very young and they still need so much help and support. Your ds should not have to put up with this as life is hard enough for our children as it is.
Don't let the old hag get away with it though. Take it all the way C8. I know I would!

Chocol8 · 10/02/2005 21:03

Bloss - I would love to take him out now, but I have to find another school - and double quick. The only special needs school around here is full to capacity and have a waiting list over a year long.

I will call schools admissions tomorrow and ask about availability, but short of that, I am just glad we have half term next week.

Thanks JakB - all this made me wonder if I was really living in a paralell universe today - I still can't accept that she said those things - and the worst thing was that she may get away with it. She would make a good spin doctor, i'll give her that!

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jangly · 10/02/2005 21:06

I wonder if your local MP could help you?

roisin · 10/02/2005 21:10

I am so shocked - this is just unbelievable

Chocol8 · 10/02/2005 21:14

She was dismissive of ds's dx so I asked her if any of her 3 children had special needs - she seemed quite insulted by the question...I think that says it all.

Good point Jangly, I hadn't thought of that - I will look into it.

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ImuststopdrinkingBlossomhill · 10/02/2005 21:14

I know C8 it's not feasible but I am just so angry on your behalf. I do hope you find somewhere soon though.
I actually feel so sad about this . Makes me realise that as much as the government rave on about inclusion in my opinion most children that have language/communication problems/asd it just doesn't work as they really are out of there depth (the school).
There needs to be more unit based places as I know for lots of children (especially high functioning/aspergers) it would work really well.