OMG oh my god

[Jimjams]

OK you know how I've always bleated on about ds1 regressing following eczema herpeticum at 11 months, and how we felt the antibiotics were an issue. Well just read this . DS1 was prescribed augmetin duo by a consultant dermatologsit- the pharmacist questioned it when dh picked it up - as being veery strong for an 11 month old (and the packaging said not for under2's). But we gave it becasue it had been consultant prescribed.

Buggeration buggeration buggeration.

I'm so sorry, jimjams.

How shite Jimjams, this must have been like a kick in the gut Is the illness he had a form of herpes? I just saw in the latest AiA newsletter an item about Herpes Encephalitis, can send it to you if you want but you've probably got it. It must be so frustrating and upsetting to know that something happened, someone did something, that caused your child's autism. I'm not in that situation by I really feel for people who are and can understand why they look for something to reverse or improve it.
One problem is that there are LOTS of drugs that are not licenced or recommended for children but which are effective and accetable, they just haven't been trialled on children. Does sound like consultant could have just chosen a different treatment though.

That is truley awful Jimjams.

Dd2 was given a 2 week course of augmentin at 20mths after having pnemonia. I didn't even realise it wasn't recommended for under 2's.

OH my god!!!!! Just shows, your instincts were right all along but..... what now?????? I'm just gobsmacked.!!!!

so sorry. hope you get through to the researcher.((hugs))

TBH I don't think the consultant acted improperly-DS1 was in a bad way when he was given augmentin. it was more an unfortunate series of events. He had been given one antibiotic which didn't work, my GP has swabbed him which came back as having not grown (which was bizarre as the GP swabbed so much gunk onto the swab- god knows what the lab did wwith it). so in desperation the GP rang the consultant- who suggested augmentin. That didn't work so up to hospital where eczema herpeticum was diagnosed and acyclovir and another sawb taken and a different antibiotic given. e herpeticum can be fatal- so it needed aggressive treatment.

I'm no longer an AiA member Davros so would love a copy of that article (yep e herpeticum is eczema infected with herpes- in ds1's case it developed very rapidly - and the only clear patch of skin on him was his feet). Afterwards when he started refusing to put his feet on the grass we thought it was because of his eczema making is skin sensitive.

I think what annoys me more is that when I've said to anyone medical that he regressed after e herpeticum and aggressive antibiotic treatment- and that I've thought there may be a link given his bowel/diet changes afterwards they've never been interested. People just assume as a mother you're too dim to really notice what's going on. If they listened more then potential drug side effects could be found/investigated faster. Ah well in an ideal world eh?

Its a very short article so I reckon I could type it out quite quickly. I can't understand a word of what's written in the AiA newsletter! I just get it as I feel I should be supportive of that side of the autism community, oh and they sell the autism awareness ribbons and badges!

Wow, jimjams.

I wonder if it would have been in the antibiotics which ds1 received at birth? Described as very aggressive treatment.

I am so sorry - just lost for anything to add.

My 2 dds were both given that, dd1 was 3.5 & dd2 was 15 months. We all had flu (so not sure why they were given ab, but was so ill myself didn't question it at first). DD1 was very ill on it, to the extent of vomiting blood 24hrs after starting the treatment so I stopped it immed for both of them (and informed gp). DD2 developed severe eczma at about 18 months, and has also had severe ear infections. She is also dairy intolerant. After reading the article I am very glad we didn't continue with the course for dd2 as I wouldn't be surprised if it caused some of her problems. I'm really sorry it had that affect on your ds1, but hopefully knowing the possible causes will put your mind at rest for ds2&3.

The researcher has replied- and said that she has heard many similar stories since the press release.

I'm sending her video of ds1 pre and post illness.

Jimjams- there's nothing I can say. Can't imagine the mixture of anger, emotion ,relief almost...that you must be experiencing.

Your DS won't change by knowing this, but in your heart it may answer a few questions for you.

{{{{{{{{{{{hugs}}}}}}}}}}}}}Dingle.xx

Can't stop thinking about this jimjams - it is too awful for words

oh Jimjams

Oh My God. Jimjams, don't know what to say. Do you know what, I don't know what the antibiotics were that DD was given before her 'crash'. I just know the doctor said they were very strong. I was totally blase about such matters at the time and just thought if they would make her better, she should have them. I've never really gone down the route of investigation but will do now. OMGGGGGGGGGGOOOODDDDDD... I don't know what is easier, do you? Thinking that your child's autism as predestined or thinking that something 'caused' it?

oh what an awful thing to find out....could you claim compensation?

jakb- go to your gp and find out what they were. Before going to bibic i got a list of everything he'd had- bibic wanted it. had no problems from my gp...

Absobloodylutely
She's on another bloody course now because of ANOTHER really nasty ear infection.
Got cranio osteopathy booked in next week

i know what you mean about cause vs nothing you could do about it. however we've alwys felt that ds1's autism was triggered or at least the severity of it was. it has made me slightly less paranoid about ds3.

doesn't look like i was given augmentin in hospital either as its oral- and also not recommended if receiving anticoagulants- which i was....

OH MY GOD!
Am sat here with DD's NEW antibiotics in front of me and they are called Co-Amoxiclav- a combination of amoxicillin and clavulanic acid.
Oh my God, my mum is here and we are both speechless.
Am going to the docs first thing tomorrow. She has only had two spoons. Am convinced she has had this before. Must be another name for augmentin?

yes it is- same drug.....

Oh Jimjams - don't really know much about your background but that must be awful for you