DLA WAITING TIMES THREAD 66

[zoeybrooks45]

Please feel free to add your scan date and whether it's a new claim/mandatory reconsideration/change of circumstances or renewal.
New claims (NC) - people are being told the wait time has increased to 25 weeks! I would say most are done before this though around the 20 week mark?
Mandatory reconsideration (MC) and Change of circumstances (COC) is around 20-25 weeks.
Renewals tend to be between 15-20 weeks.
If you disagree with the outcome of an MR you can appeal and go to court (tribunal)
Scan date is the date DLA scan your application forms on to their system, if you downloaded your application forms then this will be from when your award will be backdated from. If you called up for forms then the date on those is the date yours will be backdated from.
If successful and claiming universal credit (UC) please update them as this will entitle you to disabled child element adding extra to your award.

Hi hun my 4yr old daughter got refused completely but is extremely hard work day and night and very dangerous to herself and others.
suspected adhd/autism
drs thought she should be entitled to high rate care but I would have been happy with anything at all but she has got 0 award 😭
she has been accepted onto jades pathway after referral by gp

Did you hear back from DWP with your other claim? I’ve got no progress. Super frustrating

Mr scan date 27-02-25 my son got middle rate care element and low rate mobility.he is 5 he is still in pushchair becous of safety i have to put him in push chair he refuse to walk he dont have awernes of danger.he runs towords danger.i have to restain him he gets meltdown outside whenever we go.he needs 24/7 care he stay awake at night.he sleeps 3 hours .thats why i asked for mr.what do you gys think am i going to get it high rate one or no chance .advise me i am just worried.

I am in same position but my son is 9
all the same as you said above identical
and my son is hospital educated at home as he is unable to mentally go to school
I am keeping fingers crossed but I think for myself they will keep same award

OMG😭

Last year, my daughter was 3 years old, and I needed help, but I had no medical reports to prove she was autistic. I knew that, with only my word, it would be difficult to get DLA (Disability Living Allowance) approved.

So, I contacted Renata Noyce, a Portage Psychologist and Adviser, who conducted an online consultation. She observed my daughter, we discussed my concerns, and I shared videos as evidence. Based on this, she created an Observation Report, which cost £250 and was essential for my daughter’s diagnosis. The paediatrician recognised its quality and, together with the consultation, confirmed her autism.

To ensure the DLA form was completed correctly, I also used Renata’s service. With her experience, she structured the form properly, and my daughter was awarded high rate DLA. This service cost £170, but it was worth it.

I later used her services again for my second daughter, who is also autistic, and she was also awarded high rate DLA.

This Observation Report was also crucial for my daughter’s EHCP approval and Blue Badge. It is a valuable document that can be used for various applications.

Renata is very active in special needs parent groups and has been an angel in our lives. As a mother of a child with special needs, she truly understands our struggles and knows how to communicate them effectively in reports.

If you need help, I highly recommend her.🥰🙏🏼

My sons one I put in appeal and Dwp was supposed to respond by 28/02 but still haven’t 😭

Thank you so much hun I will definitely look into this x

@Wallacebird Here is the link to her Instagram. There, you can see the amazing work she does for children with special needs in the UK. You will also find links to contact her and her team.

I hope you can sort this out soon and that your child gets what they rightfully deserve. Wishing you the best! 🤞

https://www.instagram.com/renatanoyce/

I have had 2 missed calls from them this afternoon my claim was only put in two weeks ago 🥴 dont know what they want to talk about...

Ring them do option 3 instead of 4 they will answer really fast

I'm on hold 😱

Fingers crossed keep us updated 🙏

@Nirzhara What Diagnosis does your son have?

I know iv seen people before and after mine. Just does my head in that the communication is so poor.

Please can we not advertise alternative to services.

As always, do your research and gain understanding before buying a service or product.

@Josie163 @Wallacebird Just to expand on what this lady has said here.
This Instagram lady is a trained portage advisor but working independently and charging for her services.
In the UK we have various free services for children one of which being portage ( the national portage service)
They are a home service for children Age 0-5 with Sen or suspected Sen and you can access the service for free you can be referred by your health visitor, salt, family doctor and also you can call early help and they can refer you onto portage and the service is free.. They can do observation report for you also.
You do not have to pay.
Just thought I'd input that for families that can't afford a private independent portage advisor 💫

It was just for security measures.
I posted it on 28th Feb
Scan date is 7th March so quite quick considering 😱🥴

Least you know save you worrying the weekend 🙂

He is in Autism path way he dosnt communicate he is still in nappys.

@Nirzhara So I'm guessing it's the HRC you are doing a MR for and not HRM as no diagnosis..
Get some advice on the evidence needed and the discribors for HRC and take into account the child's age ect and what additional evidence you can get together.. If you feel your child is entitled to a higher rate you are within your rights to ask for them to reconsider the award but also remember when doing a MR you could also risk your current award.. Good luck 💫

*edit *Sorry just reread your post so it was already a MR and they've awarded MRC and LRM so are you looking to appeal for HRC is that what you meant or for HRM too?

Hi positivityRipples
I am in similar situation why does a diagnosis make a difference for mobility
my son does have a diagnosis but I thought DLA it doesn’t matter just curious

@Sarahlou15 you do not need an official diagnosis to claim Dla you just need evidence that a specific disability is being looked into and the symptoms that are present affect daily living and or mobility ect.
For HRM if the child is able to walk but virtually unable to walk ( vuw) or smi ( severely mentally impaired) you have to prove the 6 points under these rules one of the points is arrested development of the brain ( this can be proven with diagnosis of either Autism or GDD) you would still have to prove the other 5 point but without the diagnosis proving arrested development of the brain is near impossible in dla criteria and rules and legislation.

Thank you I did not know that
useful to know
I will see with my MR but didn’t even think could get HRM as know it’s hard criteria

thank you

In absolute shock. 22+2 MR. Went from total decline from original scan date in May 2024 to being awarded HRM HRC. Have a huge backpay coming and to say I cried happy tears is an understatement. Sent 50+ pieces of evidence to back up everything I was saying so when people tell you less is more, NO! If it backs you up, send it!! Decision maker rang today to clarify things and was told on the phone. Good luck everyone waiting 😍

Congratulations glad you got what your child deserves
mom on week 19 MR so hopefully not much longer for me
all the best