DLA WAITING TIMES THREAD 65

[zoeybrooks45]

Please feel free to add your scan date and whether it's a new claim/mandatory reconsideration/change of circumstances or renewal.
New claims (NC) - people are being told the wait time has increased to 25 weeks! I would say most are done before this though around the 20 week mark?
Mandatory reconsideration (MC) and Change of circumstances (COC) is around 20-25 weeks.
Renewals tend to be between 15-20 weeks.
If you disagree with the outcome of an MR you can appeal and go to court (tribunal)
Scan date is the date DLA scan your application forms on to their system, if you downloaded your application forms then this will be from when your award will be backdated from. If you called up for forms then the date on those is the date yours will be backdated from.
If successful and claiming universal credit (UC) please update them as this will entitle you to disabled child element adding extra to your award.

Sorry I've replied to the wrong message! Apologies

Also wondering this x

No idea, sorry, never had this, please call them back if it's very urgent for your child

Sorry to hear you got declined is this a mandatory reconsideration I'm waiting to hear we were declined now waiting on mandatory reconsideration decision it's been so long and stressful good luck

Hi everyone, I called today regarding a MR as I’ve got some some new evidence to send, she told me it’s with a case manager and asked me what the new evidence was so she could make a note of it, does this mean a decision will be made soon? Xx

I’m feeling a bit frustrated. I’ve just done the forms for my twins with cerebral palsy, they are about to turn 2. I’m worried because mobility doesn’t kick in until 3 that they won’t be awarded despite the extra care needs. I’ve seen many being denied as they say under 3 other children also need a lot of care.

I’ve sent the forms but they’ve not been scanned yet so we have a very long wait.

I’ve just seen on a Facebook group that people are getting awarded for needing eczema cream throughout the day: I just can’t reconcile how children needing cream during the day is being awarded when I’ve seen quad CP children being denied despite being unable to use their limbs. How is this not more standardised?!

applying cream is of course an extra care need and I’m not saying they shouldn’t be awarded, but how is this counted as more care than caring for an under 3 who cannot physically move ?! Mobility I understand, but there is just generally more care needed for a child who can’t mobilise/ sit up etc.

we sent in quite a lot of evidence for all different things to be honest… but from what I can remember
-paediatrician report 2x from July 2024 and this January (late evidence sent in)
both showed she’s 20ish months behind her age and possible GDD
-speach and language reports and future appointments
-hearing reports and future appointments
-SENCO report and plan
-personal statements with a lot of details from head senco and school teacher
-health visitor report
-IAP
-nursery report
-a very detailed report from me
and then I also sent in her latest parents evening report witch shows she’s not on track for anything 🙃

I sent a lot more evidence for my youngest then my oldest who has a diagnosis of ADHD & GDD
my eldest was just

-paediatrician report
-SENCO report and plan

-reports from her teach from this year and last
-sleep diary (she doesn’t sleep well at all)
-detailed report from my self

NC SD 29/10
Hi all!
I'm wondering if I should send email correspondence as extra evidence this late. I contacted CAHMS via email to chase up ASD and ADHD assessments and gave them a list of examples/details of what behaviour changes my son has had since his last appointment in Aug 24. Would this be beneficial to the claim as its a more up to date list of the struggles he has day to day? Or is it too late to be added to the claim as evidence?

I’ve about to chnage my uc and update when about caring for someone and it asks for the date do I put the date I got awarded dla or from when dla is backdated to ?

Mr 18/09 been with dm 3 weeks 2 days still haven’t heard anything first claim was done 14/03/2024 they lost all my evidence so went by booklet an declined so sitting here casually waiting as when you ring you get that dreadful 25 week speech don’t know how many times you can sit an listen to that an they don’t give you the time of day so snotty to

Mine as been with dm for over 3 weeks

Is a case manager the same as a DM do you know? Hope you hear back soon! Is yours an MR too? Xx

Hiya you put the date payments were backdated to

So I just got off the phone to them mr 18/09 still with dm no decision made yet my daughter had an appointment again last week for a mri scan her diagnoses have got worse her scollious is now a 88 degree angle was 78 when I first done my claim 14/03/2024 whic was declined coz they never looked at my evidence just the booklet joke may I add she now as 3 snapped ribs on her left rib cage due to the damage so got really worse her Perths was just left hip now right to she goes for her 4th op in 2 weeks da tree d on the letter I have so she says to me send it in k said it won’t get there in time so asked for the dm to ring me to see how I can get this letter to them fast …. Here is the wait now again

I got told different things dla said they both make the decision someone on here said they different people so no clue they tell you one day it’s with dm then it’s cm so have no clue love just got off the phone no decision made yet the dreaded 25 week speech

Thanks lovely; it’s all confusing isn’t it! Fingers crossed you hear back soon xx

Yes it’s a mr love shouldn’t have gone this far but the first dm who gave a no went by booklet only not the evidence and her diagnoses and then lost all my evidence so had to do a mr 18/09 and send all new evidence in its a joke really is

Think am used to the waiting game now been since 14/03/2024 really but they can’t decline again they have to look at the evidence it’s so not fair I have sent them consultants names she is under 2 off them and the school an not once have they asked them anything it’s so cruel the way they leave you really is

That’s crazy that they didn’t look at the evidence! Hope it’s a good outcome for you this time and you hear back soon xx

@Daniellefp82 that's terrible, you've waited so long! Did you put your daughter's name and dob on the evidence or reference number if you had it?

I found out my son is high masking at school whilst it doesn't give evidence of his struggles at school it does give evidence of his outbursts and violence at home ... do I call so they can add to his MR evidence?

Was called yesterday to confirm bank details by a dm who said they'd be making a desicion yest/today! So nervous now its at the final stages! Will call monday morning to find out but good luck to everyone with the long wait over the weekend :) x

What sc? Good luck 🤞

I’m sorry you are feeling frustrated. You recently submitted the award so at this time you are unaware of the award you will be given, which can be a difficult time for you.

this space is designed to support one and another during this anxious time. I will not tolerate a parent looking down at other children who have been awarded, there is extreme cases of skin condition that you will not understand because your child does not suffer from it. The amazing things about disabilities is they affect everyone in different ways just because your child has a physical disability does not make them more deserving as someone with a different disabilities. Please take a moment to reflect on your comments as others might find them very offensive. Other children are not who you should be angry about, it should DWP who make these forms so specific and award accordingly to there polices and practices.

I seen this message and was taken aback by it as a parent to a child (3yo) that has extreme eczema (i do not get dla for her, never felt the need to apply) hearing her cry saying her legs are on fire and constantly iching. People asking has she been burnt by something or looking at her asif something is wrong with her skin. She finds it difficult to sit as its the back of yer thighs that are most affected. We've had multiple&multiple appointments for her and no creams or steroids work for her, so seeing this kind of shocked me from a fellow parent! Yes my child is not "classed" as disabled but we still have our daily/nightly struggles, sometimes even more then my actual disabled child (who i do get dla for)