Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

DLA WAIT TIMES THREAD 47

911 replies

Matilde08 · 20/06/2024 11:01

πŸ’πŸ’πŸ’πŸ«ΆπŸ»

OP posts:
Thread gallery
11
Herecomestheson0106 · 28/06/2024 07:00

i'm waiting on MR for an application made in October. I had a dream last night it was rejected again.
@Shazzle88 i do the same I keep trying to remember what I've said to know if it's enough.

I know I messed up the actual form it's a bit of a minefield but in the MR I've sent off a letter explaining I feel I completed it wrong. I wasn't specific enough but I've tried to be in the MR. I'm worried my evidence isn't enough as my sons slipped through the net with his surgeon at the hospital I've been desperately trying to get an appointment for him to give me further evidence but instead I have it from the gp. I had to use letters that I'd paid the gp for the school and send those in to DLA.

i spend a fortune in laundry detergents, clothes, underpants, pull ups, puppy pads for travelling etc. DLA would be a massive help (as I know it would to any child with an additional need). I'm just feeling so anxious during the wait. Hopefully not much longer now as my sd is 28/03.

killingpeeve · 28/06/2024 07:00

Forms scanned 19/06. So I imagine a long wait is ahead!

My son was awarded HRC and HRM within about 5 weeks of me first applying but this was in January 2023

SendProsecco · 28/06/2024 07:00

Crazyhouse4 · 27/06/2024 23:40

I think that’s why you’ve got that amount, when I applied for carers allowance because it’s classed as income it wipes out the disability and carers element but obviously you have to have those elements on uc so your not out of pocket, I got a low backpay too because the benefits cap had been removed from getting Dla, I hope I haven’t confused you

I have not applied for carers allowance, the carer element is separate/different to carers allowance which does get taken off your usual UC like for like .. Carer element on Uc is Β£198 , disabled element is Β£156 and you can have both ON top of your regular payment of UC .

Offtopic · 28/06/2024 07:11

Morning! Scan date 08/03 and woken up to Β£1139 in my bank. 16 weeks today. I think she might have MCR but no mobility? She doesn’t need loads of looking out for when she’s asleep but I have to settle her til 10.30, as she can’t sleep. I’m just grateful to get anything I completely mucked my form up!

Crazyhouse4 · 28/06/2024 07:20

Shazzle88 · 28/06/2024 03:29

he said priority 1 hun, and i should hear within ten working days. Im so nervous how do you stop yourself from over thinking everything? I keep replaying the form in my head panicking that ive done it wrong. Xx

I wonder if they will change mine to the 10 working days when I call today πŸ™„ others with priority first last week had a decision in 3 days so you might not wait that long, I think they just give us the longest wait time so we don’t keep calling. Did you take copies of your claim form?

Crazyhouse4 · 28/06/2024 07:23

SendProsecco · 28/06/2024 07:00

I have not applied for carers allowance, the carer element is separate/different to carers allowance which does get taken off your usual UC like for like .. Carer element on Uc is Β£198 , disabled element is Β£156 and you can have both ON top of your regular payment of UC .

Sorry I thought you said you claimed carers allowance for this Dla you’ve just updated uc with

Shazzle88 · 28/06/2024 07:26

Crazyhouse4 · 28/06/2024 07:20

I wonder if they will change mine to the 10 working days when I call today πŸ™„ others with priority first last week had a decision in 3 days so you might not wait that long, I think they just give us the longest wait time so we don’t keep calling. Did you take copies of your claim form?

No like a bloody idiot i didnt copy it so im over thinking trying to remember what ive put. Yes i think they say that so that we dont bother them for a while lol did u copy forms xx

Shazzle88 · 28/06/2024 07:28

Herecomestheson0106 · 28/06/2024 07:00

i'm waiting on MR for an application made in October. I had a dream last night it was rejected again.
@Shazzle88 i do the same I keep trying to remember what I've said to know if it's enough.

I know I messed up the actual form it's a bit of a minefield but in the MR I've sent off a letter explaining I feel I completed it wrong. I wasn't specific enough but I've tried to be in the MR. I'm worried my evidence isn't enough as my sons slipped through the net with his surgeon at the hospital I've been desperately trying to get an appointment for him to give me further evidence but instead I have it from the gp. I had to use letters that I'd paid the gp for the school and send those in to DLA.

i spend a fortune in laundry detergents, clothes, underpants, pull ups, puppy pads for travelling etc. DLA would be a massive help (as I know it would to any child with an additional need). I'm just feeling so anxious during the wait. Hopefully not much longer now as my sd is 28/03.

What evidence did u send hun and how old is your child? I know what u mean hun its horrible why did they decline lst time? What were there reasons xx

MotherAndDSon · 28/06/2024 07:33

Offtopic · 28/06/2024 07:11

Morning! Scan date 08/03 and woken up to Β£1139 in my bank. 16 weeks today. I think she might have MCR but no mobility? She doesn’t need loads of looking out for when she’s asleep but I have to settle her til 10.30, as she can’t sleep. I’m just grateful to get anything I completely mucked my form up!

Congratulations on the award πŸ‘πŸ»βœ¨οΈ was it a new claim?

MotherAndDSon · 28/06/2024 07:34

Good luck everyone 🫢🏻 hope we get loads of award today

Crazyhouse4 · 28/06/2024 07:34

Shazzle88 · 28/06/2024 07:26

No like a bloody idiot i didnt copy it so im over thinking trying to remember what ive put. Yes i think they say that so that we dont bother them for a while lol did u copy forms xx

I didn’t with my eldest daughters forms that was done recently, I was constantly thinking did I add that to her form πŸ€¦β€β™€οΈ but she got MRC and LRM and I only sent in her questionnaires that I sent to camhs for assessment with her form but my youngest daughters I’ve copied everything, she has the highest needs out of my children and I wanted it there incase I had to do a MR if they don’t give her the right award because of her age ( I’ve put off claiming Dla for hers because of her age but her preschool teacher said she would more than qualify so I’ve done it now ) so fingercrossed we get the right outcome

MotherAndDSon · 28/06/2024 07:35

I'm still thinking if I should call today πŸ€”

Herecomestheson0106 · 28/06/2024 07:38

Shazzle88 · 28/06/2024 07:28

What evidence did u send hun and how old is your child? I know what u mean hun its horrible why did they decline lst time? What were there reasons xx

I sent reports I had from the hospital which detailed what medication he was on, the affects of his condition and proof of the surgery he had + Botox, I sent a letter from nursery too and I think some medical notes from the gp if I remember correctly. They declined because children his age aren't always potty trained but it's not a potty training issue and they also declined because he had no diagnosis which wasn't fair. It just doesn't give me much hope at all that they'll overturn all that at MR. although I have sent more detailed letters from gp and nursery now so fingers crossed!

its frustrating that they say some children aren't potty trained at that age because those children that aren't aren't having to have enemas every night, medication that makes them vomit during the day andnight, or needing to be watched when they're eating to make sure they actually eat without being sick/just eat in general because the medication makes him feel so poorly but he cannot empty his bowels properly without it all. And the trouble also is that the medication isn't fully effective so he always has a hard mass in his tummy. I don't see how this doesn't even warrant LRC

Offtopic · 28/06/2024 08:17

MotherAndDSon · 28/06/2024 07:33

Congratulations on the award πŸ‘πŸ»βœ¨οΈ was it a new claim?

Yes completely new claim. Really relieved as I want to buy swimming lessons for her. I sent in OT form, visual perception form and filled in the form really badly.

MotherAndDSon · 28/06/2024 08:20

Offtopic · 28/06/2024 08:17

Yes completely new claim. Really relieved as I want to buy swimming lessons for her. I sent in OT form, visual perception form and filled in the form really badly.

Aww, hope your daughter enjoys her swimming lesson and congratulations once again 🎊

ArtfulJoker · 28/06/2024 08:56

MotherAndDSon · 28/06/2024 07:35

I'm still thinking if I should call today πŸ€”

Are you going to call? I think I’m leaving mine until I hear off them now it makes me so much more anxious when they say it can take 20 weeks, another 5 more weeks 🀯

MotherAndDSon · 28/06/2024 09:10

ArtfulJoker · 28/06/2024 08:56

Are you going to call? I think I’m leaving mine until I hear off them now it makes me so much more anxious when they say it can take 20 weeks, another 5 more weeks 🀯

Haha, I just got off the phone 🫣 said no decision still made and should call next week for more update. I was so stupid and forgot to ask if its with a DMπŸ™„ got pick up in 1 ring and I forgot why I called πŸ˜…

MotherAndDSon · 28/06/2024 09:12

ArtfulJoker · 28/06/2024 08:56

Are you going to call? I think I’m leaving mine until I hear off them now it makes me so much more anxious when they say it can take 20 weeks, another 5 more weeks 🀯

The man was so nice, forgot to even ask his name. Said 15 weeks to me plus Said ur 15 weeks today so hopefully should get a decision next week

ArtfulJoker · 28/06/2024 09:25

MotherAndDSon · 28/06/2024 09:12

The man was so nice, forgot to even ask his name. Said 15 weeks to me plus Said ur 15 weeks today so hopefully should get a decision next week

Aww at least he was nice, I always call and just agree with them without even asking anything I panic that much then I say bye and realise I didn’t actually find anything out πŸ˜‚πŸ˜‚πŸ«£πŸ«£ hopefully we’re soon now πŸ™πŸΌ

Christyyyy · 28/06/2024 09:26

Finally awarded for my 2.5 year old!!
HRC!!

So on UC so I need to tell them to backdate the disabled child element? I doubt I'll get carers element as I have LCWRA ?

ArtfulJoker · 28/06/2024 09:29

Christyyyy · 28/06/2024 09:26

Finally awarded for my 2.5 year old!!
HRC!!

So on UC so I need to tell them to backdate the disabled child element? I doubt I'll get carers element as I have LCWRA ?

Congrats!! πŸ™ŒπŸ» what is your SD x

MotherAndDSon · 28/06/2024 09:32

ArtfulJoker · 28/06/2024 09:25

Aww at least he was nice, I always call and just agree with them without even asking anything I panic that much then I say bye and realise I didn’t actually find anything out πŸ˜‚πŸ˜‚πŸ«£πŸ«£ hopefully we’re soon now πŸ™πŸΌ

Haha, same as me. Hopefully not too long for us πŸ™πŸ»

MotherAndDSon · 28/06/2024 09:32

Christyyyy · 28/06/2024 09:26

Finally awarded for my 2.5 year old!!
HRC!!

So on UC so I need to tell them to backdate the disabled child element? I doubt I'll get carers element as I have LCWRA ?

Congratulations 🎊

SB1994 · 28/06/2024 09:55

Hi everyone..
Scan date 20/02
Awarded 25/06 (no text had to call to find out)
Back pay paid today 28/06
Good luck everyone hoping you all get the best outcomes ❀️

Crazyhouse4 · 28/06/2024 09:59

Christyyyy · 28/06/2024 09:26

Finally awarded for my 2.5 year old!!
HRC!!

So on UC so I need to tell them to backdate the disabled child element? I doubt I'll get carers element as I have LCWRA ?

Congratulations