Just after some advice please. My DS claim has been renewed but I'm not sure whether he is receiving the correct rate for care.
He has hypermobility and mild cerebral palsy, and has to do daily physio exercises, which he hates now he's 11. I have to supervise him otherwise he won't do them. This takes between 30-45 minutes a day. He also suffers from chronic constipation and I regularly have to sit with him. He's on medication for this and has been for years. Since the end of last year he's suffered from this painful stomach issue that also gets hard and bloats out. He's had tests and examinations at drs, hospitals and even his paediatrician. Several different diagnosis where the treatment hasn't worked. Nobody knows what it is. He's been referred to a consultant but that appointment isn't until September! He is in a lot of pain each day with this. Finally he has sleep issues. Wakes several times a night, and takes forever to settle again.
On the letter from DLA they've acknowledged his night time care needs, but haven't mentioned anything about daytime. Would this be the same rate if both night and day care needs?
I hope it doesn't seem like I'm being grabby and I am grateful that the claim has been renewed but he unfortunately has a lot more going on medically than he did in the previous claim. Since the stomach issue, I've had to take a lot of unpaid days off work and each and every a&e visit (that our GP has told us to go to) has cost so so much in parking. For it still not to be resolved.