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DLA WAIT TIME THREAD 41

953 replies

Fee89 · 28/04/2024 19:47

Chat and wait 🌸

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13
Matilde08 · 03/05/2024 17:28

I'm so fed up and frustrated to reach this half year waiting point. I really want to believe to that last lady who seemed empathetic and take it seriously and really marked it like an emergency. And just believe I will finally get that decision next week, but I'm loosing any hope. I really do not want to complain, but starting to take it a bit too personal like neglected.
I had an amazing day with my little one, picking up his glasses, then attending assembly as he was nominated for an award. He's autistic and takes a lot of my energy and nerves, but sometimes gives back so much. He's very popular in school as everybody knows him from early ages with loads of screaming.. it has changed and progressed a bit in different ways how his coping.. but school and class mates have always been so caring. He's tiny for his age, very social and loves being recognised, a bit too competitive. Anyways when he went on stage 'she show' his making of it and how he makes everyone happy and laugh with his comments and moves. There's something magic about that autism and how they see the world etc. I got even emotional in good way to see him on that stage, so much pureness and love.. smiling and waving. At those moments that sorrow kicks in about his dad as well. He would be so happy and proud. He passed away way before we started recognise signs of autism and that he could be on spectrum. I remember 2 years ago when I found out my first thought was O wish I could call to my late husband and tell it makes sense, as we noticed that his different, but were confused why.

My apologies for this long outburst 🤦🏻‍♀️🫣🤭

Matilde08 · 03/05/2024 17:31

Fluffs95 · 03/05/2024 17:18

Are case manager and decision maker different? I’ve called 3 times and each time different- I’ve been told it’s any day and I’ll get a decision it’s with the decision maker.. I then got told it’s not even with the decision maker.. and to wait a month.. then I got told it’s going to the case manager and will be between 1-7 days.. So I’ve given up calling now! 😂

I feel for you though- your case has been going on so long hasn’t it?

Well..now when you asking are case manager and decision maker different, I'm guessing myself 😁

24 weeks for me 💃🏻

Fee89 · 03/05/2024 17:43

Emzi538 · 03/05/2024 16:38

When you call make sure it's the long way, so number on letter then 1 then 5 then 2 then 3.... they most informative...
So random q @Fee89 if I recieve back pay tues/wed.... will next payment be 4 weeks after?

Yeah it should be xx

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RayahB · 03/05/2024 17:47

Think it's just upsetting as you see people being awarded after you and then it starts to get your mind thinking that it's a decline. My scan date is the 17/01 so I can't complain and I know there's lot of people waiting before me but I really don't understand why it isn't done in date order.

Everything always goes wrong for us so I think we will have a massive wait and then it will be a decline. I've had to fight to be heard in every process so far for my son and I feel like this will be another one. I just want someone to say 'we believe the struggles you are going through, here's the support you deserve'. I just don't think it's fair on anyone that some people have been awarded after 9 weeks and then you've got others like yourselves on here that are still waiting 5-6 months later

Fee89 · 03/05/2024 17:47

@Matilde08 I so wish i could just hug you. I hate that its affecting you like this. But sounds like today has been a good just seeing your son be himself and knowing how accepted he is. For just being himself 💖. It seriously is the little moments xx

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Chloemm · 03/05/2024 18:17

Just for anyone wondering if there around the same scan date 16/1
Phone today my son was awarded this Wednesday hcr will be back paid Tues
So happy as I cant work as hes ng tube fed only multiple times a day so relieved been a long wait

Persianpoppy · 03/05/2024 18:20

Kee3k · 03/05/2024 10:40

@Fee89 @Emzi538 @Persianpoppy she got awarded yesterday!!! Man was lovely mcr and lrm!! I’m so happy backdated from 13th December he told me the rates but didn’t say how much backpay would be it has just made my morning!!!

OMGGGG!!! So happy for you!!! ❤️❤️ congratulations my love!!!

Persianpoppy · 03/05/2024 18:22

Apologies my love!
I needed some retail therapy! You'd think i would of gone clothes shopping or something. No! My retail therapy consisted on a fresh new re-up of cleaning products! 😭😂 cheered me right up!
Congrats to all the awards today! I didn't get a chance to ring today but, who knows on Tuesday! 🤞🏼❤️

Fee89 · 03/05/2024 18:41

Persianpoppy · 03/05/2024 18:22

Apologies my love!
I needed some retail therapy! You'd think i would of gone clothes shopping or something. No! My retail therapy consisted on a fresh new re-up of cleaning products! 😭😂 cheered me right up!
Congrats to all the awards today! I didn't get a chance to ring today but, who knows on Tuesday! 🤞🏼❤️

You do make me giggle 💕

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Fluffs95 · 03/05/2024 18:49

RayahB · 03/05/2024 17:47

Think it's just upsetting as you see people being awarded after you and then it starts to get your mind thinking that it's a decline. My scan date is the 17/01 so I can't complain and I know there's lot of people waiting before me but I really don't understand why it isn't done in date order.

Everything always goes wrong for us so I think we will have a massive wait and then it will be a decline. I've had to fight to be heard in every process so far for my son and I feel like this will be another one. I just want someone to say 'we believe the struggles you are going through, here's the support you deserve'. I just don't think it's fair on anyone that some people have been awarded after 9 weeks and then you've got others like yourselves on here that are still waiting 5-6 months later

I know- I get it completely. You see dates around yours and get your hopes up.. then you see dates after and you think ‘whattt??!!!’ And I’m like you- I think the worst. I agree it should be date order - the whole process just seems far too complicated and can be so very unfair. Keep fighting though lovely, I am sure you will have done enough and I have everything crossed that we get some positive news next week. Try and enjoy your bank holiday- keep busy! Helps me- otherwise the anxiety of it all takes over. xx

Persianpoppy · 03/05/2024 18:55

Fee89 · 03/05/2024 18:41

You do make me giggle 💕

Actually got soooo excited over cleaning products! Not DLA related but ladies, primark has some 'Black Vanilla' scented room sprays, fabric sprays, wax melts. Giving that expensive boujeee scent to your home and clothes! 👀

Matilde08 · 03/05/2024 18:57

Fee89 · 03/05/2024 17:47

@Matilde08 I so wish i could just hug you. I hate that its affecting you like this. But sounds like today has been a good just seeing your son be himself and knowing how accepted he is. For just being himself 💖. It seriously is the little moments xx

🥹🫂❤️ I have tried to be so patient as I know there's more serious cases whose claims needs to prioritise, but this turns into like it's already enough to face all those challenges while moving on with our lives... now this loop we are into with waiting and guessing..like there's possibility he doesn't deserve (eligible) that support at all. But like you said sometimes it's about those little moments..and will try to focus on that while waiting.

Matilde08 · 03/05/2024 19:10

@RayahB
I'm not sure if they really have any certain procedure how they deal with claims.. by dates, by disabilities etc. But myself I'm thinking the worse straight away as well, and I even mention to lady I was on phone yesterday...how much it affects me mentally as my mental health is already damaged and gotten worse. She seemed empathetic and apologies it takes so long, but doesn't really put my mind at ease. If another 2 weeks nothing, call us back 😔
I hope you will have your decision back soon and we'll deserved award. 🫂

Fee89 · 03/05/2024 19:16

Matilde08 · 03/05/2024 18:57

🥹🫂❤️ I have tried to be so patient as I know there's more serious cases whose claims needs to prioritise, but this turns into like it's already enough to face all those challenges while moving on with our lives... now this loop we are into with waiting and guessing..like there's possibility he doesn't deserve (eligible) that support at all. But like you said sometimes it's about those little moments..and will try to focus on that while waiting.

Call on Tuesday, not to check claim progress but to check it has been marked as priority. I think if you get it confirmed then that will lighten you a little bit xx

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Mummy595 · 03/05/2024 19:25

Fluffs95 · 03/05/2024 17:18

Are case manager and decision maker different? I’ve called 3 times and each time different- I’ve been told it’s any day and I’ll get a decision it’s with the decision maker.. I then got told it’s not even with the decision maker.. and to wait a month.. then I got told it’s going to the case manager and will be between 1-7 days.. So I’ve given up calling now! 😂

I feel for you though- your case has been going on so long hasn’t it?

I've been wondering the same thing I looked online and it said a case manager is one step down from a decision maker and they can make decisions on "easy" cases. Making me worry now that it's a bad sign my application has gone to a case manager not a decision maker

Matilde08 · 03/05/2024 20:00

Mummy595 · 03/05/2024 19:25

I've been wondering the same thing I looked online and it said a case manager is one step down from a decision maker and they can make decisions on "easy" cases. Making me worry now that it's a bad sign my application has gone to a case manager not a decision maker

That's why it's hard to believe anything they are saying or just guessing who's really look at the claim and who's making up things. It's confusing when one says it's with decision maker wait two weeks and then two days later other person can't see any update, pass to case manager and case manager is telling they still need to check up..another 6 weeks. And then they are wondering we are anxiously calling them so many times when it starts to takes too long, as all we want is some real update.

Fluffs95 · 03/05/2024 20:09

Mummy595 · 03/05/2024 19:25

I've been wondering the same thing I looked online and it said a case manager is one step down from a decision maker and they can make decisions on "easy" cases. Making me worry now that it's a bad sign my application has gone to a case manager not a decision maker

Unless it’s because it’s an easy ‘yes’ you qualify. Hopefully that’s the case..! How do they decide then if it goes to a case manager or a decision maker?! As if this whole thing isn’t confusing enough- it just goes to a whole new level of confusion!!

I just know with my luck it’ll be ‘no’ then I’ll be stuck waiting again for a MR- even though I’ve sent off so much.. I just keep wondering if I could have done more

Matilde08 · 03/05/2024 20:10

Fee89 · 03/05/2024 19:16

Call on Tuesday, not to check claim progress but to check it has been marked as priority. I think if you get it confirmed then that will lighten you a little bit xx

I think I will do that 📞 I just don't get why after they can clearly see it has already taken so long and leaving me with more waiting and not even approx time.. it doesn't look like prioritised claim not even now.

Emzi538 · 03/05/2024 20:24

Persianpoppy · 03/05/2024 18:55

Actually got soooo excited over cleaning products! Not DLA related but ladies, primark has some 'Black Vanilla' scented room sprays, fabric sprays, wax melts. Giving that expensive boujeee scent to your home and clothes! 👀

Ooooh I need a trip to primark...
Hate shopping for myself... but my kids and household bits oh yes! X

Matilde08 · 03/05/2024 20:32

I think I need to clear my mind and do the trip to shopping centre as well tomorrow.. and for a change spend on myself a bit. My hubby said I'm so into others.. boys, household, appointments, meetings... looking after everyone else, totally forgetting about myself. Then wondering ending up drained, frustrated, miserable and anxious 🤦🏻‍♀️

Fee89 · 03/05/2024 20:37

Matilde08 · 03/05/2024 20:32

I think I need to clear my mind and do the trip to shopping centre as well tomorrow.. and for a change spend on myself a bit. My hubby said I'm so into others.. boys, household, appointments, meetings... looking after everyone else, totally forgetting about myself. Then wondering ending up drained, frustrated, miserable and anxious 🤦🏻‍♀️

Omg yes do it!!!!!! 🥰

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Matilde08 · 03/05/2024 20:39

Fee89 · 03/05/2024 20:37

Omg yes do it!!!!!! 🥰

...And stop to moan on this thread.. 😂🤣🤣🤣

Fee89 · 03/05/2024 20:52

Matilde08 · 03/05/2024 20:39

...And stop to moan on this thread.. 😂🤣🤣🤣

No you come and tell us what a good refreshing time you had and tell us what you bought/saw. Wonder round charity shops to see what bargains you can find 😂. I love a good bargain xx

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Matilde08 · 03/05/2024 21:02

Fee89 · 03/05/2024 20:52

No you come and tell us what a good refreshing time you had and tell us what you bought/saw. Wonder round charity shops to see what bargains you can find 😂. I love a good bargain xx

Oh.. that's another thing I'm working hard with my counsellor help to bring back that passion, creativeness I used to have. I love to look for and find a good bargain.. I was DIY queen, always so into that. I'm an artist in my heart (art&art history teacher degree) I lost myself a lot during last 10 years. Rebuilding slowly myself back but in new version. It's not an easy journey but slowly..baby steps...

Thanks again for sticking around here and being such a good emotional support to others who's still anxiously waiting, overthinking and even moaning 🤭

Lauzyparkzy · 03/05/2024 21:23

Matilde08 · 03/05/2024 20:32

I think I need to clear my mind and do the trip to shopping centre as well tomorrow.. and for a change spend on myself a bit. My hubby said I'm so into others.. boys, household, appointments, meetings... looking after everyone else, totally forgetting about myself. Then wondering ending up drained, frustrated, miserable and anxious 🤦🏻‍♀️

It might just be what you need hun a couple.of hours to take your mind off all this and other things. Have a nice relaxing stress free day