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Here are some suggested organisations that offer expert advice on special needs.

DLA WAIT TIME THREAD 41

953 replies

Fee89 · 28/04/2024 19:47

Chat and wait 🌸

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Emzi538 · 30/04/2024 10:20

Fee89 · 30/04/2024 10:18

@Emzi538 Pretty busy week to keep you away from calling but will it last 😂.

@Matilde08 Please do take it easy. Have a nap aswell if you can best time for body to recover while its switched off 💖. Cant be having anything happen to you xx

Yes lol
I will not call :-)

Persianpoppy · 30/04/2024 10:20

Fee89 · 30/04/2024 10:10

@Persianpoppy @Emzi538 What 😬 me? 😂. Id call for you all if i could. Think they would recognise the same accent though 😂😂.
@Matilde08 are you okay now?

You would be amazing! Few call handlers would be losing their job too cough KIM! 😂😂😂😂

Emzi538 · 30/04/2024 10:21

Matilde08 · 30/04/2024 10:08

I did last week... Still needs to do some additional checks and when I asked about approximate time for decision to be done.. they said if nothing back in 6 weeks, I have to call them again...

You need to call and ask for manager then they are fobbing you off

Emzi538 · 30/04/2024 10:21

Persianpoppy · 30/04/2024 10:20

You would be amazing! Few call handlers would be losing their job too cough KIM! 😂😂😂😂

When I call around 20 weeks if not heard if I get Kim I will hang up and try again! Lol

Persianpoppy · 30/04/2024 10:28

Emzi538 · 30/04/2024 10:21

When I call around 20 weeks if not heard if I get Kim I will hang up and try again! Lol

Kim needs a mandatory reconsideration herself 😤😂 miserable lady! X

Emzi538 · 30/04/2024 10:30

Persianpoppy · 30/04/2024 10:28

Kim needs a mandatory reconsideration herself 😤😂 miserable lady! X

Tbh anytime I call no one can tell me if it's even with dm... so I must be calling wrong lol
But honestly if it's her I'm gonna hang up

Fee89 · 30/04/2024 10:36

@Persianpoppy @Emzi538 Oh trust me Kim would be in for it. I had her one and that was enough 🤦🏻‍♀️ are you calling 523 way? Xx

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Fee89 · 30/04/2024 10:37

@Matilde08 Check facebook messenger. I have sent template of a short but to the point complaint for you to look at. Add what you need to and send xx

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Emzi538 · 30/04/2024 10:48

I call the number on letter then go to over 20 weeks and progress lol no idea 😅

Matilde08 · 30/04/2024 10:49

Fee89 · 30/04/2024 10:37

@Matilde08 Check facebook messenger. I have sent template of a short but to the point complaint for you to look at. Add what you need to and send xx

You're an angel ✨️❤️ Thank you 🫂 I think it's a good idea to do this step in writing. Even though my 'English' is normal it's not my native. And I do struggle to be straight forward when I'm stressing as getting nervous and emotional. My hubby even knows when to switch into texting when argument heats up 🤭

CoralSheep · 30/04/2024 10:50

Matilde08 · 30/04/2024 10:03

What is MP if you don't mind me to ask?
I just don't get it why it takes so long. He clearly understood that pension is nothing to do about my sons special needs, but still said they need to do additional checks. I'm trying to not take it personally, but it starts to upset me about too much. After that call I just literally broke down,... loads of still triggers me massively and even if I have managed to move on with my life... finding it extremely challenging.

Local member of Parliament sweet, you can google who the MP for your area is and then email them. Explain the situation and tell them how much it is affecting you, and that you're not being given any real updates, other than another 6 weeks on top of an already extended timeline and they should be able to contact dwp and find out what's going on and dwp will most likely pull their finger out. Its not anything personal but they should be treating what is a delicate matter alot better and no one would blame you for taking it personally. Grieving is a messed up process and even when you have moved on, you still grieve, that's completely valid. You shouldn't need to wait another 6 weeks for them to sort shit that should have been sorted weeks ago, I know they are backlogged but that's still no excuse. In regards to the MP, you pay your council tax, and they work for you so you have every right to use their influence to help solve the matter at hand xx

Fee89 · 30/04/2024 10:52

Emzi538 · 30/04/2024 10:48

I call the number on letter then go to over 20 weeks and progress lol no idea 😅

No, call the number on letter, 1 for english then select 5, then select 2 them select 3. That way you get more info xx

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Fee89 · 30/04/2024 10:54

Matilde08 · 30/04/2024 10:49

You're an angel ✨️❤️ Thank you 🫂 I think it's a good idea to do this step in writing. Even though my 'English' is normal it's not my native. And I do struggle to be straight forward when I'm stressing as getting nervous and emotional. My hubby even knows when to switch into texting when argument heats up 🤭

It could be a case of brain working quicker than your mouth so it gets jumbled up and you become anxious over it

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Accbabymom1994 · 30/04/2024 11:03

Can you email the MP for housing too?

Persianpoppy · 30/04/2024 11:03

Fee89 · 30/04/2024 10:52

No, call the number on letter, 1 for english then select 5, then select 2 them select 3. That way you get more info xx

Omg I feel like I've been ringing the wrong way! I'm giving in and ringing the 523 way!
😭🤞🏼

CoralSheep · 30/04/2024 11:07

Accbabymom1994 · 30/04/2024 11:03

Can you email the MP for housing too?

Yeah, absolutely xx

Fee89 · 30/04/2024 11:09

Persianpoppy · 30/04/2024 11:03

Omg I feel like I've been ringing the wrong way! I'm giving in and ringing the 523 way!
😭🤞🏼

Good luck. Keep us updated xx

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Persianpoppy · 30/04/2024 11:10

Fee89 · 30/04/2024 11:09

Good luck. Keep us updated xx

On holdddd 🎶
I never knew this way existed, thank you! ❤️
xx

Fee89 · 30/04/2024 11:11

@Accbabymom1994 do you have a child under camhs? Mp contacted our council it didnt help. Camhs wrote a letter. We had keys to a house within 4 days! Xx

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Accbabymom1994 · 30/04/2024 11:14

Fee89 · 30/04/2024 11:11

@Accbabymom1994 do you have a child under camhs? Mp contacted our council it didnt help. Camhs wrote a letter. We had keys to a house within 4 days! Xx

Omg !! Could you please guide me ? What is CAHMs? We have a family support worker and support worker from Sparkbrook Children's Zone . They are visiting housing surgery but it's still being assessed from January. Xxx

Accbabymom1994 · 30/04/2024 11:15

Fee89 · 30/04/2024 11:11

@Accbabymom1994 do you have a child under camhs? Mp contacted our council it didnt help. Camhs wrote a letter. We had keys to a house within 4 days! Xx

What band were you in ? We are still in band c

Matilde08 · 30/04/2024 11:16

@CoralSheep
Thank you so much! Will have a look into it. I have waited so patiently. If honest my first call for an update was only on April, with scan date 21 of November 2023. I start to feel like I'm being pushed back massively just because they have not faced cases, like my boys claim, often. My mental health has already been affected and I'm not coping well. Death, grieve, PTSD, Covid, then acceptence of my little ones Autism with other issues(disorders) And now I can't even be authorised likes his carer and provide with all that support he needs. Sorry for my emotional outburst here..

Fee89 · 30/04/2024 11:21

@Accbabymom1994 Camhs is young persons mental health services. They diagnose adhd, asd etc. My eldest has adhd and asd. We told our dr at camhs were struggling to move. We were in 2 bed flat 2nd floor with floor to ceiling windows. There was 5 off us. He wrote stating our flat is unsafe and we need to be housed asap. We were band C. His letter put us to band B in the morning, on the evening we had a call to view a house. Call was tuesday, viewed house thursday, accepted friday had keys monday x

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Kaz87 · 30/04/2024 11:30

@Persianpoppy keep us updated I soon hope you finally get your decision ❤️

Fee89 · 30/04/2024 11:35

Kaz87 · 30/04/2024 11:30

@Persianpoppy keep us updated I soon hope you finally get your decision ❤️

Im worried. Its been 25mins 😬

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