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SN children

Here are some suggested organisations that offer expert advice on special needs.

DLA WAIT TIME THREAD 41

953 replies

Fee89 · 28/04/2024 19:47

Chat and wait 🌸

OP posts:
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CoralSheep · 30/04/2024 09:31

Fee89 · 29/04/2024 09:34

Omg omg omg omg im crying.

Congratulations 🎊 👏 super happy for you!xx

OneLoyalAzureLion · 30/04/2024 09:44

Fee89 · 30/04/2024 08:01

Im sure you will. Kill with kindness. Unless you get Kim then be horrible 😂. Thank you xx

Killed em with kindness 😊, got a lovely lady. And said it's already been scanned on😱 but she's also made a note to say to check the additonal evidence. Was on hold for about 30 minutes if that helps anyone

Persianpoppy · 30/04/2024 09:44

Tracy37x · 30/04/2024 09:30

I literally don’t know how you’re coping this long!
my scan date is 26/1, and I’m already getting itchy 😂😂 I think if/when I receive the text to say they’re looking at it, then il ring daily. TIL then I think it’s pointless for me. Really keeping everything crossed 🤞

I really can't cope! Kept being told different things everytime I've rang, so I've given up 😂
I hope you get good news soon' 🤞🏼❤️

Fee89 · 30/04/2024 09:48

@Persianpoppy Ring and DEMAND manager 💪
@CoralSheep Thank you 🥰
@OneLoyalAzureLion Ah fab thats great 🌸

OP posts:
Matilde08 · 30/04/2024 09:51

Fee89 · 30/04/2024 08:00

Call the long way 523. Be firm state you want to check its been marked as a priority and if not for them to do so now. Tell them its causing a great deal of stress that you are not sleeping and now your anxiety is become sever x

Will call them on Thursday as it will be a week from last call. But honestly I don't think I will cope with the same: just wait! response. Had a proper anxiety panic attack on the way back from school drop this morning. Was in shock, because out of nowhere. But I guess it just builds up even if I'm trying not to focus on it so much, it's at the back of my head constantly. Even if they decides to decline it wouldn't make any sense why it takes so long.

CoralSheep · 30/04/2024 09:55

Matilde08 · 30/04/2024 07:34

I'm not sure if it has been made like a priority.. he said they will try the best to deal with it as soon as possible, BUT if I can hear anything back from them for following six weeks, I should call them 🤦🏻‍♀️ I even mentioned that I already had a call nearly two months ago asking to explain about that pension. So I have no idea why it still takes so long.

@Matilde08 have you considered emailing your local MP? I did when I was having issues in refuge and he was a massive help, soon got people to pull their finger out! The wait you've had is disgusting and it's unfair that you have to deal with all this extra stress on top on an already stressful process, and on top of the extra stresses of parenting a SEN child. I am really hoping you get some answers soon sweet xx

Emzi538 · 30/04/2024 09:55

Persianpoppy · 30/04/2024 09:28

Good morning!
Fingers crossed for all those awaiting awards! 🤞🏼
Im fuelled on caffeine today but, someone's going to have to tie my hands to stop me from ringing today! 😂

Call them! Ask for a manager!

Emzi538 · 30/04/2024 09:56

Matilde08 · 30/04/2024 07:13

👋🏻 Good luck to everyone who's patiently waiting 🙏🏼✨️
Hopefully more awards in today 🤞🏻

Day 162 for me ...let's make it a bit more dramatic for me 🤭

@Mammy1979 thank you 😊

Edited

Omg
I would be demanding a manager to escalate!

Emzi538 · 30/04/2024 09:58

Does anyone know if you can pay for private dysparaxia assesment then diagnosis?

Persianpoppy · 30/04/2024 10:01

@Fee89 @Emzi538 can somebody call for me? I really don't want to cry again today! 😂😂😂😂 xx

Matilde08 · 30/04/2024 10:03

CoralSheep · 30/04/2024 09:55

@Matilde08 have you considered emailing your local MP? I did when I was having issues in refuge and he was a massive help, soon got people to pull their finger out! The wait you've had is disgusting and it's unfair that you have to deal with all this extra stress on top on an already stressful process, and on top of the extra stresses of parenting a SEN child. I am really hoping you get some answers soon sweet xx

Edited

What is MP if you don't mind me to ask?
I just don't get it why it takes so long. He clearly understood that pension is nothing to do about my sons special needs, but still said they need to do additional checks. I'm trying to not take it personally, but it starts to upset me about too much. After that call I just literally broke down,... loads of still triggers me massively and even if I have managed to move on with my life... finding it extremely challenging.

Emzi538 · 30/04/2024 10:04

Persianpoppy · 30/04/2024 10:01

@Fee89 @Emzi538 can somebody call for me? I really don't want to cry again today! 😂😂😂😂 xx

I can't, or I would!
I'm feeling in a no nonsense taken mood today... (might be the 4 coffees!)

Persianpoppy · 30/04/2024 10:05

Emzi538 · 30/04/2024 10:04

I can't, or I would!
I'm feeling in a no nonsense taken mood today... (might be the 4 coffees!)

I'm currently on my 4th coffee! 😂😂
xx

Matilde08 · 30/04/2024 10:05

Persianpoppy · 30/04/2024 10:01

@Fee89 @Emzi538 can somebody call for me? I really don't want to cry again today! 😂😂😂😂 xx

For me as well 😁
Anyone? 🫣

Persianpoppy · 30/04/2024 10:06

Matilde08 · 30/04/2024 10:05

For me as well 😁
Anyone? 🫣

We should just nominate @Fee89 as our spokesperson! She'd have all of us awarded 😂❤️

Emzi538 · 30/04/2024 10:07

I agree @Fee89 you are the nominated caller :-)

Emzi538 · 30/04/2024 10:08

Persianpoppy · 30/04/2024 10:05

I'm currently on my 4th coffee! 😂😂
xx

I am a coffee addict... (tbh if I didn't I think I would collapse!)

Matilde08 · 30/04/2024 10:08

Emzi538 · 30/04/2024 09:56

Omg
I would be demanding a manager to escalate!

I did last week... Still needs to do some additional checks and when I asked about approximate time for decision to be done.. they said if nothing back in 6 weeks, I have to call them again...

Fee89 · 30/04/2024 10:10

@Persianpoppy @Emzi538 What 😬 me? 😂. Id call for you all if i could. Think they would recognise the same accent though 😂😂.
@Matilde08 are you okay now?

OP posts:
Emzi538 · 30/04/2024 10:10

Matilde08 · 30/04/2024 10:08

I did last week... Still needs to do some additional checks and when I asked about approximate time for decision to be done.. they said if nothing back in 6 weeks, I have to call them again...

I honestly can't understand how they work things out :-/
Whst further checks can they possibly need to do after this time?

Matilde08 · 30/04/2024 10:11

Persianpoppy · 30/04/2024 10:06

We should just nominate @Fee89 as our spokesperson! She'd have all of us awarded 😂❤️

Oh... that's for sure 💯

I know I should be more firm with them, but I'm rubbish with it... 🤦🏻‍♀️

Emzi538 · 30/04/2024 10:13

Fee89 · 30/04/2024 10:10

@Persianpoppy @Emzi538 What 😬 me? 😂. Id call for you all if i could. Think they would recognise the same accent though 😂😂.
@Matilde08 are you okay now?

Yes you :-)
I'm being patient for now, 15 weeks 2moro... had the standard text yesterday 🙄 but loads did, was told to wait til June 5th!
So housework day today for me, driving lesson 2moro, and ehcp review for my other sen child fri... so keeping busy til the weekend lol

Matilde08 · 30/04/2024 10:16

Fee89 · 30/04/2024 10:10

@Persianpoppy @Emzi538 What 😬 me? 😂. Id call for you all if i could. Think they would recognise the same accent though 😂😂.
@Matilde08 are you okay now?

@Fee89 thanks, hun..for asking. I'm OK now . Taking things easy today and not too much pressure on myself.

Fee89 · 30/04/2024 10:18

@Emzi538 Pretty busy week to keep you away from calling but will it last 😂.

@Matilde08 Please do take it easy. Have a nap aswell if you can best time for body to recover while its switched off 💖. Cant be having anything happen to you xx

OP posts:
Matilde08 · 30/04/2024 10:19

Emzi538 · 30/04/2024 10:10

I honestly can't understand how they work things out :-/
Whst further checks can they possibly need to do after this time?

That's what I can't get it as well... even more they already reached out to me about this nearly two months ago. They even said back then: from now on, we will be back to you with our decision shortly.