DLA WAIT TIME THREAD 39

[Emmajm85]

DLA Wait Time Chat

Thank you hopefully we'll have a positive outcome x

@Fee89 top idea 😂😂 is this your first claim? Xx

8/1

For this demon (child) 😂 x

@Fee89 😂😂 I feel you 🙄 all 3 of mine are demons 🙈 x

My 2 girls are ARGHHHHH, its worse as they clash even with 7 years apart. My lad is so scared of getting into trouble as we wants to join police. Hes 12 and already 5ft 5 🤦🏻‍♀️. Are yours boys, girls mix? Xx

@Fee89 i can imagine 😂🙈 me and my sisters used to fight like cat and dog 🙄😂 I've got all boys and that's not much easier haha, mine are 12, 7 and 18months, They actually don't argue to much, as my middle child is the one with ASD non verbal, my 12 year old is the same 🤣 and got bigger feet than me already, and I'm 5ft 11 🙈 he's gunna be taller I think 🙄 xx

Awww an ikkle one 💖. Gosh im only 5ft 4 😂 feel like a shortie. Mine are 17 girl - asd,adhd,anxiety and tourettes. 12 boy and 10 girl - type 1 diabetic and on waiting list for adhd & asd. Wouldnt change them for the world and worry when they go to stay with family. No one can look after our kids better than us 😂 xx

He's showing major signs of ASD 🙈 but I don't know if it's me picking, but time will tell I suppose, bless them 🥰🥰 that's it nobody looks after them like us ❤️ I don't really have much family help anyway, none of them actually have my kids 😂 I'm now a single mum too, left my toxic ex at beginning of January best thing I ever did 😂🙌 probably giving to much information now but hey ho 😂 sorry about late replies don't get a second 🤣 xxx

@SAM2409 mine is a CoC same date as yours, because my son received DLA almost a decade ago and they have never asked for any reviews or information, I have sent all the recent stuff I had, only the educational statement is like a novel. There’s OT reports and school documents as well. I didn’t highlight anything but I did put post its saying what each was and the date.
It was really straightforward the time I first applied and I never gave it a second thought but now I am really apprehensive about the whole thing because even though I know how hard our lives are and how much he struggles, at the end of the day it’s all up to someone that doesn’t know us and never will.
Fingers crossed we go to a DM this coming week 🤞🏼

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I've woken up today feeling really urghh, I think the more I'm waiting to hear the more it's doing my head in. It's been a constant battle with my son to get any support, which we still don't get.
We had a cahms assessment last week, had a letter from them yesterday saying that he needs appropriate and immediate support but not through them. They've told me to self refer him to somewhere else.
Why is it such a battle and the more let down we are by the system the more I just know we'll be declined DLA.
Just feel so rubbish today 😭

It’s really hard I have struggled so long with my son he is 13 now and he never got the help he needed!! Finally he is getting the support he needs and been moved school to a specialist school and he is doing brilliant!! I put in for dla for him and got a text Friday night saying they have awarded him! So don’t give up keep fighting

Know how you feel. Yesterday i was so flat and just kept over thinking the claim. It took me 8 years and 3 referrals to camhs to get my oldest support. First referral she was 6 and we got turned down as she sat and played with the toys they had out. Its such a broken system. But thats not on you and you shouldnt let it make you feel deflated. You just need to shout louder until they hear you. No nicey nicey anymore. Remember dla is based on the extra care and support they need. No one else knows that but you!! Did camhs tell you where else you can get support from if not them? Xx

Yes, something called family solutions, but from what I've heard about them, they tell you to go to cahms 🤦🏻‍♀️
He's 11, academically he does well. He masks in school so they don't see anything, hence why I had to fight and fight to get him seen by the paediatrician, which we did get a diagnosis of ODD.
He still sleeps with me every night, won't go to sleep without me and if I even attempt to get out of bed he wakes up, he wakes up numerous times in the night.
I think I'm just done 😔
I'm week 14 tomorrow so I will call for a update tomorrow but I think I already know I'm my head its a decline.
Sorry for moaning x

Its not moaning, please dont every think that. You are allowed to express to your concerns 💕. The waiting is horrible and plays with our emotions. We get endless knock backs so we just learn to expect it. If you do get declined we are all here to help with a MR. You are not alone. If school is not helping look for another one with a better senco. Look at sendiass (if your area has sendiass) and give them a call. No.5 counciling is in my area so could see if one is in your area for your son. Keep detailed diary and make copies for the school and his gp. Do another referral to camhs and add a copy with that. You can also self refer for a family worker that can help with support. You are only human at the end of the day xx

I want to ring up tomorrow as I got a text that n Friday night saying it’s been awarded and I want to know what rate and how long for! Do I ring quick way or not

I would personally go the long way, I've heard of people ringing the short wayand being told random things like their claim is closed etc and when they've rang the long way it was an award.

Really really good advice from @Fee89 🙌 keep going mum 💪💗 the fights not even started yet, you might me completely surprised and get awarded, Your word is also enough, stop doubting yourself you live and walk the life not the school!! They only have him 35 hours a week! You know your boy!! Family support workers are absolutely amazing I must say! First hand I know this! Xxx

I'm going to have a moan now 😭😥my son is ASD 7 non verbal, I'm so mentally frustrated, we've been stuck in the house pretty much the entire holidays, as it's not safe for us to go anywhere, I've no car at the moment as I left my partner in January and he obviously took it, I can't afford one right now, anyway, we attempted a walk on the field, the entrance is literally across the road and pretty safe because he can run ahead a little but there's nowhere to run in the road if you will, anyway I managed to walk all the way through the field with all 3 boys, others are 12, and 18months, all was fine, untill we turned to go back home, he literally ran and ran all the way home nowhere to been seen I couldn't catch up with him, he wouldn't stop when I was shouting honestly I had a heart attack 😭 imagine if we was out and about on normal streets? He does this if we walk from school he runs the whole way home 😥 honestly I feel bloody trapped!!! No idea what I'm going to do if he doesn't get the mobility on the COC 😭

@Tasha0429 Breath & count to 5. He is safe 💕. Regarding car, family fund can help you with money to either buy or towards a car please have look into that. If you still have your family worker speak to them with what may be avaliable to you regarding car aswell. I know your son is 7 but have a look at the backpack reins, could this be an option for him?. Do you have a garden? Buying some plants (i get mine from wowcher) and plant them with the kids, you will be surprised at how calming planting is or even making a veg patch. I hope you are okay now xx

I can't apply for family fund again yet, as I'd already done it for caravan before separated with him😥 honestly wish I'd of been ABIT more clever before I left, but can't plan these things eh! We have a social worker at the moment, no family worker, but shes useless 😂 my back garden n front are both out of use cause of 'that piece of shit' I choose to have kids with, we are literally stuck in the house! Honestly at this point breathing is all I can do 😂 if I don't laugh I cry!! he should be entitled to the mobility it's literally unsafe for him/us! He chucks is self to the floor when using reins, makes the situation worse, we can't get in taxis as he just screams, the only transport we can use is my sister at the moment, we really rely on her for school run, she has her own children to, so it's a struggle, so we are constantly stuck in the house and right now there's nothing I can do about it 🙈 xxx

You can ask for a new social worker if you feel you are not supported. Just see it as starting fresh and clearing him out your life. Ah okay yeah def dont use reins. Im really hoping you hear soon. Downside is mobility cars as taking forever to come in. Some are taking 2 years 😬. Those bloody lemons 🤦🏻‍♀️😂 xx

@Fee89 can you? My aunty is quite clever she was a social worker, then moved higher and she's been going mad about the lack and f support I was getting, she wrote her a letter 😂😂 so am I, really? Well hopefully theres something available 🙈 if he even gets it, them bloody LEMONS 😂 honestly I've given up today 🙄 I'm so angry at the world! Why is everything such a struggle? Meanwhile Sally down the road, who is alcoholic gets high rate mobility .... The system is soo wrong sometimes xxxx

@Tasha0429 Yeah, mother inlaw is a child protection manager. Ring up and ask to speak to a manager, explain everything and they will discuss a plan moving forward. If not next time you see her have your auntie with you 😂. Just think the kids are back at school tomorrow, you can a few hours to shake these last 2 weeks off 💖. Dont get me started on things like that 🤦🏻‍♀️ xx