DLA WAIT TIME THREAD 37

[MLW92]

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@MrsRawl I have two kids who are neorodivergent. Dc 1 has ASD and got awarded HRC and LRM, with a diagnosis and professional reports. He melts down a lot in school, so they filled in the supporting bit saying how much help he needs which was a LOT.

We were advised to do an account of a typical night with ds 1 and send it in - we covered the following: extremely rigid bedtime routine which takes 2 hours including getting undressed, bath, reading story, reading alone, light off and has to be done in the same way each day, needing to re enter bedroom multiple times, needing to sit with him to get him asleep, often for two further hours, waking v very early, which can be at 4 or 5 am. You could complete a diary for a week of nights and send in as extra evidence?

I just sent my form off for DC 2. No award yet. Dc 2 is un dx with asd and is a masker at school. We have two reports from hcps for him and sent that in. My best guess is LRC, LRM if we get awarded, but he should really get MRC as he needs a lot of extra help.

You have plenty of time to send in extra evidence explaining your child's needs, what are you hoping for? Night time care is from 11pm-7am and they want in detail extra care needs during that period.
Just send off a typed up letter explaining more if you think you have missed stuff out from the form, you can never send of too much but you can send of too little that's how I see it as.

I think its middle care rate. You are the quickest iv seen them do. Congratulations x

How long does it take to receive decision letter when you have been awarded please ?

Been lurking on this for a week or so now. Got the text last week, scan date 18/12 woke up to £1520 in bank. Didn't ring up. Good luck all!

@fee89 do you know what age they get mobility from? My dc is 3 so not sure if they qualify for that even although I filled it in. I think its just running a bit quicker over here. Hope you all hear news soon. Its bittersweet hes awaiting assessment for asd/i think likely adhd and has chronic severe eczema its been a long journey and doesn't seem to get easier. I hope with a diagnosis he will get the right support

Hey!
Scan date 17/01/24
So 11 weeks today! I have tried to call them however lines mega busy, my q is.. realistically how much longer is the wait? And does everyone get the generic auto voice on that call saying a decision letter will be sent by the end of April?

Congratulations on your award, only 4 days before my scan date 😬makes me nervous!

I think they are saying it can take 15 weeks or more to hear but some people have got to over 20 weeks! I also got that message when I called up, I think everyone does but at first I thought it was based on my number (then remembered I was calling from a landline not relayed to the application!)

Thank you!
I did his brothers renewal last year and only took 7 weeks to get processed.. maybe the letters they send should state a realistic date.. I only had the confirmation of receipt of forms and one end feb saying sorry for delay... grrr

good morning all!

woke up no this morning still no news :-

requested forms 04/10
sent forms off 08/11
scan date 23/11

They told me yesterday on the proper number to wait until next Tuesday but I’m starting to feel really impatient now! Not waiting for NI and all evidence has been submitted, I had a text from DM last week who left her number for me to call back on that day (which I did) do you think its weird if I call that number again today to ask for an update instead of the regular number ? 🤷🏻‍♀️🙏 xx

I think mobility is either 3 or 5 im not totally sure. My eldest got dla for asd/adhd/anxiety and tourettes. She was awarded middle and low mobility she is now on pip and gets highest on both. Im currently waiting on youngest claim x

@Emzi538 That auto message is regarding the new rates from April, its caused alot of confusion for people x

@Taffylass72 If it was me id calling their number bang on 9am 😂 x

That’s exactly what I want to do, but so scared of them telling me off for using her number directly and it affecting my claim😂 x

I’d 100% be calling that number as soon as lines are open 😂
you’ve waited plenty of time. Good luck xx

No way should it effect your claim. If she questions just state lack of sleep and clicked wrong number on your log x

😂😂

If anything like me, a full night sleep is a distant memory 😂

@Emmajm85 are u ringing today

Ohh I feel your pain. We’ve just started melatonin a week ago and it’s done nothing 🙈 devastated xx

This comment has made my morning already 😂 it wouldn’t be a lie! Chemotherapy has a lot to answer for with all that it’s doing to my DD, eyes are on my cheeks 😳x

I wasn’t going to. But I’m tempted to know if the dm has replied in any way to the email 😂 are you? Xx

Awww 🥺 feel in my heart for you. Call bang on 9. You deserve an answer. Let us know how you get on. Keeping everything crossed for you 🤞 xxx

For adhd we found coffee worked for our daughter.....the brain is backwards so where people use it to stay awake some children with adhd it can make them sleepy and chilled.

@Taffylass72 Screw an excuse, you have every right to call whichever way possible, this shouldnt even be a concern for you. I get so many people apply but certain cases should be flagged right away x

Yes I'm the same I want to see if the DM has replied and made it move a bit quicker 😂 xx