Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

Seeing the doctor today - I think I have Post-traumatic stress disorder since dd's diagnosis

26 replies

Jenkeywoo · 17/03/2008 10:00

I know this will sounds ridiculous to many of you here as you all seem to cope so well every day but I am not coping - I feel sad. Lasy year my lovely little girl was diagnosed with mild hemiplegia (CP affecting right side of body) - we were told it was so mild it could hardly be diagnosed and that without any intervention she would reach all of her goals just perhaps a little later. Well, she wasn't reaching those goals at all (partly due to crap physio but that's another story) - at the end of last year I asked for an MRI to find out more and last month we got the results and her diagnosis was changed to spastic diplegia with arm involvment. Basically all 4 limbs are now affected to a greater or lesser degree. They think she will eventually walk but not anytime soon. And when she does walk it will be much more affected for the rest of her life. They have now suddenly also ordered AFO's for her which is good but makes me mad that for months I could not even get them to agree to refer us to the orthotic department. I think I feel crap as it's her 2nd birthday next week and in my mind I always saw her walking at her 2nd birthday - now it may not even be her 3rd. It also brings back some painful memories of her traumatic birth. I hate it when you close your eyes and think about what could have been but isn't. I know it sounds silly and we should be grateful as really she is much more mildly affected than other children but it all just hurts so much. I just want to wake up and she's walking and can do everything that she wants to. I just can't get over the shock of it and it's making me miserable. I have no idea what the doctor will say but I need some help.

OP posts:
CocoDeBearisCocoDeBear · 27/03/2008 14:21

Hi Jenkey, I've only just seen this thread, and I feel for you so much.

I too have been wondering for some time if I have PTSD, but I suspect the other posters are right and we're both grieving for the little girls we could have had.

I'm taking Citalopram, I've found it's good stuff.

Have only skimmed thread, as at work (norty Coco on MN at work). Will check back later.

New posts on this thread. Refresh page