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A horrible end to a tough year - but at last I've dicovered where the autism came from!

43 replies

coppertop · 12/12/2004 13:53

I'm not sure whether I should be Angry or Sad but here goes:

As a bit of background I am generally known as the black sheep of my immediate family. They don't talk to me or dh if they can possibly help it and only visit if they want to see ds1 and ds2. We're not usually invited to visit them and it's been made very clear that if I were to just turn up then I wouldn't be particularly welcome. Ds1 has been to my mother's house just once in the past 4 years. Ds2 recently had his first visit there - at the age of 22mths.

With the exception of one of my sisters none of them are interested in knowing more about autism. The general feeling is that it's attention-seeking on my part and an excuse for my failure to teach my sons how to talk, socialise etc. Books go unread and anything on the internet is probably made up(!). Shock

Me and dh are used to coping alone, although it does irritate me that ds1 and ds2 get left out of family occasions. Unlike their cousin they aren't invited to my mother's house at Christmas. Instead their presents are brought here.Sad

What really made me Angry was a conversation with one of my sisters last week. She doesn't usually talk to me or phone. She's seen ds2 just once since he was born. Anyway my dad died last week so the family were forced to tolerate me at the funeral and wake. When it came up in conversation about ds1 being autistic my sister looked shocked. Apparently it is something that has never been mentioned. Shock However she did know all about ds1 not learning to talk until he was 3 and still being in nappies at 4. Basically they concentrate on the things that ds1 can't do and b*tch about how it's my fault! AngryAngryAngry

The irony of it all is that from the stories my dad's family (who are lovely people) told me about my dad, it sounds as though he definitely had AS/ASD. All of the eccentricities, the obsessions, the literal thinking and complete lack of social skills just screamed "ASD" at me. :) They confessed that they didn't have many photos of him because they found that he was unable to keep still long enough to have his picture taken. He had to keep his feet moving apparently. :o

I got on really well with my dad's family, particularly his brothers. It was like being at a convention for ASD. My own family didn't pick up on this at all and kept commenting on how "eccentric" they all were and "Wasn't it strange how Uncle XXX just sat in the corner and didn't really talk to anyone?" If only they knew! :o

All in all it was a horrible end to a tough year but I have a feeling that if dh, ds1 and ds2 meet my dad's family (dh stayed behind to look after the boys) they will find that they fit right in. :o

OP posts:
hohohoheartinthecountry · 13/12/2004 09:43

Oh CT - don't have time to write a long post but just wanted to say my thoughts are with you.

coppertop · 13/12/2004 10:17

Thanks everyone. :)

My dad's family are scattered all over the world with the majority living in Eire. They've invited us all to come and visit anytime we like and I'm actually considering this as a real possibility. We haven't had a holiday in over 5 years so we're about due for one. I think dh and the ds'es would love it there.

Someone must be keeping an eye on us because I've just received a letter from the portage service to say that ds2 has reached the top of the waiting list. This means that next month we will have someone visiting us at home every 2 weeks to see what help we need and to offer general support. Ds1's portage worker was a godsend so I'm hoping that the new person will be just as helpful. :)

OP posts:
juniperdropofbrandy · 13/12/2004 10:25

Excellent news!!!Grin

I bet you'll love to go to Eire. What part are they from or is it all over?

coppertop · 13/12/2004 10:26

A lot of the family are from a village just outside Athlone.

OP posts:
ladyrobinredbreast · 13/12/2004 10:30

CT honey you deserve a holiday and i hope this possibility will become a reality for you Grin
Eire is beautiful,we live in the North but love to escape there as the people are so friendly and so welcoming.
Great news about your portage worker fingers crossed that this one will be as wonderful as the first one Smile

ladyrobinredbreast · 13/12/2004 10:34

Anywhere near Clonmacnoise!!! or Shannonbridge ,we went there for a break a few years ago and made some friends who live their now we go back for a short break whenever we can.We love it there!!!!

JakBFrostNippingatYourtoes · 13/12/2004 19:37

CT, been off here for a few days and can't believe this thread. Sending super, super amounts of hugs to you. I'm so sorry about your Dad and about your horrible unsupportive family. Sad Angry
Glad you got good news about Portage and hope this lifted you a little. Much, much, much love, JBXXX

JakBFrostNippingatYourtoes · 13/12/2004 19:38

ps An hour in a room with my dad and my brother and it's pretty clear where the autism came from in my family, too!

maddiemo · 13/12/2004 19:41

I am sorry to hear about your dad Coppertop.

Glad to hear ds2 is going to get Portage soon.

Davrosthesnowwoman · 13/12/2004 21:43

Sorry to hear about your dad and your stinky family CT. Ireland would be a great place for a holiday for you, just remember that the weather is worse there! My lot are mostly in Kilkenny but a cousin has just bought a posh house in Dublin and he is like our substitute brother, so he may be getting a visit! We've had one holiday in 7 years, you just get used to it.

SantaFio2 · 14/12/2004 07:01

sorry to hear about your dad coppertop (((((()))))) sorry about your family too

glad you found where the as/asd came from though

beccaboo · 14/12/2004 10:10

So sorry to hear about your dad coppertop . Your family sound like they have a major problem. But I love the idea of all the mourners celebrating your dad's quirks and eccentricities, that's just the way it should be [happy].

Pagan · 14/12/2004 10:39

What a hellish thing to go through! Just wanted to say that I hope you have a lovely Xmas with your own wee family and hopefully you'll enjoy more contact with your Dad's side.

"hugs" smiley!!

jojo38 · 14/12/2004 22:19

What a struggle you have all had. I send my love and hugs and hope you all have a better 2005.
My BIL is autistic. DH has AS, my own son is dysrpaxic but I do think that DH's son has his own issues too but no one will address it.

SS was in nappies at the age of 5. He is still struggling to read at the age of 10. With the genetic trait, I believe that there is more to this than meets the eye. None of his family or DHs ex or even DH's parents will talk about it. I think it is a shame that families don't pull together more not bikker and bitch about each other. Perhaps if they helped more and discussed more together, they would realise just how difficult AND rewarding it can be.

What a thing to have to go thro with your lot. I am so sorry. Hugs for the future hun. Go ahead and enjoy.

JaysMumWantsaSilentNight · 14/12/2004 23:22

CT,
Havent been around lately because I have endured the visit from hell to my own family....J's problems are obviously all my fault...Im a bad mother...its attention seeking behaviour....hes adopted what do you expect.....hey ho arent families great!!!!
You really cant chose your family...and tbh I wouldnt chose any of mine as friends....

So sorry about your Dad, just hope now that 2005 is a better year for you...you deserve it.

InternationalGirl · 15/12/2004 21:38

Sorry to hear about your Dad coppertop Sounds like he brought you to his family though and hopefully now you will have more supportive family who understand.

Great news about the portage.

Hope you do go on holiday - go see your Dad's family. You'll probably find your kids have cousins/second cousins just like them!

ThomCatsAreNotJustForXmas · 16/12/2004 14:05

Just caugth up with this thread. Wish I had something wonderful to say but can only say how sorry i am and send you a hug

DingDongDinosaurOnHigh · 16/12/2004 15:08

I'm very sorry to hear about your dad, Coppertop.

What an interesting discovery, though. Most of my family is also in Ireland and my DSs love it over there (although Davros is right to warn you about the weather!) and although my mother hates me saying it, I have a cousin on the maternal side who to me is very definitely somewhere on the spectrum.

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