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Access card companion symbol

30 replies

wejammin · 21/02/2023 16:23

I've just applied for an access card for DC1 who is 11, diagnosed autistic with PDA profile.

We've been granted the 'queuing' symbol which is great, but rejected for the 'companion' symbol i.e. no free carer ticket.

I explained on the form that DC needs a constant 1-1 adult at all times because if his needs are not immediately met or he becomes disregulated he will become aggressive and/or run off. He's very able academically but as an example, if I took him and DC2 to the theatre and he wasn't enjoying it, he wouldn't just sit there and accept it, he would kick off until we all left. I'm not blaming him for this at all, but surely this is the exact sort of thing a companion ticket is for?

So just wondering really, if you've got an access card did you get a companion symbol? Otherwise this feels like a company making money out of disabled people but not actually meeting their needs.

OP posts:
Ineedhelp1999 · 08/05/2024 15:11

Absolutely ridiculous, I have just done this form for an access card.
We were refused 1+ due to not enough evidence.
I sent forms from paediatrician,school etc saying he needs 1to1 and sometimes 2to1.
I mean what else do they need? He is unpredictable has challenging behaviours while out, can need 2 adults to safely manage him.
Just means I can not safely take him out and my other children loose out as well as him.

Catherine66 · 08/05/2024 18:50

@Lisamjj my son has auditory disabilities (evidence provided at time of Access Card application) along with ADHD/Autism and visual processing disorder. We use a Phonak system that requires a mic and two receivers. Distance between the equipment cannot be too great, hence needing a +1. 😊

SLS91 · 29/05/2024 07:02

My daughter was granted an access card yesterday, she was given urgent toilet use and queueing but refused +1. I phoned nibus and had a chat and explained that her ASD diagnosis was very new and we have yet to meet with doctors and have referals to professionals so have no proof of needing a +1 beyond the expected level or support a standard 10yo would require. I also explained that we have applied for DLA but we are looking at 5 months before we hear anything.

I did however tell them that not having that +1 means that she can not do days out with male relatives as it is unfair to ask a 10yo girl to allow a male relative to help with her toileting needs, i also told them that it is hard to take her out when on your own because that would mean that whoever takes her can not use the toilet unless she goes in the cubicle with them.

I was informed that for a +2 i would need evidence, they reread her ASD diagnosis report and granted me +1 over the phone. I do not want +2 because the original person taking her out is happy to pay their ticket, however it becomes costly when you start adding another adult to help meet her basic care needs.

est1980 · 21/08/2024 22:53

wejammin · 21/02/2023 16:55

I submitted his full psychological assessment and his local authority letter confirming that the assessment was agreed. He's not got any other documents and his assessments only really relate to his education needs. All I got from the LA was a "handy leaflet" 🙄

I don't really know how I would "prove" he needs an adult with him apart from the fact he has a diagnosis.

So I was refused the + 1 symbol. This is what they said

Please make sure to read this email in full and respond as required as failing to may slow down our ability to process your application.

Thank you for your email. Unfortunately, we cannot take the above mentioned documentation into consideration as it does not give enough understanding as to the functional impact of your impairment in relation to the access requirements requested.

If you do not have further documentation we can always supply you with our supplementary evidence forms that can be completed by your GP or other health professionals and returned to us fully completed with description, signed and stamped. Please let us know if you would require these documents.

To which I replied

Ok. Please send the form. I wouldn't be able to sit down with my GP, as he neither diagnosed any of my conditions, treats me for them or even sees me about them or anything else on a regular basis. He could confirm my diagnosis, but that is all he could do. He would have no knowledge of the functional impact of my conditions.

My rheumatologist could again confirm my diagnosis, but I've already don't that, but she again, given I see her maybe twice a year for a medication review, would not have any knowledge of the functional impact of my condition.

The OT report does detail my sensory provrssing difficultties, the condition, what causes it, what my reactions to certain stimuli will be and the impact if I am unable to regulate my self.

This is likely the strongest evidence I could provide, and the only specialist who could actually say with confidences 'if this happens. This will be the result' but you have said that is also not enough.

So, I must admit, I am very much at a loss as to what would actually satisfy this

we cannot take the above mentioned documentation into consideration as it does not give enough understanding as to the functional impact of your impairment in relation to the access requirements requested.

If an report from a senior sensory OT that says for example

"Has a fluctuation responsesiveness to tactile input (touch) this means that she may overreact to touch input which is out of her control and unpredictable, whilst other times seeks put certain tactile sensations to help her calp. Reacts emotionally or aggressively to touch, dislikes being touched"

And

"Has poor body awareness, will bump into things such as doorways and end up with bruises as a result'"

Isn't a suitable health care professional or does not gives enough understanding into the impact of my condition,
Or give enough understanding as to how this would translates into the need to have a companion with me

Or the report from the community psychiatrist which states among other things

"Concerns with ability to manage daily living activities due to poor mental health, limited social network. Struggles to leave the house, no family contact"

I really am going to need a lot more direction to what exactly you are looking for. Because at this point I do not have the slightest idea who I would take the form to, and what you need it to explain? And I'm sure who ever I took the form to, given the above cannot be used, I think they would need more direction aswell.

Interested to see their response

Holta · 24/01/2026 16:41

@Sprogonthetyne where you successful in getting this as I am in the same position. My eldest is 4 but completely non-verbal, waiting to be diagnosed. She is unable to follow direction or process anything said, I would physically have to do it for her. I can see it now mentions symbols of audio/visual impairment online too and asks if they would need help significant enough by another person, that the +1 may be granted. She can’t read or recognise symbols or anyone demonstrating something to her, it would need to be done for her (lifting arms, getting our cart etc) same for being told she wouldn’t recognise and would have to have it done for her. Not sure if that would help or not or if anyone has the input for that. She does have Dla but not mobility as she’s not 5 yet and I can’t apply. I also have a younger neurotypical daughter and am a single parent so would be unable to provide the care I need to without the attendance of another person.

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