Primary school auties thread 9 - spring / summer 2022.

[danni0509]

Thread 9.

Links to previous threads below.

For the parents / carers of children with additional needs, most of us have asd / adhd children in primary school, but anybody is welcome to join us to chat x

Thread 1
www.mumsnet.com/Talk/special_needs/3080753-DS-with-ASD-starting-school-Sept-2018-I-am-feeling-overwhelmed

Thread 2
www.mumsnet.com/Talk/special_needs/3451020-Reception-auties-2018-19-thread-2

Thread 3
www.mumsnet.com/Talk/special_needs/3628263-Auties-transition-to-Year-1-thread-3

Thread 4
www.mumsnet.com/Talk/special_needs/3748449-Primary-school-Auties-into-2020-thread-4

Thread 5
www.mumsnet.com/Talk/special_needs/3953023-Primary-school-auties-summer-and-beyond-thread-5?pg=1

Thread 6
www.mumsnet.com/Talk/special_needs/4166833-Primary-school-auties-spring-2021-and-beyond-thread-6?pg=1

Thread 7
www.mumsnet.com/Talk/special_needs/4303826-Primary-school-auties-summer-and-the-new-academic-year-thread-7

Thread 8
www.mumsnet.com/Talk/special_needs/4422100-Primary-school-auties-step-into-Christmas-and-the-New-Year-thread-8

danni that is such fantastic news. I’m so happy for you and ds. Have you continued to see more changes at home? I’m sure this will be encouraging to people reading who may be in a similar position.

dimples poor ds. Hope he’s feeling better soon.

liv good luck tomorrow, ours is mid-July.

Our week is going better. Ds has gone into his class much quicker and more easily and it sounds like he’s done some maths every day. Still only staying about an hour & a quarter each day, longer yesterday as they have swimming.

Oh that's fantastic @danni0509 !! Well done for letting CAMHS know - hopefully that's motivating for them to know it worked and help other kids get on the right meds faster! Is DS settling a bit at home too, or are things still tricky? I can imagine engaging so much at school must take it out of him a bit, I hope he's not too exhausted at night.

Really sorry that DS has CP @dimples76 and was suffering so much yesterday. Hope he's feeling better and not too itchy with it :(

Thinking of you today @livpotter , hope the annual review goes well.

DD is very on edge/sensory this week. I'm wondering if she's coming down with something, or maybe the holiday was just a bit much. Hmmm. We have a fairly chilled weekend planned so hopefully that will help, although we are going to see friends for lunch on Sunday that she's never met before so I hope that won't be too much for her.

Oh and glad DS is starting to enjoy school more @openupmyeagereyes . Hopefully that's a first step towards increasing his hours...

Good to hear that your DS is doing a bit better at going into school Open. I honestly don't know how you manage with so little time away from your DS. I couldn't love my boy but when he is at school and am at work I recharge.

Light I hope that the weekend goes smoothly. Does your DD's school break up soon?

DS is doing pretty well all things considered.

liv how was annual review?

carrie how did Wednesday go? Did I miss anything?

light I hope dd can unwind this weekend.

dimples glad ds is ok. I’ve got used to ds being here all the time over the last 2+ years. Some days I get fed up but that’s usually when I’m either pre-menstrual or if he’s being particularly challenging in some way. Of course I’d like more time to myself but this is where I am right now.

I just noticed my rather terrible typo below - it is of course meant to say 'I couldn't love my boy more' not 'I couldn't love my boy'!

Oh no dimples I hope ds is feeling a bit better today. Chicken pox is so horrible.

Hope the weekend chills dd out a bit light.

Great ds is going into school more open.

Ds's annual review was great, they are really pleased with his progress and have suggested lots of good goals for him over the next year. Now to wait on the LA...

Hope DS is doing OK @dimples76. Hope the weekend goes OK @LightTripper. Great news @danni0509 about your DS and @livpotter about the AR. Good that DS is settling a but more at school @openupmyeagereyes. Hope transition is still going OK @carriebradshawwithlessshoes.

We are OK, had parents evening last week that was general positive with them telling me how funny and charming DS can be, but then also mentioning that he does struggle with anxiety that manifests as challenging behaviours but the positive thing is that he is slowly learning to manage his emotions and regulate, but it is hard for him. I mean, I know!! He's staying in the same class next year which is good news as less change etc and we'll have his AR in Jan as well.
Kitten is settling in but still mad!! Cute though!
I have contacted the uni and reinstated my masters apication...got made an offer, so am doing the unsensible thing and going for it!!
Hope everyone's having good weekends.

Some lovely positive stories here!!

DD and DS have bthdays one day apart so it’s party time here at chez Bradshaw. Family today, the kids were good tho DS was a bit hyper. I took advice from you all and we bought them a trampoline as a joint gift, they love it although it has nearly finished DH off putting it up today (he is not v good with stuff like this. He’s academic but when you hear people say ‘oh my husband fitted our kitchen and underfloor bathroom heating’ I am very envious!!).

Nope open you didn’t miss any update, the school has had a sports week this week so DS did a couple of hours sports on weds which was all fine apparently, but no indoor school time.

tell me, are these ARs associated with SS??? DS has never had one but has an EHCP. School have persistently moaned about him at every opportunity, when it got to parents eve a few months back I said to the senco, look, this is just awful for us, I’m happy to attend parents eve if you have just one thing that is kind or constructive or positive to say about DS. Just one. If not, what’s the point?? She said she would talk to his class teacher and come back to us if there was that one magical positive thing to say. She never did. So that says it all really doesn’t it.

onwards and hopefully upwards. Couldn’t really get any worse could it?!

carrie when you have an EHCP you should have an annual review to update targets etc. have you never had one? Usually teacher and SENco attends with you, plus other involved professionals can be helpful.

Happy birthday to the mini bradshaws 🎂🎈🎉

It would be helpful for you to have one with his new teacher attending, though may be too late to organise now before the end of term.

So is it initiated by/ attended by the LA?? No, no one has ever mentioned. Never had one. Who should have arranged it??

The LA can attend if there are particular issues but if it’s fairly routine then there’s no real need. The SENco usually arranges it.

When was ds’ EHCP first issued?

Pre reception year so 2 years ago

Brilliant news about the MA Susan.

Happy birthday to the kids Carrie

As open says Carrie, annual review must happen every year. There's a whole process to it. They explain it pretty well on the IPSEA website. I would complain to the LA that you have never had one. Out of interest how have you got them to name a new school without an annual review?

That is weird Carrie. DS's is overdue -should have been in April but delayed due to Tribunal hearing. It has been every 12 months otherwise I'm planning at the AR to request special school.

Carrie hope that the birthday celebrations go well

I had to work today and felt terrible as DS begged me not to leave him as he still feeling awful. It was an open day at the university for potential applicants. I hadn't met one of the student reps before but noticed he was wearing ear defenders when I arrived. He was so diligent in his role - nobody else at the stand was allowed to ask which course the visitors were interested in! I was so impressed at how he managed. When I told him that I was looking forward to teaching him next year he looked really thrilled. He had just done a foundation year which has much lower entry requirements than our degrees but came almost top of the class so will hopefully do well on the degree. It made me quite emotional afterwards thinking of our boys and girls - not that my DS will be going to uni but this lad has come such a long way especially to put himself forward for the rep role today.

Susan good to read of positive feedback for your DS too. And great news re Masters.

Re the school well, as I say school have been trying to squeeze him out for ages. So when we had had enough we contacted case worker and he said basically yes, it sounds awful, we need to agree with school 1. If the EHCP is ok as it stands or 2. If it needs amends. It was pre nursery when first done so we said we wanted it amending as it was out of date. We redrafted and then had a big argument with school about content, the LA eventually stepped in almost to mediate between us and school to get it finalised. When it was in a final draft form we were looking around and applying for schools… LA said the revised EHCP shouldn’t be finalised until we knew where he was going next. We accepted the offer then, told LA and they wrote it into the Plan. Then circulated to school who claimed they were shocked there was a new school named….!! So that was the process.

That sounds like a more informal AR I suppose. Typically you’d sit down to discuss and parents have paperwork to complete in advance.

Probably best to have one once he’s been at the new school a little while.

Yes. Not in a rush for any more feedback at the mo other than the bits of positive stuff they are saying after the short transition sessions.

Open I can confirm after your previous comment that after 10 mins on the trampoline (after about 6 Proseccos) my pelvic floor muscles are not what they once were 🤣🤣🤣🤣

carrie the NHS squeezy app is free

The glamour Open, the glamour…. 🤣🤣🤣

We’ve been to two summer fayres recently and only stayed about 20 minutes before ds wants to go. Anyone else have this?

He’s been waking pretty early this week. Hoping for longer tonight 🤞