Primary school auties step into Christmas and the New Year - thread 8

[openupmyeagereyes]

New thread.

This is the continuation of the thread for parents / carers of autistic children / children with additional needs. Most of us are parents of children in year 1 / year 2.

Links to old threads

Thread 1 - www.mumsnet.com/Talk/special_needs/3080753-DS-with-ASD-starting-school-Sept-2018-I-am-feeling-overwhelmed

Thread 2 - www.mumsnet.com/Talk/special_needs/3451020-Reception-auties-2018-19-thread-2

Thread 3 - www.mumsnet.com/Talk/special_needs/3628263-Auties-transition-to-Year-1-thread-3

Thread 4 - www.mumsnet.com/Talk/special_needs/3748449-Primary-school-Auties-into-2020-thread-4

Thread 5 - www.mumsnet.com/Talk/special_needs/3953023-Primary-school-auties-summer-and-beyond-thread-5?pg=1

Thread 6 - www.mumsnet.com/Talk/special_needs/4166833-Primary-school-auties-spring-2021-and-beyond-thread-6?pg=1

Thread 7 -
www.mumsnet.com/Talk/special_needs/4303826-Primary-school-auties-summer-and-the-new-academic-year-thread-7

That’s fab Danni!!!!

I have lost the concept of what is a good week… DSs one to one off with covid (not been in since Xmas.) so he’s having various staff as his one to one.

The one today proudly told me he had been looking at shapes on you tube with her and she had been singing to him. Ffs 😡😡😡. He’s known his shapes for years and singing????? Is he a 6 month old baby??

Just before Xmas I sent a video to school of me writing sums on a mini whiteboard and him selecting the correct number so I would write 4 x 2 and he would give me number 8 which I’d stick on the end of the sum.

They are glorified childcare.

DH says I’m overreacting and at least he’s not bitten anyone…

carrie it is good he hasn't bitten anyone , but you're right, it's glorified childcare and I think the sooner he's in a different setting the better. It's not exactly an education is it!

Ds is babied Carrie massively. By school and people out of school. People can talk quite slow to him I've noticed too. Like they think he's slow it's really irritating!

My dad and step mum bought him a vetch baby toy for Xmas. He's 8? Fuming! I thought they gave him it accidentally as I have a 9 month old nephew, so I thought gifts had been mixed up, i rung my sister and she was like no I don't think I have one of ds's toys. I spoke to my dad and he said I hope ds liked xx so it wasn't a mix up, they had in fact bought him a toy designed for a 12 month old.

It's not acceptable.

Vtech not vetch*

Open yes he's had star of the week not long after he started, it's given out weekly in each class. There's only 9 in ds' class at the minute and he's been there 8 months, so I can only assume other children in his class are receiving it more often.

Danni if your dad and SM are anything like my Inlaws they won’t have bought and won’t have a clue so don’t take personally. They can only just get through the door of Smyths or wherever then select the first thing to hand.I actually just ask them to buy the kids something to wear it’s far less painful!

Won’t have thought not bought!!

Open, whose side you on ? 🤣🤣🤣🤣.

New school sound fab.

I’ve just made poor DS do some spelling to satisfy myself he’s not daft! It’s 6pm on a fri he’s not happy…!

Thread at the minute in chat. 'What time do they stop waking at the crack of dawn?'

Next joke... 🤣

I love how innocent ds is.

He's talking about his friend at school, (she's deaf) ds said xxxx's mummy needs to clean her ears out so she can hear me, I have a feeling she has too much wax.

If only things were that simple ds!

Aw!!!! That’s sweet!!!

Sorry carrie, I don’t think you’re overreacting.

danni I would be seriously pissed off by that. Even your dad’s client who’s never met him sent him a more appropriate present!

Crack of dawn is about 7:45 at the moment isn’t it? I’d be happy with that!

I’m only joking open. I agree with you!!!! X

How are you doing with drinking water and journaling? I’m not doing quite as well as I should, will try and do better. I’m using the 6 minute diary plus trying to do something unstructured in the evening.

Failing at both Open!

DS's only went back yesterday and I thought that the return to school had gone quite well but this evening he pushed his sister down the stairs. Fortunately it was a half flight and I was standing at the bottom and caught her so she wasn't injured. I feel sad and scared now. As usual it wasn't in the middle of a fight or anything. We were getting ready to leave my Mum's. DS sat at the bottom of the stairs whilst I put his shoes on. He seemed v happy and then he and DD ran up the stairs away from me. I called them to come back and they both turned around then he gave her a huge shove.
I also spoke to the GP today and he has referred DS to paediatricic neurologist re the potential absence seizures.
The LA has until next week to submit their evidence to SENDIST re my EHCP appeal re lack of OT provision following AR.

I just feel exhausted - nothing ever seems easy and now I feel an even greater need to be hyper vigilant to ensure DD is not hurt.

Sorry to hear that dimples but so glad DD is ok. Did you (can you?) talk to DS about it, can he explain?

Just a quickie to say if you need to chat about anything re the absences ask… I’m quite well versed in it all, also have a friend whose DS was diagnosed with absences at the same time as DS, he’s a bit older (9), he’s taken a low dose of medication and they have completely gone (friend says he’s a different boy, just happier, can concentrate better etc.) LOs also often do grow out of this, said to friend and me by our respective Drs!

Thanks Carrie. Weirdly (given that we are not biologically related) I experienced them as an adolescent but they stopped as soon as I hit puberty. For ages it felt like DS was just really zoning out and I have raised it with medics a number of times in the past. But in recent weeks his eyes are rolling upwards. At least someone listened to me today. I have not managed to capture it on video yet.

After I got DD to bed I tried to talk to DS about what happened. Essentially he felt that DD was getting in his way - I guess it's more about lack of impulse control and awareness of risks rather than intending to hurt her. Still not sure how to improve things though

dimples so glad dd is ok and that it wasn’t worse. All you can do I think is talk about and model being safe and watch out for dd in the meantime. How are stairs at your place? Would guards at both houses help? Ie they wouldn’t have been able to run up. I’m glad he had a good day at school, I don’t think this negates that.

Glad you got an appointment re. seizures, that must be worrying. carrie what are you supposed to do while they are occurring? Try to rouse or leave?

2nd night of melatonin. He had it at 7, asleep at 8:20. I was hoping it would be 8 but it was certainly better than 9. He woke up at 4:30 so no difference there which was what I expected. I think we’ll give it at 6:45 tonight.

Open ds had melatonin and promethezine at 6.45 last night and was still awake at 10.15, he drove me mad last night in and out of bed. He slept until 6.30 tho, but still. Close your bleeding eyes kid. Takes my full evening up directing him back to his bed and tucking him in, of which I must've done both at least 15 times last night. This is why I have to record my soaps and watch them 2 months later 😂

Dimples no advice from me. That's what ds would do too. Do they get on generally?

Also dimples does your ds have an autism diagnosis? (I don't think he does does he? If I remember rightly they are messing you around leaving you, but you know he has it kind of thing?) could the 'absences' be part of his autism? That's what they put ds' down too, his zoning out. The epilepsy neurologist said he gets a lot of children with autism in his clinic and it's 'autism' not epilepsy. Anyway they'll do the tests and you'll know for sure.

Talking of it. I zone out, does anyone else? I enjoy doing it. Taking myself off for a little while thinking of nothing, just staring off into space.

danni I have heard adult autistics call it taking a sensory break.

I’m sure everyone does it occasionally though.

The recommendation from our neurologist is to say the child’s name then brush their eyelids lightly with your hand. It should bring them out of it, or as happened when I did this to DS over the summer he blinked in reflex as my hand approached his face which led the dr to say that wasn’t a seizure. I have that all on video and would be happy to share if it helps (just pm me.)

The test for my friends son was blowing hard into a tube which provokes a seizure. He would with his zone out but keep walking which was obviously dangerous!

My friends son would also do the classic mouth movement during his absences, like he was chewing something