Primary school auties step into Christmas and the New Year - thread 8

[openupmyeagereyes]

New thread.

This is the continuation of the thread for parents / carers of autistic children / children with additional needs. Most of us are parents of children in year 1 / year 2.

Links to old threads

Thread 1 - www.mumsnet.com/Talk/special_needs/3080753-DS-with-ASD-starting-school-Sept-2018-I-am-feeling-overwhelmed

Thread 2 - www.mumsnet.com/Talk/special_needs/3451020-Reception-auties-2018-19-thread-2

Thread 3 - www.mumsnet.com/Talk/special_needs/3628263-Auties-transition-to-Year-1-thread-3

Thread 4 - www.mumsnet.com/Talk/special_needs/3748449-Primary-school-Auties-into-2020-thread-4

Thread 5 - www.mumsnet.com/Talk/special_needs/3953023-Primary-school-auties-summer-and-beyond-thread-5?pg=1

Thread 6 - www.mumsnet.com/Talk/special_needs/4166833-Primary-school-auties-spring-2021-and-beyond-thread-6?pg=1

Thread 7 -
www.mumsnet.com/Talk/special_needs/4303826-Primary-school-auties-summer-and-the-new-academic-year-thread-7

Cheers! One normal sized double bed does not fit 3 people very easily! DS hogging the covers all night too ha!

Quick qu… not sure if anyone has any thoughts??

The much coveted local SS has offered DS a place but from Sep. They cannot accommodate him earlier.

We have not yet heard from the language unit we would like to explore … LA have admitted they sent the applications v late but I think he would get a place hopefully in jan! I’m in touch with the Senco there and I know they have space.

Can I accept both? If the language unit doesn’t work out then my next choice would be this SS and I could assess that in July when schools finish. But if it did, we wouldn’t need the SS place, could I then just give backword?

A bit confusing. How would you play it?

I would say getting in to this SS without going to tribunal is impossible. I’m amazed they have done this.

I'm definitely no expert Carrie it hurts my brain knowing the ins and outs, but no I don't think you can.

Whichever is cheaper, that's the one they will push you to go for anyway. Tight bastards.

On our local send newsletter it showed four 4 new Ehcp co ordinators who have taken over the roles of the others, no idea what they have done with the others, hopefully sacked them for being so shit lol. But they all look about 15....

Anyone got any plans for this evening?

Me and dh are going to binge watch cobra Kai if we can get ds to bed in good time. We are going to get one of those £10 M&S pizza deals today too for tea.

We are going yo try and convince DS, who is adamant he's staying up until midnight, that it's midnight when it's 9pm as he's so tired and I'd like to be able to talk with DH at the real midnight if possible!! But who knows!
@carriebradshawwithlessshoes I would accept the ss place, then at the next annual review, if you feel it's not working then you can reassess.

Ds doesn't understand NYE so doesn't know about the midnight thing.

I usually watch the countdown on tv then go up. I liked what they did last year with the light up drones.

Having family over for the day, it’s mums bthday. Nibbles, a walk out… trying to keep the kids up as last year was a disaster! dS went to bed at 8 but then the fireworks woke him at 12 and he never went to bed again. So got to get him past 12 awake!

Magrat the SS place isn’t until sep tho… can’t last another 8 months in current setting!!!!

Carrie, not sure how it works really, legally I mean, it's going to be difficult for parents to grasp the laws around it when those doing the actual job can't grasp it either!

If they have a place for September, then why not for now? they cannot refuse to admit ds because they are full, being full is not a reason that withstands. If they are saying September it's probably because they know children are moving on / up. So makes me think they are saying september because they don't have the space now. Which isn't good enough. Not sure how you'd go around that though.

Ds place was for the September it was Easter they said he had a place, so not too long to wait and I didnt mind as such keeping him at old school for a few extra months, but then they said they could perhaps get him in earlier. And they did, he started in may.

Worse case scenario, 8 months. 6 weeks of that is the summer and then all the other breaks, I would say 4 or 5 months of actual school left? Maths not being my strong point, but roughly.

Open talking of new schools, how's ds about starting in a few days?

Carrie which school would you prefer? I can't remember off the top of my head. The speech one sounds more like it would suit your ds but I can't remember reading much about what the other school have to give (you have been offered this second one for September?)

And if you make a mistake in which you send him too (which I often think I have) then it's not the total end of the world, you can move. Depending on if any other SS can take dc at the time you want to move them.

Ds has been at his school for 8 months, it's not a school I see him at forever, but it's a damn sight better than a mainstream school, as in the experience they have of kids with additional needs.

I would prefer my ds a bit more local tbh. When ds had his annual review at this SS he'd only been there a few weeks so I couldn't really be requesting to change him when I'd not given them chance, I'll see where we are at next AR or emergency one should I need to do anything before.

I'm just pleased ds has a school for now whilst I see how it all pans out for him.

dimples and liv thinking of you both.

Magrat sounds cozy...

carrie I really don't know but I don't think they would keep a place open for your ds in September so you would perhaps risk losing that place. Where are you with the language unit - what is there left to explore given you have spoken to the Senco or are you just waiting to hear?

danni ds doesn't start until later as the build is a little delayed. We start transition days on the 11th and have to decide if we want to start him part time. I really don't know what to do for the best.

On the plus side, I have managed to get a mileage allowance for taking ds to school myself with absolutely no problem, the transport team are very on the ball. It does say that they monitor attendance though so we may have to pay it back each month if he refuses to go in!

We had lunch at my in-laws today so nothing special for dinner here. We used to go to the pub/party with a group of friends but for the last few years haven't and are usually in bed before midnight as no telling what time ds will be up

I haven’t had a formal offer yet from there open (the speech unit.) also I’m just nervous that it may not be enough support for DS. Which would then be a shame if I found that out a few weeks in and had lost the place for sep at the SS. I won’t know til I try.

I have a relative with autism, his ms school place was untenable. Mum secured the place she wanted for him but it was 6 months off. It was agreed that he would move to another school (SS) for those 6 months. Mum said he was so much better even at the interim school, then when he moved to the other one things were better still. So I guess you can have a school for the interim period and accept one for the future. Then I appreciate it’s a gamble but if it doesn’t work out, he has that place and if it does…. Then hopefully they would still keep him in the speech unit. It’s all timely as I think 6 months ish would be perfect for me to know if the speech unit was he right place or not.

Ds up since 1:50 here. Ffs.

Happy New Year everyone, I am very grateful for this thread.

Omg @openupmyeagereyes sending hugs and coffee!
Happy New Year everyone! Managed to convince DS it was midnight a bit earlier last night but then he was on about staying up til 5am to 'see all the times'. Finally got him to sleep at 10pm. I would have just let him stay up but honestly, he was so tired by 9pm with bags under his eyes etc! So we danced round abd had a bit of a party, then DH and I watched the Last Leg at 10pm and some Jools Holland at midnight, then promptly snuck back into bed! It's like the reverse of when we first started going out and we'd visit my parents house when uni terms had finished, but my dad insisted in separate beds, so I would sneak downstairs to be with DH (just to cuddle!). Funny!
Hope everyone is OK, I'm off to do breakfast and try to work this fancy coffee machine in the holiday house...(I'm not good with gadgets!)

Open I'm sorry, that's v early. I hope you don't have too many problems today.

I laid ds down at 9pm, he was asleep for 9.30pm. I thought the fireworks at midnight would wake him, over the back they had a party and they were going off for 30 minutes right outside my bedroom window. Thankfully they didn't, but I was laid in bed flinching at the big ones as I was expecting to hear mummmmmmmmy.

He woke up at 5.45am so can't complain.

Happy new year everyone. Is this the 3rd or 4th year of this thread now? Think ds was about 3 possibly 4 when I started posting on it. It was deffo before they started reception as I remember us all posting about their first weeks etc.

Open Yes me too regarding the thread. I feel like your all my friends, yet I don't even know any of you** or your dcs names! Crazy x

I've just gone back to the first thread to check, I started posting the summer before he started so will be 4 years this year.

danni I only know the names of those dc posted in error and removed!

Yes, definitely posted pre-reception so 2018?

Happy New Year everyone! DS stayed up til midnight and he and his cousins were jumping up and down as we counted down. We went straight up to bed afterwards and got up at 7:30 - think that he would have slept later but DD woke us both up. I may have napped 10-11:30pm!
We were meant to be watching the new James Bond film but I missed most of it.

I am v grateful for this thread.

We're off to the beach soon.

Happy new year!! Eeek Open that’s early. But everything is mad at the moment for our DC, change in routine etc etc. Hopefully next week he will settle back to something more bearable as things go back to normal.

We kept DS up and DD. DD could have done an all nighter 😬😬. I was just fearful of last year with DS up all night due to fireworks. It worked and they slept til 9 this morning. Watched jools Holland too Magrat.

Ha ha I think I am Carrie most of the time! It’s a name I like. Whatever you are really called Danni and Liv will always be Danni and Liv! I know some of your names from PMs and your DC. Opens is my all time favourite get on the dance floor tune. Magrat I have to google as I’m not that clever…. 🤣🤣

Dimples I’m envious. We live hours from the coast but I’d be there all day if poss. Do you swim?? We got wetsuits for the first time last year for our trips to the South . They were a very good buy!

Kids tired today for obvious reason. In a moment of madness just before Xmas after months of nagging from DD DH bought a hot tub!! Just an inflatable job. It’s on the patio looking a bit monstrous but it’s passed some time on. dS is looking at it longingly now as I type but can’t face it at the mo….

Masked Singer is back on tonight?? Another DD obsession. So that’s our eve….

carrie we have ds’ birthday next week and then new school so not sure when things will settle down here.

We took him out in the car for a nap and he was in a grumpy mood when he woke up but cheered up after a while. Hopefully he’ll go to sleep a bit earlier tonight.