please help. dd posturing to right again do i take her in again[sad]

[trace2]

shes been like this since 5 this morning, stuck to right side, but not going unconcous just getting distressed cos she carnt move, i know this is not going to danamge her. but its making me upset. some of you know about me and chloe and whats happening, do i sit it out and if so how long or do i take her in hospital again? we are on open door policy, but they dont know whats wrong wi her.

please help

Oh sweetie, i've no idea whats been going on with you, sorry. But if it's making you that distressed, then i think it would be a good idea to go and get some reassurance.
hug x

please

i normally cope well and usaly very calm, but i think its all getting to me now, if we just knew whats up.

if she and you are distressed, and the hospital have an open door policy, why not take her?

if she is in an acute phase of whatever is happening, might it be better for the medics to see her?

I don't know your history, but agree with thelittleelf, if it distressing you and DD this much then take her in for a check and some reassurance.

they have sean her like this, loads shes only 18 weeks old and this been happening since 2 weeks old, they make us feel like we shjould cope, as we know that the postures only are not harming but i dont like seeing her like this, it casn last up to 7 hours

Is there a friend or neighbour you could call round to sit with you for a while, just to give you some support? Or failing that,just call an ambulance. That way you are not driving her there alone iykwim?
x

shes fallen asleep its the way she copes wi it, she sleep throught it if she casn

Take her trace2. Poor thing - you must be so sick of the not knowing.

TBH I'd be inclined to take her every time - just so they can see just how often it's happening. Do you keep a diary trace? - noting how often and how long each one is and hwo she is before and after. I'm sorry you still don't know what's causing this.

thank you am going to ring ward to see what they say, i just needed a bit of resurance i think

I think i would still get her looked at, even just for your piece of mind?

yes i do keep a dairy, as she as lots of little staire and eyes rolling in between the postures

Hopefully you will get the reassurance you need over the phone, but if you don't then please just take her in.

Do let us know what happens trace, i'll be here for a while, before i have to get off my arse and actually do something

taking up to cau asemenmt unit at hospital

got to go for 10 30

Good plan Trace...take care, and drive safely. Have you got someone to go with you or meet you there?

well that or a n e buts thats a farse going there

Hope it goes well Trace. Good luck.

Hope it goes ok trace.

When do you see the neuro again?

thank you all ill let you know

novermber 16 th just seen him last week

Is he any more convinced about seizures or still saying it's not?

he still saying not, but what the hell is happening, these postures alone is awful coz of how long she in thnem, surly thats not normal, thats wi out other stuff she does

shes bent like a banana