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please help. dd posturing to right again do i take her in again[sad]

40 replies

trace2 · 18/10/2007 09:05

shes been like this since 5 this morning, stuck to right side, but not going unconcous just getting distressed cos she carnt move, i know this is not going to danamge her. but its making me upset. some of you know about me and chloe and whats happening, do i sit it out and if so how long or do i take her in hospital again? we are on open door policy, but they dont know whats wrong wi her.

please help

OP posts:
FioFio · 18/10/2007 09:50

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trace2 · 18/10/2007 09:52

yes mir clear, two eeg, one abnormal one normal, am still here coz dont want to go untill 10 15 as it will be full

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Saggarmakersbottomknocker · 18/10/2007 09:52

Can you get a second opinion trace?

trace2 · 18/10/2007 10:04

our pead the gastric one at barnsley says he trusts dr ritty at sheffiekd 100%, but he says if we want an other nuro hell get one for us but they are surposed to be good at sheffield and they all work together, but the nuro said he as an senimar in a few weeks wherte he will take chloes videos to show where there wi be other nuros around yorkshire, so they will get to see chloe anyway, just hopping one of them will have an idea, my chloes gets so streessed throught these they can not be good for her

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trace2 · 18/10/2007 10:05

as anyone sean a baby posture like this for so long?

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trace2 · 18/10/2007 10:10

going now ill be on later thank you

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Saggarmakersbottomknocker · 18/10/2007 10:13

Good luck.

Hope that when the neuros get their heads together that they can come up with some possibilities. Take care.

needmorecoffee · 18/10/2007 10:42

Missed you but I hope they are being useful

thelittleElf · 18/10/2007 11:54

Hope your both ok x

thelittleElf · 18/10/2007 14:55

Are you back yet? Hope all is ok with you both x

trace2 · 18/10/2007 16:29

hi just back, chloe came out of it her self not long after we got there. not done any thing wanted her to stop 24 hours but like we said its no use now shes over it! she was postured in all for 6 1/2 hours very stressed throught it all shes now tired and very unhappy which is the per usual when she had these, they phoned dr ritty he just said when shes only posturing its not a problem but the senimare is next week if he as any awnswers hell contact us. i told the doc i carnt stand back and keep watching my child do this and not have answers, i have broken down today (its not like me) i said would you not worry if your baby was doing the same for a about 20 mins never mind 6 hours? he didnt know how to answer us. i just hope next week brings us some news, also said they rang eperlsy nurse to chat to us.

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thelittleElf · 18/10/2007 20:06

Well glad your all ok anyway. Hopefully you'll get some more answers soon. It must be so hard seeing her like that but not knowing why . Stay strong and get a good nights sleep x

TotalChaos · 18/10/2007 20:58

sorry you are going through this, I hope that the docs can come up with some answers and help for oyu.

LilBloodRedWantsGore · 20/10/2007 13:18

Keep strong trace2 - you're doin great.

bullet123 · 20/10/2007 13:51

Hope you get some answers and help soon.

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