Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

Auties transition to Year 1 - thread 3

999 replies

LightTripper · 03/07/2019 11:10

This is the continuation of the thread for parents and carers of autistic children in reception year at school, going into Year 1 in the autumn. All welcome (also parents with older or younger children who want to ask questions or share their wisdom!)

Welcome!

OP posts:
Thread gallery
29
Harleyisme · 10/09/2019 14:24

Also have have thought about moving his school but as they all said off the record as the cant technically refuse him that they weren't equipped for ds and i refuse to move him to another school thats ill equipped liked his current one.

LittleSwede · 10/09/2019 16:15

Thanks openupmyeagereyes, unfortunately DD doesn't have an EHCP or any allocated 1:1. Our EHCP was rejected as she was receiving adequate support at the time, although this was mostly due to her Key Worker 'getting' DD and putting a lot of effort into making adjustments for her. I'm probably going to apply again this year thought.

How was everyone's day? Still trying to read and catch up on thread...

LittleSwede · 10/09/2019 16:25

Sounds like things have been tough Harley, hopefully this is a step in the right direction. Are they suggesting that the school isn't equipped for him? In which case they surely need to support you in making the EHCP application?

LightTripper · 10/09/2019 16:28

It seems to be something parents get told a lot Harley, Rubbish really.

At least he is in class for the numeracy and literacy though. Hopefully they can work on introducing him to the rest of the class in the afternoons in a more targeted way as he settles in again?

Hard to see how they can argue that he doesn't meet the conditions for an EHCP when he literally can't be in the classroom with the other children for half a day... but I don't know if that is how it works in practice!

OP posts:
LightTripper · 10/09/2019 16:30

They really need to start helping you by being consistent with the toileting too ... how annoying to have undone all that good work over the summer! Though hopefully now he's been regular and clean he can get back there if he's given the right environment and the right prompts at school again. Have they said anything more about that?

OP posts:
LightTripper · 10/09/2019 16:30

In other news, DD's school is giving all of Year 1 violin lessons, she brought it home last night ...

Shock Hmm Confused Shock Hmm Confused Wine Wine Wine

OP posts:
openupmyeagereyes · 10/09/2019 16:41

Harleyisme I’m no EHCP expert (I think it was liv who did a course on it so she will know) but I think to be successful the school has to prove that he needs support above and beyond the £6k per pupil SEN budget and that either the support and adjustments they have tried so far are not enough or where they have been funded already from extra money that they are working.

If he can’t access the classroom then he definitely needs additional support and they need to be trialling strategies to support him if they haven’t already. I know there is the caveat of ‘may have sn’s and may need an EHCP’ or whatever it is, but presumably many children can be supported quite well within the existing SEN budget (presuming it’s not all spent on class trips).

A good day here. TA said he’d had a great afternoon and no meltdown at home. Also, he slept until 5:40 this morning. A rare treat indeed.

LittleSwede · 10/09/2019 16:44

LightTripper, violin lessons! How is she with the sound of a violin?

openupmyeagereyes · 10/09/2019 16:47

Sorry Harley that was rambling and not at all clear. My main point is, they should be supporting him better and gathering evidence for an EHCP application.

Light that made me chuckle! Ds’ school are lucky that they have a FT music teacher and they all have weekly music lessons but I think they learn the ocarina in year 1 Grin

Also, wrt our earlier exchange, I agree that it’s best not to doggedly stick to a punishment or decision that you realise is not right. I think it models good behaviour - admitting you were wrong - which is more important than consistency imo.

LittleSwede · 10/09/2019 16:48

Sounds like a good day for your DS openupmyeagereyes, Hope he sleeps well again tonight. With a not too early wake up.

openupmyeagereyes · 10/09/2019 16:54

LittleSwede he normally wakes around 4:15 so I won’t hold my breath for tomorrow. I can confirm though that it is now DARK at that time!

I hope your dd has a good day too.

OT had her first session this term with ds today, I’m looking forward to her feedback.

openupmyeagereyes · 10/09/2019 16:56

HAD a good day

LightTripper · 10/09/2019 17:04

Well so far her only complaint is that in the little "lesson" they had (they went in in groups of 3 to see the music teacher) they only learned to hold the violin, and not to make a noise. But when she got home she tried and did make a noise but is disappointed that "it wasn't very loud"

Luckily I didn't get home until bed time so I only heard it second hand. Generally DD is fine with noises that she makes though so I think she'll be fine if it's just her. If the whole class is scratching away together it may be a different story!! It was lovely how happy she was with it though. She said she felt "tired and happy" so we made up a new word for it, "tappy" (#creative). OH said they had the best bedtime in ages, and I think it was because she was on a bit of a high from the violin.

Tonight I am doing bedtime solo and she has brought home from school.... maths homework. So we'll see if that also results in a tappy evening Grin.

Glad DS had a better sleep open, and that we are modelling excellent behaviour Halo. We probably deserve some Cake (sorry, I've rediscovered the smileys...).

OP posts:
danni0509 · 10/09/2019 17:08

Harley as open said, this is what ds' school do and have always done.

He spends a lot of time outside. Which to be honest at first I thought was a good idea but I didn't realise just how much he would he out of the classroom, but he's in yr1 now and the more he spends outside the further behind he's getting. (Just my view, although ds has made progress I always feel like how much more progress could he of made? He only did 2 hours at school per day for the first 6 months which is a lot of lost hours) I don't see how it's helpful when all the other children are sat learning inside but ds is often outside at the water table with his 1-1.

It's not just behind in a educational sense but socially too, he doesn't have any friends at school, very rarely does he get a party invite , no one speaks to him other than a hello xxxx they seem to actively avoid him from what I've witnessed myself from previous said rare party invite. He doesn't mention any children's names at all I'm not even all that sure if he really knows any 🤷🏻‍♀️

I said to him one day who is your friend at school, who do you play with? and he said miss xxxxx ! His 1-1. Bless him.

I do realise he's going to behind socially with autism and sadly NT kids think he's weird so avoid him which doesn't help, but he needs peer interaction much more than he's getting to learn how it all works. I can do educational stuff at home to help with that side of things but since he's an only child unless I go out kidnapping I can't help with the social aspect unfortunately Grin

I've spoken to the school today again regarding lunches. Yes I'm still banging on about that all this time later Grin she thinks he will stay from next week, she wanted to make him a social story take a pic of his pack lunch bag and the dinner hall etc and read it to him and send it home to be read which she's done now and they wanted him to settle into his new classroom and meet his lunch time 1-1's (he's got 2 lunch 1-1's alternating days, it's confusing me! all his support staff he has 4 in total, so god knows how confusing it is to him! But he's supported full time that's the main thing and tbh he doesn't seem to care or understand) so now all that's been done she said at pick up time I don't see the point pro longing it I'll chat with Mrs xxxxx and speak to you tomorrow and hopefully all is good to go for next week.

She mentioned something about getting him sitting on the carpet more as he's refusing at the moment so she's bought him some squeeze toys and fiddle things but he's not interested for the minute, so she's keeping on trying with those. Not really a lot you can do, he's so headstrong, if he doesn't want to sit, he won't but all we can do is keep trying different things.

Hope everyone is ok! X

danni0509 · 10/09/2019 17:10

Light your dd sounds adorable what you write about her.

openupmyeagereyes · 10/09/2019 18:23

danni with ds we got him a red cushion to sit on at carpet time as red is his favourite colour. He is allowed little toys too. It’s important that they allow him to sit at the edge of the carpet too. Ds’ cushion is a wedge one to help his posture while sitting.

danni0509 · 10/09/2019 18:43

Open ds favourite colour is red too, red like the devil Grin

Harleyisme · 10/09/2019 19:31

@danni0509 i understand. Its so difficult. Our biggest problem is they won't allow for adjustments in class at all for him there only solution seems to be to take him out. They didn't take him out today and it was obvious he was exhausted and pale. He had 4 soiling accidents over the day. They ran out of spare clothes and instead of calling me put him in his pe joggers with no underwear.

LittleSwede · 10/09/2019 20:09

LightTripper, 'tappy'! That is do cute, made me smile. Sounds like she's having fun with the violin.

Danny fingers crossed he can stay for lunch time next week, it's good that he is being supported. I asked DD who she played with today, she said "the teachers!". Not interested in her peers at all. It's tricky isn't it. We had a few party invited at nursery but it was for whole group things so can see that not happening this year. We're having a party for her next weekend but I don't even want to think about that now so putting head in sand.

Openupmyeagereyes I think I read somewhere further upthread about your DS and his early wakings. Hoping that the melatonin makes a difference (if I read that right) soon. DD is not a great sleeper so survive on strong coffee most days.

openupmyeagereyes · 10/09/2019 20:33

Arghh, I lost my post...

openupmyeagereyes · 10/09/2019 20:36

Long story short:

LittleSwede his sleeping is crap despite the slow release melatonin. Sadly we’ve become used to it!

Harley it doesn’t seem right (or lawful?) that they refuse to make adjustments in class for him. I would be speaking to SENDIASS and the board of governors if the head and SENco are no help.

Harleyisme · 10/09/2019 21:56

@Open i agree and i believe i have given senco and head enough chances.
Problem i have is getting a appointment with sendias we did request input but no one ever came as they were no one available. I will request sendiass again.
Ds is struggling with sleep tonight.

openupmyeagereyes · 11/09/2019 05:05

‘his sleeping is crap despite the slow release melatonin’ - case in point, he’s been awake since 3:30 today 😱

Harley can you get a telephone appointment with SENDIASS to discuss your issues?

Harleyisme · 11/09/2019 06:26

@open i will ask them if i could at least have a phone call. Something had to change.

LittleSwede · 11/09/2019 09:17

openupmyeagereyes 3:30 is very early indeed. Does he slump in the afternoon or is he able to keep going until bedtime? Do you work it can you have a nap whilst he's at school?

DD quite short this morning but managed to avoid meltdown. This afternoon will be interesting, she will be shattered cone Friday! Lots of children in tears this morning at drop-off so think it's catching up with all of them. The school has made Friday a full day (Monday to Thursday 1:45 finish) which seems madness as they'll all be so tired. Senco is willing to let DD continue with shorter days if we want so am thinking about it.

How did your DC's do last September, did they go full time or continue with a part time day for a bit longer?