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Here are some suggested organisations that offer expert advice on special needs.

Original poster

Please help me to help my ds.. I don't know what's wrong!

121 replies

essbee · 28/08/2004 21:18

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OP posts:
blossomhill · 03/11/2004 14:30

Just wanted to say I hope it went well today essbee. Was thinking of you

Batters · 03/11/2004 14:50

This reply has been deleted

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saintshar · 03/11/2004 22:48

Essbee, how did it go?

I have had to post on here, because i keep trying to log into my messenger and email, and as soon as i do, it logs me off again!

Hope it went ok, and have been thinking of you all day. xxxx

blossomhill · 03/11/2004 22:51

Me too Essbee. I really hope you are all okay

Original poster
essbee · 03/11/2004 23:12

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OP posts:
blossomhill · 03/11/2004 23:23

Essbee - My heart really, really goes out to you
Get in contact directly with Social services and see if they can offer you anything at all. Maybe see your gp first and get him to refer you on.
There is only so much you can take for gods sake.
Thinking of you Blossomhillxxx

Thomcat · 03/11/2004 23:24

Shit, Essbee, I've been hovering here and not known what to say, then read your last post and .... well I still don't know what to say but am desoeratley trying to think of something. Oh you poor things.

tigermoth · 03/11/2004 23:26

oh essbee, how massively frustrating for you. Do you have a follow up appointment with this person - could that be why she is being so inactive right now? Is this the first stage of a process?

MummyToSteven · 03/11/2004 23:27

agree with blossomhill. speak to whichever of GP/HV is most likely to be helpful/accessible, and get them to refer you on to social services.

Thomcat · 03/11/2004 23:30

Who exactly have you seen about your son so far?

Dingle · 03/11/2004 23:34

What can I say? Hopefully you are on the road to getting things sorted out.
Sending hugs,Dingle.

Yorkiegirl · 03/11/2004 23:36

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Original poster
essbee · 03/11/2004 23:36

Message withdrawn

OP posts:
blossomhill · 03/11/2004 23:37

Did you not see a pyschologist today Essbee. That is who we saw when we went to CAMHS with dd last year.

MummyToSteven · 03/11/2004 23:38

i don't really know the structure. i guess i assumed it would be a psychologist or psychiatrist seeing your son. but if you can get HV/GP to refer you, (particularly HV) then they should hopefully be able to navigate the system a bit for you - i.e. refer you on to appropriate person - and explain what is going on

Thomcat · 03/11/2004 23:41

Okay, who knows about this stuff, who else should essbee see and can you post a link to their website, give her a phone number to call, names, anything to cut down the stress for her.

Have you opened a bottle of wine essbee, if not do that now and run a bath. Come back on here tomorrow when there will be some names & numbers for you.

Try not to worry, there is a light at the end of this tunnel, even if you can't see it doesn't mean it's not there. You'll look back on all this one day and laugh! We're not given more than we can cope with ok, it'll be okay. Go and get some rest.

tigermoth · 03/11/2004 23:43

They can't leave you hanging there like this - Sounds like you need to get on the phone tomorrow and stamp your feet - gp, social services, school, the lot.

more phone calls - sorry - not what you want to do with your time I am sure.

jampot · 03/11/2004 23:43

Essbee - sorry to hear you've had a crap night especially today. xx

blossomhill · 03/11/2004 23:44

Unfortuantely Thomcat you do have to have refferals from someone like your gp.
The paed. came to see dd and wanted to talk about trialing some medication for her hyperactivity. I would have to go to my gp and be referred to CAMHS again. The system is not that simple unfortunately

tigermoth · 03/11/2004 23:45

yes, I do home someone reading mumsnet who has knowledge of the system can help you, essbee/

blossomhill · 03/11/2004 23:47

My MIL is a social worker with the elderly. I do know that if you want any respite break they come round and assess the situation and then a care plan is drawn up. It was SS who orgainsed dd and ds's holiday scheme funding. We got 2 days funded per week and it was a life saver.

Thomcat · 03/11/2004 23:47

Okay, so back to the GP, take someone with you if you need to and cry on him, let rip, plead for his help, don't leave without it. Get him to refer you to whoever you need to see. Where do you live again Esbee?

Thomcat · 03/11/2004 23:49

Give Misdee a shout, she got some respite care, i'm sure she did, my memory is crap. in fact start a thread about respite care and ask the girls what they they had to do to get it.

blossomhill · 03/11/2004 23:51

Make an appointment to see your gp and explain to him what happened tonight. You could even show him your eye
Hopefully, fingers crossed, that would get things moving for you Blossommhillxxx

Thomcat · 03/11/2004 23:52

Good idea, show him your eye.