Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

Tinsley House Support Thread Part 4!!!

668 replies

Mangomanila · 14/10/2013 22:59

This thread is for anyone interested in the Tinsley House programme. All welcome!

A brief synopsis of stage 1 of the programme can be found in the books "is that my child?" Or "the brain food plan" by robin pauc;

Stage 1 of the TH therapy consists of:

  1. Daily Multivitamins
  • Omega
  • Zinc & Magnesium
  1. Healthy eating
  • High protein, low sugar, no artificial sweeteners, additives etc.
  1. Specific neuro development exercises done 3 times a day
  • Takes about 4-5 mins

And that's it smile

Stage 2 involves computer programmes to sort out eye tracking and convergence which over 80% of children with reading/writing problems have.

  • www.engagingeyes.co.uk
OP posts:
harrietv · 10/12/2013 12:10

Hi Cereal, We didn't experience behaviour issues with Hemi P but know the Hemis have caused issues with other kids....onset of tics being an example. We've had onset of -ve behaviour during target practice, we rode it out (unwillingly!!) and within a month things had calmed.

Because of this and DS getting tics during Engaging Eyes Robin has taken us slowly (basically had to finish pretty much, tracking before went onto Hemi P and that's all we're doing now ) and he said Christmas is a nightmare for our kids all the extra excitement, tiredness, stress, party food etc. so his aim was to get DS through to January in one piece then we can pick our speed up a bit. I was happy with that. If your DS seems to be struggling perhaps you can email him and suggest an ease off of Hemi P for a few weeks till life calms down? But I'm sure it's one of those good signs, no good to live through, but evidence of change! Hang in there!

Prince great to hear of your Dd's improvements, good for her (and you!). I agree that reception is a place of such huge differences in ability and there's so much time in Y1 and 2 for her to catch up. And re: the horrid behaviour, I'd say that a large part of that is probably absolutely normal (although unpleasant) for a reception child. My DS2 who has elements of personality simliar to DS1 of course, but does not have any learning delays has been hideous (as have a number of his friends) since starting reception. Argumentative, physical, on a knife edge of a tantrum whenever i pick him up, always screaming and yelling. Starting school is such a huge thing for them and they're SO young, that when you add in any developmental delays these poor kids (like my DS1) are so utterly stressed out and pushed to their limits with school that I think it's even worse and all comes out at home. Not very helpful I know...but many of my friends with kids DS1s who were NT but were monsters wtih onset of school promise me their kids got better during term 2 so here's hoping for both of us things improve after xmas!

harrietv · 11/12/2013 09:01

Cereal to clarify - Robin explains that tics and outbursts etc are the result of bits of the brain starting to work in ways and with other bits of the brain that they haven't worked with before and as things settle down so do the -ve behaviours...I think it can probably happen at any stage in the program depending on how your DC is wired and what bits are most powerful for those. For us it was early in the program when we were doing EE, stairs and teeth, for others it was later when they were doing Hemis. So hang in there!

nellieellie · 11/12/2013 12:38

Hi, it is interesting to hear of changes in behaviour with the hemi exercises. We have just had a 1st review and have now been given the 1st hemi exercise - along with the steps and toothbrush. So far, I've not seen a lot of changes since starting the TH prog but Robin said that was normal - there did not need to be much change in diet so will take longer to see changes. The last few weeks though I've seen a very subtle change though - DS (8) seems more relaxed and is making some quite good jokes and oneliners. Yesterday when I asked him what he had done at school, he actually took me through the whole day and clarified things if I asked him (before would at the most mention one thing, though usually "don't remember"). His conversation seems more relaxed and interactive. maybe he is saving up funny behaviour and extra silliness for Christmas - probably when friends and relations are round..............

sunshineandshowers · 11/12/2013 14:39

Hi all,

Well things are much calmer here. We are in week 7 with DS. The first three/four weeks were horrific. For the last couple of weeks we have had virtually no aggressive behaviour, tantrums with much less intensity, and shorter. To sum up we have noticed big changes.

nellieellie I have had some good conversations with DS as well. We have had the same chat about a School day that lasted about half and hour. Never before!

We are also strictly doing rugby every week, and in 8 weeks, he has gone from having zero confidence/can't/won't catch to totally participating on an equal level with peers. I can't believe it.

Negatives are we seem to have a tic. It is burping, Small burps. ALL THE TIME. Driving me potty.

This time of year is so difficult for our kids I agree. The build up is awful.

Something that may help others is we have designed a visual calendar. It is a massive bit of card with all breakfasts, after school snacks on (a big meltdown trigger for us), and swimming and school on and 2 programmes a week. It has helped enormously.

Jo xxx

sunshineandshowers · 11/12/2013 14:41

Also less backchat, lieing (this was awful in September), and much more reasonable. (Quick find me some wood!)

I feel so hopeful xxx

Mangomanila · 11/12/2013 21:30

Nellie that's pretty much identical to our experience (apart from sudden need to chew things). Second appoint in a week.

OP posts:
Mangomanila · 11/12/2013 21:30

Nellie that's pretty much identical to our experience (apart from sudden need to chew things). Second appoint in a week.

OP posts:
Mangomanila · 11/12/2013 21:31

And I keep repeating things Grin

OP posts:
cerealflakes · 12/12/2013 20:02

Thank you all. Hanging in there, just. DS surprised us all on Monday night by singing a verse of O Little Town of Bethlehem all by himself at the school carol concert. Was only picked that morning - said he was nervous but enjoyed it! He was sooooo good. I didn't have time to be proud/teary as I was wrestling with 2 younger siblings and of course DH missed it. I seriously doubt this would have been possible 6 months ago (because he would have freaked out at the thought of reading the words just for starters).

Mangomanila · 12/12/2013 20:58

cereal that's fantastic progress!

OP posts:
notapizzaeater · 12/12/2013 23:03

That's fantastic

DaftMaul · 13/12/2013 08:50

Oh Cereal, how lovely!

Just giggling at the thought of a TH Nativity with all our dcs involved. Ds would be sporting his black beanie hat that he seems to be wearing constantly at the moment (even in bed last night) so maybe he could be a sheep!

PrinceRogersNelson · 13/12/2013 14:45

My DD did her nativity this week. I couldn't go but DH did and took lots of video. She sat for the whole 30 minutes and did try to join in the songs and actions. There are some great bits where she is singing VERY LOUDLY, off key and out of time. Love her.

She did seem to go in to her own little world at times, but she did really well I think.

In bad news a couple of girls have been calling her a baby which she is a bit upset about. She does come across as much younger than 5 and this does worry me :(

shoppingbagsundereyes · 13/12/2013 17:42

Ah bless your dd Prince. Mine sings very loudly and off key too. She has loved the nativity.
Wrt the name calling ime 'baby' is just a favourite mean thing to say in reception and year 1. My dd has come home a few times upset about being called the same thing and she's pretty grown up for her age. Doesn't make it any nicer for your dd but I wouldn't read too much into it - they probably aren't choosing 'baby' for any reason other than it's the insult of choice at the moment.

shoppingbagsundereyes · 13/12/2013 17:44

Also perversely being aware of the other children and caring what they think is a good sign that she is engaging with what's going on at school. At 5 ds had no awareness whatsoever of what other children thought of him and didn't give two figs either.

PrinceRogersNelson · 13/12/2013 18:55

Thanks Shopping.
I did mention it to her teacher and she told me they said sorry to her today. I just hate any kind if bullying and am probably over sensitive to these things Blush

shoppingbagsundereyes · 13/12/2013 20:46

Me too, I find it unbearable when dd comes home all upset. :(

harrietv · 21/12/2013 19:17

Happy Christmas everyone! We're off to the inlaws tomorrow and after our first really good report EVER I'm feeling full of festive cheer. 8 months of TH and a significant difference - uncomparable really. Here's hoping really great things for all of our DC's in the New Year. xx Wine Wine

MsBiggles · 24/12/2013 04:24

This reply has been deleted

Message withdrawn at poster's request.

DaftMaul · 24/12/2013 23:31

Hi Ms Biggles, we did EP report as well as TH. or do you mean that the expense is too much?

Be careful not to overload. I'm not sure I would do lumosity at the same time as Engaging Eyes. Remember that most of us take two years to complete the program and, I thnk, there are parts that would be hard to do without meeting Robin to have them explained.

Best of luck

DaftMaul · 24/12/2013 23:41

Happy Christmas to you all.

Bit of a rubbish time here. Had a disastrous change of meds for ds at the w/e and he was having almost constant seizures. He is now back on his old meds but they are still not completely controlling things but fingers crossed will be ok until his consultant returns from annual leave on 6th January!

So no Lumosity being done and behaviour is up and down. Poor thing.

I hope you all have a fabulous Christmas and are not badly affected by the awful storms. It has been very wet and windy down here in the New Forest and, as things stand at the moment, we cannot get through the floods to my sister's for lunch tomorrow! Various plans afoot, from staying at my parent's, using a boat and being 'escorted' through bridge works further along the road by BR staff!

Take care all xx

Beautifulpossum · 26/12/2013 23:26

Daft - sorry that DS is having such a rough time with seizures. Do hope you manage to get it sorted very soon.

Welcome Biggles- of course you can join! All welcome here. Sounds like you are doing a great job but I agree with Daft- don't do Lumosity yet. Robin was adamant that we shouldn't start Lumosity until we had finished the other parts of the programme. It's a bit like peeling an orange- you have to do it in a certain way or you mess it up IYSWIM. Confused My suggestion would be to do stairs until they are perfect ( and teeth if you are sure which leg to stand on. Almost always left but some are right so do test in Brain Food Plan to check) and Engaging Eyes which you can buy online at Engagingeyes.co.uk. That will all take a few months and then go to Robin if you can because you will need the Hemi's and you can only get them from Robin. Lumosity is almost always given after the 3 hemi's and treats the Pre Frontal Brain area. he hem's do the middle part. So, you start at the cerebellum, move to the mid brain and finish off in the front.

Things are going really well here. My DS and DD have been doing TH for 17 months and I really think that my DD is virtually finished. She had significant ADD and it has now almost gone. There are slight traces but I watch her like a hawk and they really are so slight now. She still does Lumosity although all her scores except problem solving are way over 1000. She is year 5 and I am now concentrating on supporting her with looming 11 Plus exams. My DS is doing really well too. He is on Lumosity though we have taken a 10 day break for him to do AIT. DD did it is Nov half term and it really helped and hope it will do the same for DS. So 2014 is just Lumosity for us and it really is very manageable.

If theres anyone out there wondering if TH is worth doing, especially if you have tried other things and wonder if you can face another therapy method my recommendation would be YES, DO IT. We started with another therapy and then switched to TH and I can honestly say it has been fantastic. Would I do it all again…Too right I would…in a heartbeat.xxx

MsBiggles · 26/12/2013 23:35

This reply has been deleted

Message withdrawn at poster's request.

nostoppingme · 27/12/2013 04:53

The TH thread is so interesting.

I have read 4 pages so far, I think there's 11 pages in total! And also many previous threads.

Can someone explain what Robin Pauc means with 'Learning Disabilities is a Myth'

Also a doctor in the USA, Dr. Shaywitz, explains in 'The Big Picture: Rethinking Dyslexia' nobody overgrows or overcomes dyslexia ... It is a condition for life

Who is right?

Why are his methods not 'out there' ...

nostoppingme · 27/12/2013 05:03

outgrows btw

I am actually stunned, I have never heard of this before only read it on here and a poster informed me about it in a pm

I have paid a fortune on specialist dyslexic tutoring over the years and also went through the horrendous Statementing process with fantastic results as we received a Statement for a fully funded specialist dyslexic school for my child, however, I need to understand why Mr Pauc says LD are a myth

And I think every parent of a child with all the DYS and ASD/ADHD should be informed there is another route they can take besides the Statementing route. How to accomplish this?

Thank you for this thread