TINSLEY HOUSE SUPPORT THREAD - PART 3!!!! :)

[Badvoc]

Well, here is the shiny new thread for all of us either doing the TH programme, doing part of it, or thinking about doing it! :)
A brief synopsis of stage 1 of the programme can be found in the books "is that my child?" Or "the brain food plan" by robin pauc;

Stage 1 of the TH therapy consists of:

1. Daily Multivitamins

• Omega
• Zinc & Magnesium

1. Healthy eating

• High protein, low sugar, no artificial sweeteners, additives etc.

1. Specific neuro development exercises done 3 times a day

• Takes about 4-5 mins

And that's it :)

Stage 2 involves computer programmes to sort out eye tracking and convergence which over 80% of children with reading/writing problems have.

• www.engagingeyes.co.uk

We are coming to the end of our time doing TH I reckon...certainly by the end of the summer I think. It has been in many ways much easier than I thought at the beginning but of course takes commitment and time.

I am so glad we "took the plunge". It has made such a difference to ds and to our lives :)

Hi Shopping - all went ok yesterday, thank you. First time I have taken both DC's to Robin on my own and hated it as they were full on! DD took a chunk out of DS... Both had time out in the car - separately. Potty training going well, but we stopped an awful lot on the way home. DS is making progress, but slowly. Robin took off letter search to let us focus on doing the rest with motivation etc.

We've booked a beach hut for a week from Sun, but just cancelled family day as too difficult for my Dad plus reports of 3hr+ traffic jams. Have made plans for all of next week and they are all being cancelled because of the heat! What a difference...

How is everyone?

Hi All

I tried to post a couple of days ago but lost it all after typing it all out, so gave up!

Had a great time in Spain - lots of swimming in sea and pool and mucho sangria for the mums! Ds was a star. It was very strange leaving 36 degs there and arriving to nearly that at Gatwick!

I usually leave vitamin supplements at home if we go away - we have so many other meds to take that we just don't have room!

Hoping to make 4th Aug but won't know for sure until nearer the time. There is also a big bike ride that day that will mean the closure of roads locally, so will be chaos getting anywhere! Did you all meet at a specific place in Windsor Park last time and wear a MN scarf?!

So glad the temperature has dropped a little today. What horrendous journeys some of you have had down to Robin's. Glad to hear that progress is being made by all the dcs.

A few other beaches near Robin - Lepe and Sowley, shingley. Milford-on-sea and Hurst Spit (where you can walk to Hurst Castle if feeling fit, or get a ferry from Keyhaven!), pebbled. Highcliffe Castle and Mudeford, sandy.

Ds is doing well with lumosity. He seems to be still improving on everything except 'problem solving' which is pretty much a flat line since beginning! His score on 'how you compare' is improving though, which I find quite strange. Anyone else had this?!

Hi all.
Back from hols - had a wonderful time. What a lovely part of the uk Northumberland is!
Toms leavers assembly was as emotional as expected :) so it was nice to be going away soon after.
However, mum just phoned and sadly I won't now be able to make 4th August.
Is any other date ok?
The wife of My dads best friend who died 20 years ago whilst at work with my dad :( is having a memorial that day and I want to go.
20 years...I can't believe it's been that long :(
Sorry, haven't read any posts, hope everyone is ok x

Hi, I haven't read through previous posts yet but am reading the book Is That My Child and could cry. My boy was assisted birth ventouse, development delay history on fathers side (his sister), I was stressed in pregnancy. The questions at the beginning he scored definitely delay present. He displays inflexibility of mind, impulsivity, sensory issues, pda, very bright cognitively 99% percentile, social communication issues, no theory of mind or much empathy. Just started assessment with community paediatrician. Already started biomed interventions with Caudwell Children funding, had urine stool and hair tests which show many imbalances and awaiting test review consult to get nutritional protocol. Will be calling Tinsley House tomorrow first thing to start ball rolling with them as well. My son is 4 next month. Pleased to meet you all and will read thread when have a minute!!

Hello there!
Don't cry.
You are setting the ball rolling to help your son.
I wish I had done so when my son was 4!!
Good luck and keep posting! X

Welcome DM. Hopefully Robin can see you ASAP to get you started. Good luck and let us know how you get on.

Hope you manage to speak to robin today DM.
We have a Skype appt on Thursday and I think it may be our last one :( :)
Tom is doing so well.
We are still doing lumosity when we remember and his spelling intervention (apples and pears - I really recommend this) and I am hopeful that he will do well in his assessments when he starts high school.
DM - my so. Had significant developmental delay as a baby and younger child. He is now 10 and has just left primary with a glowing report :)
Don't despair x

I know there is no point in regrets but it kills me that my work stress in pregnancy and my medically intervented birth could have been avoided. I worked very hard with hypnobirthing and having a doula with my second child as I was determined it wouldn't happen again, as I've always thought if the birth was natural he may have been ok. I did have a natural drug free birth and my daughter is very NT and bang on developmentally. If only I could have overcome the pain and not had an epidural and stayed natural.

Badvoc am sure we have had convos elsewhere, I was called NourishingButtons too, hello again. Hello DM

Ok, I am going to have to get stern with you now! :)
It is absolutely not because you had an epidural, ok? We all have different pain thresholds and I think we can all agree labour is pretty bloody painful!?
My son was born normally, apgar score of 10 but had undx iugr so was very small.
My placenta stopped working properly when he was about 32 weeks gestation.
I don't know why. I dont drink. Or smoke. I only took 2 paracetamol during the whole pg. I only gained 20lbs and was walking a lot.
Sometimes, there is no explanation.
My dsis had sever pre eclampsia with her first dc. Not with her second and not a single dr can tell her why.
So.
Please, please give yourself a break. I will tell you what a gp told me when I was very distressed about my son and asked for him to be assessed by a developmental paed;
Your son will achieve his potential because he has you for a mother.
X

Desperate, the past is what it is and cannot be changed no matter how much we regret it or wish it otherwise.

Now is the time to put it all behind you and focus your energies on the future. Easier said than done, I know but hopefully, you will look back in a years time and see all the positive changes.

What part of the country are you in? I we manage to find a date for a summer get together, you should come.

Have you been able to speak to Robin yet?

Whilst waiting to see Robin, you coud start with dietary changes and supplements. These have been listed in the book and we have discussed them at length on our threads but do ask as we all use different variations of supplements.

Thanks and yeah sorry for being stupid!

We have appointment with him mid Aug.

We live in North Somerset, near Bristol.

My biomed path with my little man is already quite long. As an infant I had his stool tested as he had reflux and eczema, the results showed candida so he had supplements from about 6-9 months - vegepa, kefir, ascorbic acid. I wasn't totally on the ball with it though as was not in a good way myself.

Then at 2 and a half I had him on the GAPS diet for 6 months, supplementing with fermented cod liver oil and homemade yoghurt and kefir for probiotics.

We got £2k funding from Caudwell Children for Biomed a few months ago, and have seen a nutritionist who arranged a hair, stool and urine test. The lab cocked up the urine one so have only just got results and having phone consult on thurs to change the protocol. But, his hair and stool showed lots, low calcium magnesium and zinc, high lead, high ph in gut, yeast in gut, high strep. He is having sage oil for the strep and ecodophilus for a probiotic, but will be having a whole host of things from thurs. I imagine this will include lots of natural antifungals, natural antivirals, efas, minerals etc. I haven't looked into TH protocol yet but I expect is similar but with Caudwell Funding we are able to get a very individualised approach.

You don't need a diagnosis but a referral for suspected ASD and a family income of less than £45k. You also get a 40% discount at nutri centre. Supplements really add up so it takes at least that worry away. You can use the money for consultations, supplements, testing etc.

Hi everyone and welcome Desperate. You must live near where I grew up :)

We have our skype appointment with Robin later.

DD is going great guns. She has just had her last morning at nursery before going to reception in September. She has met her teacher and he seems great and nursery have done a transition book for her with lots of photos so she is ready in September.
They are applying for a statement for her which obviously I have mixed views about (wish she didn't need one), but at least they are on the ball and helpful.

This morning when we got to nursery DD held hands with another little girl and told me this was her friend. It is the first time I have ever seen her have that sort of connection with another child so that is a great sun. And in general her movement is better, her concentration and just being more present are greatly improved. So all good news - still a long way to go though.

So I have my Skype appointment later - how do I pay Robin? Can anyone let me know?

Hope you are all continuing to enjoy the sun :)

i do it via PayPal prince.

Ooh. Ok. I think DH has an account. Thanks

Prince, you don't need a PayPal account, just click on Skype appointments on the TH site, then change to follow up appointment £75, then click on PayPal. It then lets you pay with a credit card.
Hi all, and welcome DM. We've just returned from nearly a week on the Norfolk coast which was glorious. One of my favourite parts of the world. We managed to survive 5 days with my entire family in one house! They are lovely but we tend to all get on one another's nerves after a couple of days so I think we did pretty well. I suspect my 14 yr old nephew had had enough of my two though, they were like little irritating flies desperate for his attention while he was busy doing a good impression of Kevin and Perry!

Well that went really well and was much easier than the travel.
Robin is really pleased with DD and when I talk to him and list all she has done I can see how far she has come on.

We are still keeping on with spinning, stairs and hemi P. But it is the holidays and we should be able to make a real effort to do it and then we can hopefully move on to something else.

Shopping - glad you had a good holiday. Sounds lovely and you had great weather for it.

Let the summer holidays begin. Feeling all good and positive :)

Our Skype appt is tomorrow :)

How much longer has your DS got do you think Badvoc? Are you looking forward to the holidays?

We are into our second week of the summer hols prince :)
I think this may be our last appt with robin.
Which makes me feel happy and odd at the same time!

Hello everyone, poster formerly known as inthesark here, although I'm not sure about the new name. It's been insanely busy here, so haven't been around that much at all, and now it's the holidays and it's not going to get much better, I don't think.

Went back to see Robin yesterday, and DD has made massive progress - he said she's 2-3 months ahead of his expectations. We have been pretty ruthless in following the programme, but even so, we were very pleased and surprised. So we are now on stairs + teeth + hemi p. She's not doing any of the convergence ones because she still has no 3d vision, but I'm not too worried about that, as reading is not the issue with her. Although I do still worry that this means that the rest of it won't work . But even DD says that she can run better because of the stairs exercise.

That's great news and welcome back!

Great news!

Well, I guess I must truly not be worried about Tom anymore as I completely forgot about our Skype appt earlier tonight!
I am mortified!
Will rearrange for next week.

Lol. Good news indeed.

Badvoc-

Prince- Glad that things are going so well with your DD. She is so young, and you have so much time to sort her. If she does have a statement it will be short-lived because she will be fine by the time she goes into juniors ( and probably way before that)

Metran- Welcome back.

Not been posting much as not much to report. Both DD and DS doing so well now. We are still doing Lumosity and generally both children ok to do it. All DS's tics which came on during the programme have gone completely. The only thing he does now is get upset if he hasn't given me the same number of kisses as I give him. If I didn't know it was a symptom of DDS it would be very endearing, but he has such minor problems now I hardly think about this stuff any more. He can now READ and is beginning to be able to SPELL. He still has pencil holding issues and

I can't imagine him ever being able to write more than a few lines without his arm aching but it is improving and I am hopeful that this, too, will be sorted out.

DD is much more attentive than she was. She still has a way to go but is so so much better. I think she will finish TH this year, which would be great.

We are off on hols on 2nd and can't wait. We cancelled our holiday last year as DS had a complete crisis for about 3 months. So, so different this year. TH is AMAZING, simply AMAZING.