TINSLEY HOUSE SUPPORT THREAD - PART 3!!!! :)

[Badvoc]

Well, here is the shiny new thread for all of us either doing the TH programme, doing part of it, or thinking about doing it! :)
A brief synopsis of stage 1 of the programme can be found in the books "is that my child?" Or "the brain food plan" by robin pauc;

Stage 1 of the TH therapy consists of:

1. Daily Multivitamins

• Omega
• Zinc & Magnesium

1. Healthy eating

• High protein, low sugar, no artificial sweeteners, additives etc.

1. Specific neuro development exercises done 3 times a day

• Takes about 4-5 mins

And that's it :)

Stage 2 involves computer programmes to sort out eye tracking and convergence which over 80% of children with reading/writing problems have.

• www.engagingeyes.co.uk

We are coming to the end of our time doing TH I reckon...certainly by the end of the summer I think. It has been in many ways much easier than I thought at the beginning but of course takes commitment and time.

I am so glad we "took the plunge". It has made such a difference to ds and to our lives :)

Okay, that turned into a slightly epic post, apologies! But good luck to you all in finding the help that will work for your child, whatever that help looks like.

Thanks badvoc. We've come a long way in the last year, and if we have another 2 years like this one, he'll be set for school. He's a little comic. He was trying to get one of the ladies that runs his gymboree class to come home with us yesterday so he could show her the puppet he made. He's 3 and a half and already trying to bring girls home!

Lookslikerain, he sounds fab

He is, daft. DH calls him our little hero!

He sounds adorable LLR :)

Daft - fingers crossed that everything is ok.

Looklikerain - really interesting to read your post. Our experience is very similar and I am incredibly grateful for this thread as it headed me off in one direction, rather than another.

blueshark - I am so sorry that things didn't work out better for you and really hope that you find some help for your DC. I don't know what happened with Robin, but when I met him 11 months ago he explained what his fees were and how long it would all take. How are things going apart from your TH experience?

Badvoc - lovely to see you on here. I miss you and Tom.

Off to see Robin in the morning. We had our Harvest Festival at school today. DS teacher had a mini moan about him fidgeting and not sitting still during the rehearsal. A year ago he would cry at the though of a school assembly and lie on the floor with his hands over his ears and eyes. Today he couldn't sit still, but joined in with the singing, actions and seemed happy and relaxed. Who knows what has changed or bought the change about but it is worth an incredible amount to us.

Gluten sensitivity link to ADHD/ dyslexia etc???

articles.mercola.com/sites/articles/archive/2011/11/02/gluten-contribute-to-adhd.aspxaspx

www.beaconmedia.com.au/bm/images/docs/dyslexia.doc

I've been doing a bit more research into possible underlying/ contributing factors to SLDs and found this quite interesting reading, so I thought I'd share. I have no idea if it works, but if it could improve things, it might be worth considering. Anecdotally, it seems to have quite impressive results in certain cases.

I began looking in this direction after hearing about the GAPS diet which is pretty extreme, so Gluten Free maybe a useful starting point.

The general premise is that kids with gluten sensitivity (often history of sore tummy, dark circles under eyes) end up with gluten 'bits' leaking into the bloodstream. Can cause neuro issues such as ADHD and dyslexia. And 'brain fog'. I have also seen mentioned anxiety, and inability to make eye contact.

I am going to have a bash at gluten free (though it does take 6-8 months for gluten to leave the body). DS has a history of tummy pains and doesnt fit classic TH profile as met all baby milestones, crawled properly.It's not going to be easy, but I think it is do able. I bought some 'Genius' (£3 ) bread. DS never noticed I had swapped in sandwiches.

Apologies for going off topic!

Aghhh! Links:

articles.mercola.com/sites/articles/archive/2011/11/02/gluten-contribute-to-adhd.aspx

Should have said second link is a PDF

Hi mango. Thanks for the link, I'll have a look later when I've got more time. There are also a lot of people that think the 'leaky gut' idea might cause autism too, and that GAPS can help. It is a big undertaking and while I've thought about it, I've never been brave enough to try!

Anecdotally, since we've been doing TH, DS and DD have been eating much less gluten (actually much less carb in general). DS started picking round the pasta to just eat the sauce so I stopped making the pasta. They haven't asked for it! They've never been big on potatoes either. Since cleaning up their diet, they seem to naturally have gone for a lower carb diet. They do still love a biscuit if offered, though! All homemade, of course!

Should also have mentioned importance of probiotics to help the gut. And homemade stews and soups. With homemade stock of course

Hi everyone,
I am a not too prolific poster on this thread. But I have been reading the discussion with interest. I am someone who is not convinced that TH is going to work, but am doing it as at least it is something and may help.

DD has made progress since we started in January, but I do not know that she wouldn't have made that progress anyway.

She has just started school and has taken a massive step backwards with toileting which was something that I had thought TH had helped with.

I find it very hard to fit the exercises in. DD does not want to do them and at the moment I am struggling with getting her to do them when she has started school and life is pretty full on for her anyway. We do our best, but I can feel my enthusiasm waining.

Someone asked me the other day is DD is autistic (she isn't). But as she gets older her SN are getting more obvious not less and I just cannot see how TH is going to change that.

But we will keep trying it. DD is only young. I get the feeling we will still be doing it is 2 years time as we will just have to see where we are at then I guess.

Prince, how is your son doing? Have you found his anxiety is getting any better? Hope so, was sad to hear about his worries.

We snip the vegepa and squeeze the stuff into fruit juice. For the month we did vitamin supplements they went into the juice too. Ds could still taste them I'm afraid.

Greener, she has just received a diagnosis if dyspraxia and verbal dyspraxia.

She has trouble interacting with peers, but that is improving. She finds many situations overwhelming and tends to get difficult to manage and squeals a lot.

Shopping - DS is much better thanks. He seems to be settling in to year 3 well. He is much calmer and the anxiety has all but gone. Hopefully it was just a blip .

That's lovely news re ds, must be a relief.

hope your kids are ok Daft :( what a week!
Mango - we went gluten free over the summer holidays - didn't find it hard at home at all, harder outside of home and playdates etc. But we stuck to it. As with everything so hard to quantify changes and was actually doing it partly for DS1 out of interest (the one we visit TH for) but mainly for DS2 who has unexplained anaemia and a bloated tummy. We're doing gluten reduced now they're back at school. They have school dinners and thought I'd see whether we stepped backwards with that, we don't seem to have but pasta/bread/pizza base at home is always GF so we're gluten reduced. It's interesting/compelling as an idea, the GAPS. Especially as DH's family all have very dodgy tums. I hope we can get to where I want us to be without going the whole hog! We have kefir smoothies but with shop-bought kefir, haven't quite got head around brewing our own. or getting DCs on saurkraut!

I just wanted to say a big thank you to all who post on here. It's been so helpful to me to hear about the good and also the not quite so good experiences and to give a balanced view on everything - THANK YOU!

My DD is 5 and although very happy etc and is just generally about a year behind on things, especially speech and writing. We had our first appointment with Robin in August and have been doing teeth and stairs. We've been taking vegepa for about 6 months already and diet is pretty good although struggling with protein at breakfast - still just wants plain porridge with the occasional cheese on toast. Other vitamins have been unsuccessful - she hated the aniseed taste of Kindervital and no attempt at masking or bribery has worked so far.

My question is, given that most of the treatment seems to be the same - after teeth and stairs move on to Engaging Eyes - is there a need to have a second appointment at TH or should /could we just do EE ourselves and save ourselves a long journey and a consultation fee? I'm definitely not wanting to cheat the system in any way at all but am genuinely looking for thoughts on how valuable the second appointment is. If it is valuable then of course we will do it ... would really welcome your experiences.

I think I'm so tired of the constant worry re my DD in relation to milestones achieved by peers and whether I could/should be doing more to help (TH, AIT etc etc) that I'm in danger of failing to just rejoice in her 'wonderfulness' and believing things will come good in the end.

Thanks Harriet, they are both at school this morning so fingers crossed.

Dd complained of stomach ache but ate breakfast as usual so I sent her in. Ds seems ok but I suspect we do need to put his meds up more. He has dates for nut challenges coming up in November and December so I am hoping he will settle quickly - we can't go ahead with them unless he is completely well.

Justlooking, I think starting EE yourself could be easy to do but the next steps would be tricky without Robin guiding you. You can probably Skype him instead of travelling to see him. There were other places that offered TH, I think. It might be worth looking those up to see if they are any closer to you. I don't think anyone on this thread has gone elsewhere though.

Mine is a 9/10 hour round trip, my 2nd appointment is tonight by Skype to avoid this.

We made two 8 hr round trips to see robin but now do skype. You could save money by doing engaging eyes yourself but I believe that the hemi stim exercises are only available through Robin.

Justlooking - I totally get where you are coming from when you talk about forgetting to just enjoy them. It is just so constant isn't it? We have appointments and statement request and meetings with school etc. And then you add TH on top with the hope it is going to make all the problems go away. But are the 'problems' essentially a part of who they are? And therefore it won't change anyway and all I am doing is making me and her miserable by trying to change her. Sometimes hope is a tricky thing.

I don't have the answer by the way . All I know is that I picked DD up from school today and she had had no accidents today and is doing OK with her phonics. And I felt happy. And not like I had the world on my shoulders. And like she can learn. And it felt good. I would love that to continue so I will keep going. With hope.

Thank you for all your replies & for explaining about EE and Hemi and the need for Robin's involvement . It's made me feel a lot happier that the 2nd appointment is important and we will definitely be continuing.
PRN, so glad that DD had such a good day at school...s

Aaagh, typing on phone and finger slipped!

Sometimes chanes are obvious and amazing whilst other times they're gradual and subtle but no less profound. I too will definitely be keeping

...on with TH. {smile}