Moose here - again. Following on from my epilepsy thread.

[moosemama]

Hi folks, we were up to 995 posts, so I thought I'd better start a new thread

Where from? No money, no legal aid...

(Genuinely asking for suggestions of where to go for legal advice here. Preferably someone experienced in FII cases) PM me answers...

Oh. Them. It's not so bad if you are from another LA. They are still in Essex...

There's the Disability Law Service as well since disability yours and DCs are the issue.

Or Disabled Parents Network used to have a service for parents who were having difficulty with SS because of their own disabilities not sure if they still do. Their helpline is 0300 3300 639

Thank you. Will give some of these a try for advice on Monday.

Children's Legal Centre are going to take the case on. Thank you for the recommendation.

They are going to ring me back to arrange an appointment for me to go in and see someone face to face. Helps that it's actually local ish to me. Just got to find a lift there!

I have a busy few weeks -

30th April Physio Review for DS2.

2nd May GP about 'other' psychotherapist for me.

3rd May HV for DS3.

7th May Family Support Worker from the DS's Primary School.

8th May Orthotics assessment for orthotic insoles for DS2.

13th May SenCo at DD's Secondary.

14th May Trainee SW at home.

15th May Dietician for DS3.

And that's without any additional appointments that may get booked!!

Stressed, upset, watching every word I say to people, just nodding and smiling tbh.

If anyone's got any ideas on how to approach the SenCo meeting about DD, it would be appreciated.

I want to know why it's taken 15 years for someone to say that DD has 'moderate Learning Difficulties'.

Do they mean the 'technical' definition of Moderate LD's, someone with an IQ of between 50 and 70, or if they mean something else.

I want them to quantify DD's specific areas of difficulty, and to tell me what they are doing to support her, and what I can do to support her.

I want to know if ALL her teachers know that she is meant to get a scribe and 25% extra time in both her exams and her Controlled Assessments.

I want to know if she is meant to be getting the same differentiation in her class work as I thought that the additional help in exams & CA's was only meant to be given if it is the SAME help that they are giving every day in class. Has that changed?

I want to know what they suggest for post-16 education for DD, and how the heckity I go about sorting that out.

As our LA says that Secondary DC's don't have IEP's any more, how do I know what her current targets are, and how long they expect her to take to meet those targets.

Why are the instructions to her teachers to ensure that her homework is written down in an understandable way in her planner NOT being stuck to?

How can we approach the Catering teacher to get her to plan lessons better so that I don't only get 24hrs notice of needing ingredients - her 'proper' Catering teacher (who is on Mat Leave) was excellent at taking these things into consideration - would it be possible to somehow broach the subject with her?

Also, the Catering teacher seems to get very impatient with DD and tries to rush her - which isn't conducive to DD doing well in that lesson. The teacher tells her off for being too slow - but DD can't help being slow.

Standing behind her barking 'meat, pasta, sauce. Meat, pasta, sauce' is not going to help her to make her lasagne any quicker - she knew what to do, she just happened to be doing it slower than the other pupils. Because she isn't as quick as the other pupils...

Sooo, anything I might have missed?!

The main dx I had for DD up till now was 'GDD'. Which all of a sudden is 'moderate LD's'...

Sorry to hijack, my DS is on Epilim to control absence seizures. He had a 5 week rising dose and has been on full dose since Friday. Should his seizures have stopped by now, or will it be a while yet? He's still having several a day, and I don't know if that means the medicine doesn't work, or if I should give it more time.
Anyone here got any advice on this sort of thing?

I'd give it two weeks at full dose, then ask for him to be seen tbh. You have to give the meds a chance to work at full dose first - and what they have decided is his current full dose may not actually be the maximum full dose for his age/weight.

If there's no improvement in a week I would ring the Neuro to get medical advice, see what they say, to put your mind at rest.

Thanks, that's set my mind at rest for now. He's on a school residential this week, I was hoping he'd be under control for it, so a bit disappointed for him on that score.
He's been great about his medicine, he's 11, and taught himself to take tablets so he could have his meds prepared for going away.
He did have a follow-up appointment at hospital but I had to reschedule as it was in SATs week. Fingers crossed the new appointment won't be too long after.

Oh god, SATS.... DS1 is in Y6. Say no more!!

Bad day. Not SS. So-called friends. Now EX friends. Will explain later. Am shocked, trying to take in how two faced people can be, and also how evil some people can get to attempt to 'prove a point'. In a way that makes a toddler ILL.

For now, all I can say is that there really are some sick fucks in this world.

I'm taking a guess that they disbelieved a child's allergy and fed said child a banned food to see what would happen.
Someone tried that with DS when he was little, he swelled up within seconds and the dumbass adult tried to backpedal furiously but had been seen by lots of other people.

Yep, but this was before his allergy had got to anaphylaxis stage - but he was ill for 4 days, and we didn't even know it was an allergy reaction as they've only told us 6 months later.

He had a rash that we put down to heat rash, he was bright red but we thought that was because of the temperature he had, he vomited solidly for 4 fucking days, lost 1.5lbs when he was only 1y9m, he was wheezy...

He was dxd by skin prick tests and prescribed daily cetirizine and Jext pens for emergencies just 2 weeks later.

He had been on a dairy free diet since weaning, which they knew, but his first allergist appointment was a couple of weeks after.

As they didn't SEE the fucking reaction, as this was at the same time as DS1 had his appendix out, (they provided emergency care for DS3), apparently he was 'fine'.

LIKE FUCK.

We fucking isolated him upstairs in one room with my Ex as we were petrified of DS1 catching a tummy bug post appendix op for FOUR FUCKING DAYS.

He would have been better in hours had we known he had been given milk.

Evil fucking bastards.

And they have been reporting back everything I have been telling them in confidence for the last EIGHT MONTHS to DS1's dad - wonder where SS have got all their info from...