Moose here - again. Following on from my epilepsy thread.

[moosemama]

Hi folks, we were up to 995 posts, so I thought I'd better start a new thread

How she could possibly say that based on your posts is beyond me. How exactly does she think you are likely to gain financially from having epilepsy?

Regardless of her knowing the name of your neuro, she has nothing to report, no evidence of anything untoward and they wouldn't listen to her if she tried it. Strangers are not allowed to comment on other people's private medical matters. She has absolutely nothing to report you to SS for either - you haven't done anything worthy of reporting.

I know how it feels though when people use online posts against you and even though it shouldn't, it does hurt and is hard to ignore. That's why I pm'd you to see if you are ok.

My best advice is to do just that though - when it happened to me I just disengaged from the so called 'friend' and didn't change anything that I was doing. I wasn't willing to give them that power over me. They backed off and I haven't seen or heard from them since - about 10 years now.

Blimey! As you said, she has her own mh issues and I think they come across very well in that message.

Please don't worry about it. You haven't given her any ammunition for anything, there is nothing on here that suggests anything other than someone trying to get to the root of a medical issue that's not easy to identify and dx. There hundreds of people in similar positions on many, many MN threads, mainly on the General Health boards - it's not unusual, we are not all textbook cases that nicely fit all the medical parameters and diagnostic criteria.

Dx and appropriate management plans take time often detective skills not dissimilar to those of Sherlock Holmes. You can't win, if you research it yourself you must have munchausens or something, if you don't and leave it to the medics, you spend years of your life undxd and struggling. It's a lose lose situation and that's why I've given up trying - just can't face wasting any more of my limited and valuable energy on trying to work out what's wrong, when I could be using it to live my life. As I see it, all I can do is do my very best to live as healthily as possible, so I am eating well, increasing my exercise and taking appropriate supplements and we will see where that leads.

Couthy posted on the Goose and Carrot thread earlier - she sounds run off her feet, but ok.

Am at bus stop waiting to get home after DS2's hydrotherapy. Second time at the hospital today - DS3 had a dietician appt earlier.

With friends like that, who needs enemies?!

(Been there, just cut two people out of my life as dead weight...)

SW had to cancel the home visit she was going to go yesterday, answerphone message said she would hint act me up rearrange.

Still haven't got the minutes from the CIN meeting, will have a chance to chase them up tomorrow.

DS2 is getting Piedro's and inserts from the Orthotist.

I'm just shattered at the moment, constantly zipping from one appointment to another, and my joints are really bloody painful.

I just wish the Naproxen didn't turn me into a space cadet - I daren't take it whilst being on my own with the DC's, I don't take it until after I've cooked dinner. I'm meant to take it 3X a day, but usually only take 1 a day because of the side effects.

Just have to try to cope with the pain and not cry the rest of the time!

That sounds disturbing leonie!
A taking the bull by the horns and going to try and see the decent gp on Monday (she on,y works 3 days) and ask to be re referred re my lupus test and will ask if I can use Dhs bupa.
I've had enough of this shit.

Couthy, Naproxen does that to me as well. I only take it after trying a full dose of co-codamol even for the worst pain and then only if I can sleep it off.

Don't you let her make you think you have to be in work to be valuable and worthy of using resources. The Government clearly doesn't agree and how many British women stay at home while their dh goes out to work - regardless of having dcs? Should they not be entitled to NHS care as well? Tis just vile, UKIP style racist bile and not worth a second of your - or anyone else's attention.

By her reasoning, I shouldn't be allowed to access the NHS because I am a SAHM, despite having worked and paid in for years before I ever had children. She would make that judgement knowing nothing about my dh and how much tax he pays etc.

Come to that, I'm pretty damned sure none of my dcs have ever worked a day in their lives - yet here they are using essential services as if they were entitled to or summat!

Def UKIP thinking, if not just a heartbeat away from BNP.

Co-codamol does it too, though. I tend to get by on ibuprofen if I'm desperate during the day. At least that doesn't turn me into a space cadet.

Wish it was safe for me to sit in a nice warm bath, it would ease my joints so much.

A shower with a mixer tap shower head (SOOOOO not a proper shower...) just doesn't have the sane effect...

I'm going to wrap myself in heat pads I think!!

Cocodamol makes me tired, but I can work through it and keep going if I have to - Naproxen really knocks me out.

Have you any topical gels or anything Couthy? My mum has feldene gel and she says, although it doesn't get rid of the pain, it definitely eases it and makes it more bearable. She has both RA, Osteoarthritis and hypermobility.

Can you get him to grab his mobile and video it next time it happens Leonie? My neuro actuall asked if dh could do that, as he said video really helps identify types of seizures etc.

You need to report it to Facebook and then call 101 and ask them for advice.