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Moose here - again. Following on from my epilepsy thread.

638 replies

moosemama · 14/03/2013 16:45

Hi folks, we were up to 995 posts, so I thought I'd better start a new thread

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LeonieDelt · 19/04/2013 19:00

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moosemama · 19/04/2013 20:19

That sounds like your answer then? Get the other things sorted and settled first and then revisit tackling the epilepsy.

Well, we got through one evening with no ds2 - now dh is tackling bedtime. He reckons he may end up sleeping in ds2's bed tonight and tomorrow though.

Ds1 just told me there is a group of boys at school who are ganging up on him to make him do silly things. He said they promised to tell him something amazing if he did it, but he actually did it because he felt intimidated as they were all surrounding him and pushing him to do it. This time it was just embarrassing himself by making a loud roar - but it's the thin edge of the wedge if they realise they can intimidate and manipulate him like that - bloody text book bullying of a child with ASD, as per Attwood's book.

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LeonieDelt · 20/04/2013 07:50

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moosemama · 20/04/2013 11:20

Sounds like a plan.

Me too - I hardly seem to get more than a couple of hours a night these days and then it's often not consecutive.

Dh says while I was ill the other day I was falling asleep but semi waking to turn over roughly every 30-45 minutes. It's no wonder I'm knackered.

Am on the verge of yet another migraine this morning - shouldn't be on the laptop really. Have taken painkillers, but they've just kind of pushed it further back into my head and it's lurking there, waiting to come out and attack. Period feels imminent though, so it all makes sense. Iyswim.

Dh had taken the two remaining dcs to Pokemon League and I should have peace and quiet but the dogs are whining at being left behind. Hmm

Been invited out to lunch with my family today and it's a beautiful sunny day, but I'm really not sure I'm going to make it - can see me having to crawl back to bed shortly. Sad Angry

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CouthySaysEatChoccyEggs · 20/04/2013 18:39

I'm really scared about this SS thing. I don't want to lose my DC's just because I tried to fight for the help that they should be getting anyway.

Sad
LeonieDelt · 20/04/2013 20:29

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LeonieDelt · 20/04/2013 20:30

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LeonieDelt · 23/04/2013 17:21

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CouthySaysEatChoccyEggs · 23/04/2013 17:35

See my 'hand holding needed' thread...BAD day & a massive attack of the guilts...

LeonieDelt · 23/04/2013 18:14

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moosemama · 23/04/2013 18:29

Couthy, have posted on your other thread. Absolutely nothing to feel guilty about - you did everything right.

Also don't start feeling guilty about the possibility of it being epilepsy. Even if it is, there is nothing to say that it was inherited, so don't waste your energy feeling guilty about that.

((more hugs))

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LeonieDelt · 23/04/2013 19:03

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CouthySaysEatChoccyEggs · 25/04/2013 12:20

Gynae consultant's letter worked - I have my DLA back (for now).

I now have LR mobility and MRC.

They've only awarded it until the start of October THIS year though - so got to go through it all again in 6 months time.

I'm assuming that they've done that because I'll have seen the Neuro by then...

Now I've got to ring IS again to sort my disablement allowance on top of my IS, and the backpay for that...

So a small YAY! Grin

moosemama · 25/04/2013 17:08

Glad to hear you have your DLA back Couthy.

I have had a truly horrible day.

We saw the vet on Monday and agreed to have my old girl's chest xrayed, because her breathing seemed a little odd and she had been coughing. Vet said at the time that she was happy that she was comfortable and there was no urgency.

Tuesday she was much more restless, more coughing and since then has been less keen to get out of her bed to go out. This morning she didn't even get up when I picked up her harness and lead.

Took her in for her xray first thing and when we arrived the vet said she felt the bad leg was unstable, which it hadn't been when we last saw her on Monday.

They were hoping to do the xrays with her awake rather than put her through a GA, but in the end had to sedate her.

Xray showed lots of lung mets and that she'd sustained a pathological fracture to her bad leg. It would only have taken a slight knock or twist with her bone as badly damaged as it was by the tumour.

The vet gave her an injection of painkillers and kept her sedated and Dh came straight home from work. We both held her while they put her out of her pain at half past twelve this morning. Sad

It's been a long hard day and our other dog has covered the kitchen in slobber through the stress of being on his own at home for the first time ever in his life. He was howling really loud when we arrived home. We took him for a long walk this afternoon and he's calmer now, but very sad. He's spent the last three weeks trying every trick in the book to get into her new memory foam bed at every opportunity, but today he hasn't tried to get in there once, even though it's empty. He's a sensitive soul and I think he's likely to be the type of dog that grieves, we are probably going to have to do a lot of work to get him through this.

Unfortunately he was also rushed into the vets on Monday, as he was dripping blood. We had both dogs there at the same time and the bill came to an eyewatering £178.00! Shock He had lots of tests and checks and it seems it's his prostate. Fortunately his urinanalysis didn't throw up anything worrying (no stones or signs of cancer - thank God) and his symptoms seem to have stopped since he's been on meds. As he is entire, he was given an injection to reduce/remove his testosterone for the next 6 weeks and is on antibiotics and anti-inflammatories. Basically it means we will have to have him neutered to reduce his testosterone, as that's what's feeding the prostate problem. Ironic really, as the reason for not neutering large breed dogs is because it increases their chances of getting osteosarcoma. Hmm Sad

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LeonieDelt · 25/04/2013 18:07

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CouthySaysEatChoccyEggs · 25/04/2013 18:12

TAC meeting turned into a CIN meeting between when SW told us about it and the actual meeting.

NOT happy. Will moan later!

(((Hugs Moose)))

LeonieDelt · 25/04/2013 18:34

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moosemama · 25/04/2013 18:43

Thanks guys.

Couthy, you have far bigger worries than me - you moan away if it will help.

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CouthySaysEatChoccyEggs · 25/04/2013 21:58

Still processing, will explain when sink in. A 4+ hr meeting is not easy to process instantly.

NoHaudinMaWheest · 25/04/2013 22:56

(((hugs))) Moose so sorry about your dog.

Couthy oh no! 4 hours is a true marathon regardless of content. So sorry you have been messed around again.

LeonieDelt · 26/04/2013 10:23

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CouthySaysEatChoccyEggs · 26/04/2013 23:52

One thing that sticks in my head, from the Secondary SEN lady (not the SenCo, but have seen her before regarding DD), is that she described my DD as having 'moderate Learning Difficulties'.

Which has never actually been spelt out to me before. So they DO accept that DD has moderate LD's.

Hmm...

And the Primary HT's insistence if the phrase "quirky" to describe DS2 as well...

CouthySaysEatChoccyEggs · 27/04/2013 00:04

They kept going on about my 'insistence on labelling the DC's difficulties and looking on the negative side of their many medical issues'.

Yeah, so shoot me for wanting to know WHAT caused their issues in order to effectively target help...

Tbh, the more I think on this, the more peeved I'm getting.

Another thing that is bothering me is to do with the psychotherapy thing. Apparently the GP has told the SW that I need to go to a specific place for psychotherapy rather than seeing the 'counsellor' attached to the surgery - yet he has said nothing to me, referred me TO the lady I was seeing, and you know that I phoned her FIRST to check out that she was a qualified psychotherapist, don't you?!

Why is the GP discussing MY treatments/referrals with the SW before discussing them with me?!

GP didn't even attend this meeting.

I find it hard to see why the SW's would tell me it was a TAC meeting when it was, in actual fact, a CIN meeting too.

And the 4 hrs without a break was awful, it really was. I was in tears by the end of it, getting berated for the fact that I drink energy drinks (!).

Yeah, I drink cheap red bull - I don't touch alcohol, and I don't take drugs, and I don't drink coffee, tea or coke.

Apparently it makes me a 'bad role model'.

On the plus side, I don't neglect the DC's...

LeonieDelt · 27/04/2013 08:39

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CouthySaysEatChoccyEggs · 27/04/2013 12:46

Lost a massive post. Bums. Will rewrite it later.

Finding out that the HT has reported me to SS no less than 3 times in the last 5 years is a bit off-putting. I have to send my DC's to a school where I don't trust the staff.

Also I think SS want a full psych eval done on me.

This is definitely FII they're looking at, I'm sure, even though they haven't stated this. They all agree that I do not neglect my DC's, they're well fed etc.

It seemed like the only person even slightly 'on my side' was the chief medical nurse who I've never seen or met before.

She was the one who asked for a break for me (HT refused), she was the one who went to the toilet with me and reassured me in there, she was the one who challenged the HT to define what he meant by saying DS2 was 'quirky', she was the one who was shocked that I had never been told that DD has MLD, she was the one who asked the SEN lady to 'quantify' DD's specific learning difficulties, and took notes when the SEN lady was unable to quantify her MLD's, she was the one that is pushing for a full paediatric assessment on DD.

At least it seems like one person is on my side!!