Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

autistic boys body recovered from river

45 replies

Jimjamskeepingoffvaxthreads · 17/04/2006 23:15

Another one of these Helen Rogan cases :(

\link{http://news.bbc.co.uk/1/hi/england/manchester/4915482.stm\link here}. Awful- and still services don't improve.

OP posts:
FioFio · 18/04/2006 16:34

This reply has been deleted

Message deleted

Blossomhill · 18/04/2006 16:36

Giddy :( Your post really touched me xxx

Saggarmakersbottomknocker · 18/04/2006 17:59

giddy Sad

jenk1 · 18/04/2006 18:11

Giddy, dont know what to say, just Sad for you

Piffle · 18/04/2006 18:15

Sky news today was saying how badly Ryan was bullied, hot with bike chains, jeered and spat at, at school...
It is just to much for some people to cope with thsi sort of pressure.
The say the cctv footage shows two figures jumping seconds apart :(
Devastating indictment of social support services, and depression monitoring.

NotAnOtter · 18/04/2006 18:21

Giddy Sad hugs for you both x

Pisces · 18/04/2006 19:07

Suicide is very easy to do when you are in an absolute state of total depression. The hurt you are feeling (and it is a physical painful hurt as well) is enormous but you don't realise just what it is at the time. All you think is that there has got to be a way that is less painful than what you are going through at the moment. Your thoughts are very irrational but to you at the time, they are like commonsense but of course they are not......

I know, I've been there. Why did I feel suicidal? Because my son, then aged 9, had tried to kill himself, to strangle himself. He could not stand the pain he was going through. His pain? He was an undiagnosed child with Aspergers. He was ridiculed at school, bullied, tormented by his teacher for being a "naughty boy" and all he wanted was love and understanding and it drove him to a total breakdown. Eventually he was diagnosed correctly, along with Clinical Depression and an Anxiety Disorder by CAHMS.

A mother's love for her child knows no bounds. A mother feels that child's agony but is helpless to do anything about it. I could not take away his hurt and pain just like that and when it was at its peak, then that is when the walls came tumbling down. I wanted to take him away, to protect him, to remove his hurt too. I felt no one in the world could possible understand any of this, I wanted him to have no more hurt.

I got help but not from the professionals. From an internet group set up by parents for parents of children with autism. I found it by accident. It was the best accident I have ever had. They talked to me, emailed me, wrote to me, telephoned me and all because they COULD understand the pain we were going through. They helped with school, they helped with DLA, they helped get the right support, in fact they helped in a million different ways and still do.

That was two years ago. Today is a different story. He is a happy, bright, intelligent little boy. He came off his anti-depressants at Christmas and so far so good. School, home and everything has improved tremendously but I have to say that it was not because of the help we received from the government or any other professional. If I had not found that site, then I wonder if my son and I would have been here today.

I for one think that there is an awful lot more that can be done for families. I hope that this investigation highlights the shortcomings.

And sometimes, just sometimes, when a person is mentally ill through sheer depression and stress, then they themselves do not realise that they need help and that can be the most critical time of all.

This poor mother and her son have died needlessly. She was crying out for help, she had threatened suicide before. Why did nobody hear her call?

homemama · 18/04/2006 19:18

So Sad
What sort of a society are we living in where people who are supposedly in the system and being helped are allowed to become so desperate that they see death as the only answer. Sad
Shame on SS!

Jimjamskeepingoffvaxthreads · 18/04/2006 19:28

giddy- I know exactly where you are coming from....

Fragile X/autism for all intents and purposes the same thing. Every child dxed with autism in our borough is checked for Frag X.

OP posts:
expatinscotland · 18/04/2006 19:31

i have not thought of taking my child with me, but i have considered killing myself when i had PND. was ill enough to start thinking of it very clinically and in a detached manner - thinking about the practicalities: something that would really result in death, etc.

anyhow who gets this sick is NOT thinking rationally at all. they need help, not judgements.

NO ONE would chose to feel like that.

expatinscotland · 18/04/2006 19:32

you start to think of death as a relief, a blessing, a release and truly don't fear it all.

this poor lady must have felt so isolated, so alone, so truly desperate. and her son with her.

homemama · 18/04/2006 19:59

Expat, I'm sure that was how she was feeling but why was she allowed to sink so low? Sorry if this sounds trite but surely parents of disabled children often need as much support as the children themselves.
I don't see how anyone could possibly judge her, she must have been in such dispair.

Davros · 18/04/2006 20:11

What gets lost/forgotten is that parents of children with disability (especially Autism it seems) have depression as a result..... it is not the other way round (usually). I actually think the services, benefits and support in the UK CAN be very good... what you're entitled to is a damn sight better than many other places, just getting it can be so hard and making it work for your family. Direct Payments are a genuine attempt to do something about this but its very hard to get on top off at first. The real help parents and their disabled kids get comes from other parents imo.
I have seriously thought of "jumping" and taking DS with me sometime in the future, when his life becomes completely unenjoyable for him if that ever happens. My experience so far (and he's not 11 until August) is that at each stage of his life so far, things change and develop and I find ways to manage and get support, so I'm hopeful. But at nearly 11 he's still got a hell of a long life left and who knows how it will be? THe object would not be to kill myself but to kill him AND me, that is actually the point. I'm not remotely depressed at the moment, this is something I've thought about rationally, if its rather a fantasy though iyswim.

FioFio · 18/04/2006 21:38

This reply has been deleted

Message deleted

Davros · 19/04/2006 11:04

The NAS and Fragile X Society have sent a letter to Editors which is in the Guardian today and maybe some others.

desperateSCOUSEstrife · 19/04/2006 11:05

There is a good article in the daily mirror today if anyone is interested
from another mum who feels isolated and desperate etc.

giddy Sad and hugs babe
xxx

ruty · 19/04/2006 14:14

having a mum with dementia and seeing how the social services just let my dad get on with it to the point where he was depressed and struggling badly is one thing. But to let a mother and her son get to this point is just scandalous and so desperately sad. And so little about it in the media, just blank acceptance of the situation. Angry

heartinthecountry · 19/04/2006 14:22

The article in the Mail is written by Charlotte Moore.

heartinthecountry · 19/04/2006 14:23

Sorry, should have been 'There is an article in the Mail today by Charlotte Moore'

SaintGeorge · 29/04/2006 23:52

Sad \link{http://www.thisishull.co.uk/displayNode.jsp?nodeId=197370&command=displayContent&sourceNode=197368&home=yes&more_nodeId1=136245&contentPK=14407050\update} to this story.

New posts on this thread. Refresh page