I've been banned again!

[SadIndigo]

FFS. MN HQ has banned me again!

It appears there is one rule for everyone else on MN and one rule for me.

Apparently you're allowed to discuss everything on MN - except how to cure dyslexia. :( (Because apparently that subject is distressing to parents of dyslexic children)

So, I lose the support I need.

And MNers lose information about treatments that work for dyslexia.

I've made some good friends on here and provided and received lots of support and information and advice.

But this time I'm really going. MN HQ are a law unto themselves and they can't be reasoned with.

If you post nasty replies to this thread, please be aware that of course I will be reading them, and of course they'll hurt.

Indigo Bell

Yes lougle this email copied here does but obviously her prevention/banning of posting was done before this email. Hence probably why the confusion and misunderstanding? Like you said it can all be based on perception x

She is also being asked to back down on a belief. Maybe one day there will be a "cure" who knows. There are more cancer cures, successful heart ops prolonging of life meds. Penicillin (who was willing to believe that would work ugh!) If everyone was afraid to speak out or have belief in something, then there would be no moving forward for anything.

Which is why an open mind is sometimes the better route to take. I truly hope for Indigo that her methods reach others and it becomes a national thing. It would be good if then everyone could eat their hats. If it doesn't work then there still is no loss other than move on and research something else.

Thank goodness every scientist or researcher never gave up at the first hurdle....

Zzzz...I know...red flags in my last post started out as "red fangs" thanks to the bloody iPad! :)

Well, off the bath the kids now.
I wish all of you and yours a very merry Xmas and peaceful new year x

Merry Christmas Badvoc I too am off to soak a grubby child!

I believe she did use it, not sure if she advocated it.

And also honk honk honk honk from over here. Now that I have wrapped the prezzies I feel more serene and Christmassy (last day of term tomorrow, yey!!!) so more honks honk honk honk

Xx

Don't recall her mentioning homeopathy merlincat.

Merlin...indigo has very recently started using homeopathy.
It's quite a new thing so I don't know how it's going for her.

You are welcome Imogen.
I really hope 2013 is better for you x

..and I can report dc are much less grey than they were :)

See, I do struggle with all of this. In one sense, I can see how frustrating it is to have the 'evidence' of a child who is better and for people to doubt. Then, on the other hand, I see the fact that it is all so subjective.

Another example:

Last year, in Yr 1, DD2 had 12 weeks off of school. She had every bug going, chicken pox, peri-orbital cellulitis. Oddly, she suddenly got better when the cellulitis came and she had IV antibiotics. Blood tests at the time showed low IgA levels.

This year, her IgA levels are still low, and her paed wrote to the GP saying 'if DD1 gets lots of bugs, please start low-dose antibiotics.'

Well, DD1 has had 1 proper bug since September. She is loving school and keen to go, even if she seems under the weather.

If I had started a GAPS diet, or done TH, or started supplementing or whatever (this isn't exclusively about TH, is it? It's a general principle) then I may well have attributed her improvement to the dietary change/TH/supplements, when actually it's none of those things.

Lougle.
Cellulitis?bloody hell, your poor dd!
My son had to have a low dose profilactic AB every winter for the last 3.
This is his first year off them since he was 6
I think I see what you mean...and no, supplementation is not just a TH thing...I am very glad your dd is better, but if she needs the ABs in future, they did make a massive difference to ds and I regret not letting him have them sooner (I sort of fell for the whole ABs are evil line touted by most GPS. Luckily ds's paed was ace and convinced me!)
I sort of do TH "lite" tbh...I don't follow the diet to the letter as ds1 had a pretty good diet to begin with, at least he eats no sweets, choc, fizzy drinks etc. I do do the supplementation and we have done the exercises and the eye tracking and convergence programmes. No problems with any of it.
Indigo and a couple of other posters in the TH thread have done LOADS more stuff with their kids...oxygen therapy, BO, biomed, homeopathy, ait, rrt etc
Some works, some didn't. I know indigo regrets going to a BO.
As for ds's progress being subjective...I don't really know how to answer that tbh.
The only thing we have done differently from this same time last year is TH.
So no, I don't think its coincidence/sudden onset of age appropriate ability.

@Badvocsanta

Indigo has asked MNHQ more than in the to point to exactly which thread it was they have issues with. She has asked for a list of phrases and words they want her to refrain from using. They have still not replied. She has just had enough I think.

Well, that is strange, Badvoc. As far as I'm aware, we haven't heard back from Indigo since our mail to her (pasted below) on December 18th.

I think she was referring to the last time MNHQ?

Indigo is emailing now MNHQ to clarify her stance.
X

I think classic autism is genetic

I think developmental delay syndrome causes many symptoms that can present and be dx as OCD, dyspraxia, dyslexia, asd and ADHD

That sounds like you are saying only classic autism is 'real' autism, that if you don't have classic autism then you aren't really autistic.

Ive just written then deleted a long post, not much point really as it is only your opinion and you've said your child doesn't have a dx of autism anyway, but mine does and I find what you've said quite offensive/upsetting.

Had page open while I did dinner, massive cross post with everyone.

Amberleaf - I am not surprised you find such sentiments dismally depressing but, as you say, they are opinions not research based assertions. I would add that they a opinions which fit a particular 'world view' of these issues.

My opinion is that TH is pure quackery which has been exposed in the media before and the 'doctor' in charge has been subject to disciplinary proceedings by his professional body. But if people want to give him money, then that is their choice. Let them get on with it. Each to their own, and as long as they are not harming anyone else, let people do as they wish.

However, I really draw the line at aggressive proselytising for an organisation with a dubious background and I would expect responsible forum supervisors to step in in such circumstances.

To be honest, I haven't really got a clue why this thread has been started. Indigo should sort it out with MN if she wants. If she doesn't and chooses to leave because she wants to continue doing what she has been asked to stop doing, then I'm not sure what we are supposed to do or say about it.

Ok, this is my last post on this thread.
Amber. No that isn't what I am saying actually. I am saying that developmental delay syndrome which not all children have, but my ds did can present as those conditions.
Please actually read my posts and don't just focus in ine or two words or a sentance in isolation.
As I said its just my opinion.
Your opinion about TH upsets and depresses me. Its as if you think my sons huge leaps in all areas - as seen by family, friends, teachers, senco, etc - are somehow a figment of my imagination!!
Inappropriatelyemployed...your statement re robin refers to the Daily Mail of all papers attributing a professional qualification to him without his knowledge.
Ben goldacre is also pretty scathing, but then again he is pretty scathing about a lot of things and, generally, is not too well thought of on MNSN.
Indigo is e mailing MNHQ as I stated above.
So perhaps we should leave it at that?

You didn't say your statement was just about your son though, you said I think developmental delay syndrome causes many symptoms that can present and be dx as OCD, dyspraxia, dyslexia, asd and ADHD it sounded like a blanket statement not one that related to your child only.

Your opinion about TH upsets and depresses me. Its as if you think my sons huge leaps in all areas - as seen by family, friends, teachers, senco, etc - are somehow a figment of my imagination

I haven't given an opinion about TH though.

I just don;t want to be judged for not trying it!