Hi all, chez sign is smiley this evening as...... ta da!!! we went to fireworks yesterday, as a family!!!
. I love them, but dh can't stay vertical and ds can't do noise and crowd..... well yesterday we did,
found local small show, got disabled parking and dh took his walker and sat, ds had woolly hat, ear defenders and lots of reassurance, but loved it,
first proper family outing that everyone managed and enjoyed for longer than I can remember, (couple of years) . so thrilled.
dh had neuro appnt this week too, consultant just confirmed all the weird stuff is just part of the progression of his CMT
but physio had some good useful suggestions and they will review in Jan, so that was really useful.
ds birthday 'party' tomorrow, (treasure hunt in teams, so not too many people all at once then back to hall for food.) Eeek!