Making hay while the sun shines and always adoring Beatrice.

[cupofteaplease]

I have chosen the thread title this time, because current circumstances means the sun isn't always shining for Beatrice at the moment. Indeed, she is currently in hospital in a fair amount of discomfort. However, when the sun does shine, and we have bright and clear days, we pack in as much as we can.

When we brought Beatrice home from SCBU, we had the consultant's words ringing in our ears, 'Take her home and make some memories.' I feel confident and proud that we have made a treasure trove of memories, however long Beatrice's life may be. She continues to be surrounded by so much love and adoration from her family and I feel this love has helped her to thrive.

During the difficult days, such as these, we pray hard for peace and calm, and for a quick resolution so we can take our darling girl home and make even more precious memories with our beautiful Beatrice.

As with all other threads, same rules apply , read if you want to, post if you can, but above all, please spare some positive thoughts or prayers for Beatrice.

boomdecker I am taking the girls to Weymouth to stay on a Haven site for 4 nights. We were awarded Thomas Cook vouchers through the Family Fund. Dh hasn't got any holiday left this year so he can't come, but I'm hoping a friend will come with me... I ought to find out which is the nearest hospital in case of tube problems etc!

Good news about the oxygen

I was watching the Olympic sailing today and drooling over the Dorset coastline and saying to dh that we must visit Weymouth sometime. Hope you all have a really fab time

We are gong to Dorset this year too.

So glad to hear B is feeling better now it is not so hot.

There is Wemouth community hospital but I think it may be quite modest. Bournemouth has a bigger hospital but it may be Southampton that would have the paeds expertise. You could get the community nurse bod to find out for you. I've taken calls at work before for patients who do a home based dialysis treatment and are coming to the area on holiday. They do everything for themselves but they just want to know where we are and how to contact us if things go pearshaped.

So pleased Bea's happy in cooler climes.

Well done Bea!

Cup I haven't been on one of your threads for a very long time but I just wanted to check in and tell you how thrilled I am that Bea is doing so well :) Enjoy your holiday xx

Have a great holiday cup, sounds like Bea is coming along nicely, it'll be nice for you to get away with all 3 of your girls, shame your DH couldn't make it but I'm sure you'll have a great time.

Lovely to catch up with the Teaset.

I am currently planning Beatrice's first birthday party and I must admit I am just a little bit excited!! 6 weeks and I just know she is going to get there and have a fantastic day (well, we will have a fantastic day, she can enjoy the cuddles and laughter). I am thinking of hiring the barn where dh and I had our wedding reception and decking it out for a tea party with cakes, tea, bunting, fairy lights etc. I can't wait! It takes the edge off the fact that she was excluded from her first party yesterday. There is a group of mums who all had babies around the same time and we meet up regularly. One of them (the first of the group) turned one yesterday and she had a 'party' for her at a soft play. All the other mums and babies were invited, except Beatrice I wonder why...

Ahh soft play places are stinky, noisy & horrible places anyway.
Maybe the mum just didnt know if she should invitte Beatrice or not, i've found over the years that there have been occaions where ds2 has been excluded rather than included to spare oure feelings... rubbish i know but sometimes people dont know how to deal with difference.

Your party plan sounds fantastic, but OMG 1 ALREADY!!!

Their loss cup
Bet their babies don't have a humongous fan club.
But I know it hurts. All of with kids with SN know that feeling.
How exciting, a birthday party in a barn!

There is no excuse for not inviting her!

Will you be inviting that mum?

What size clothes is she now?

When is her birthday?

Oh thanks ladies, I knew you'd understand! The annoying thing is, she's been to that soft play umpteen times with her older sisters. I know she can't join in (and I wouldn't let her touch the germy equpiment- Precious Third Born alert!) but I would have enjoyed a cup of tea and giving the birthday girl a big cuddle.
Anyway, Beatrice's birthday is 16th Sptember, but I'm planning to party on Saturday the 15th. I guess I will have to invite that mum, we are all part of the same 'group'. She is currently in 6-9 month clothes as she is 17 and a half pounds and incredibly long!! Unbelievably, we are about to change her milk to Nutrini as she has gained too much weight in a short space of time. I know, I know- after all that worry of her being tiny and fragile, she is now on a diet .

Well, its their loss! Bea's party sounds wonderful! When is her birthday?

that she is on a diet!!

Low fat sugar free fairy cakes then for Bea!

It sounds fun! Hard to believe a year has whizzed by. She will have a great time as will all of you I am sure. I would invite the mother if it only has the impact of making her squirm that she didnt invite you lol

Have fun planning the big day! x

Hate it when you don't get party invites. Even if it's completely unsuitable it's polite to send one anyway. I'm not sure I'd have the grace to invite this mum to Bea's party, but you are obviously nicer than me!

On a diet! Haha! I can't believe she is going to be one, the little star.

There are no words for that other mum's behaviour I hope she feels bloody awful sitting there at your superior party!

Wow! Can't believe it's been nearly a year already! Doesn't time fly! I remember your first thread when things seemed so bleak and now here you are planning her first birthday party! Her party sounds fantastic - she will love all the cuddles and attention and the fairy lights.

Oh wow - a year old! Proper celebration in a few weeks' time then and sod those who don't invite Bea to their parties - good job we all don't 'know' you in real life or she'd be going to parties every day of her life..!

Aww !! Bea the Birthday girl to be !!

More :)

The birthday tea sounds fab Cup, that mum and maybe the group sound very insensitive :( a the 'diet'

found you again!

wow almost one already how time flies! and at her weight that is just fabulous!

so pleased to hear she is doing well and cant wait to hear about her birthday celebrations! :)

A year

Let's have virtual party on here at the same time.

Agree you should invite the other mum and adopt the moral high ground.