Not borrowing trouble ahead of time, just enjoying each day with Beatrice.

[cupofteaplease]

Thanks to Thumbwitch for inspiring the title of this new thread.

I will do my very best to minimise my worrying about the future as none of us know what it holds. For now, it's all about celebrating Beatrice's life today, every day.

As always, please feel free to follow us on our journey, and thank you in advance for the wonderful advice I am bound to receive from fellow parents, of SN children or otherwise.

Here's to a positive, uneventful thread!

theat good news Bob. You are ight about Bea being a fighter!!
Positive thoughts heading her way

Good to hear the updates, still praying for you all xxx

Thanks for the updates. Sending positive fighting vibes to wee Bea x

Thinking of Brave Bea with the bright eyes and the beaming smile . Sending all good wishes.

Prayers continuing...for all of you.

Thanks to Bob and Cup for updating. Come on Bea, keep fighting, you can do this, I know it xxx

Sending my thoughts and prayers.

Much love to the Teaset.

Pah to the rough time but glad some positives. X

Glad to hear she is feeling brighter.

ahh good news x

Thinking of you all. Xx

Love and prayers xx

Glad to hear she's a bit brighter.

Thank you for the updates Cup & Bob. I didn't mean to hassle Cup - I was just getting very worried when you hadn't posted at all... awake & posting at 3.30 in the morning and all that stress, you must be exhausted x

It's good to hear Bea has improved - sending more love and strength to our little fighter! xxx

A nice, uneventful day all round. Bea has slept a lot but I think she's just resting to get better. When awake, she's been more responsive than at the weekend, when I got quite upset to see her so distant.

Weight wise, despite the lack of NJ tube for 12 hours, then being fed only dioralite, I was pleased to find out she's still gained an ounce at 9lb 14oz.

The duty consultant said we are watching and waiting, but she hopes we'll be able to go home later this week.

I think I am going to stay at a friend's house, she lives 10 minutes from the hospital as opposed to 25 mins to my house. That way, I can have a full sleep, but get back quickly if needed. I can also have a good shower! I feel like a pretty crap parent going home, but I've noticed other parents of long timers don't stay overnight. Also, I asked the nurse if I could leave for an hour earlier to get some fresh air and buy some dinner, and she said no, they were too busy to watch Bea whereas the night nurse asked if I was leaving...

Thanks for staying with me, thanks Bob for updating, thanks Chipping for reminding me you all care and want to be updated

Glad things have improved cup.

What a cheek of the nurse who said they were too busy to watch Bea. You are not obliged to be there to care for your child - that is their job - it is just that most parents choose to be. I do hope that happened to be a one off and that they had a good reason (eg an emergency to deal with) which meant they were struggling to fulfil their role. If that happens again, I would complain & report to PALS if necessary. When do they expect you to eat????

Good that you've got somewhere you can stay close by. Always better to sleep in a proper bed without the hustle and bustle of the ward. I never realised how much noise stirring a cup of tea could make until I tried to sleep on a children's ward. Was close to leaping out of bed at one point and asking the night staff if they could use plastic spoons to stir their drinks!!!!

Hope you get home soon.

Hey cup

I'm pretty sure you'll never be put in the rubbish parent pile so don't be too hard on yourself, everyone needs a break.

I'm glad today was better and little bea is continuing to aim for the double figures. Hope she continues to gain strength and you manage to get some rest

Love and hugs to you all x

at plastic spoons bigbluebus!!!

Hi Cup - I hope you are now tucked up in bed at your friends house :)

It is really good to hear that Bea is more responsive!!

She is soon going to be in double digits. Little porker!!

That nurse sounds like a real charmer

Lots of love
xxx

Don't ever feel guilty about attending to your own needs, cup - sleeping and keeping clean are hardly indulgent luxuries. Glad to hear your little cherub is still gaining weight.

Glad to hear things are better for Bea, love and prayers x

Thanks for the update cup pleased it was a better day.
Glad night nurse was better than the other one hopefully she was just having an off day otherwise when does she expect you to eat ?
As others said don't feel guilty for looking after yourself Bea needs you healthy and rested x

Cup, you are right to take a break away every now and then.

I can't believe that the nurse said they were too busy to watch Bea while you nipped out; it is their job to watch the children who are in their care and not rely on parents being there (many can't be). I I would have stayed too, but I would be talking to the Sister in charge/ward manager and PALS about it.

Glad to hear she's much more responsive Cup. I think going to a friends for a hot shower and a good nights sleep are fine ideas and will leave you feeling much more able to cope with everything. at the nurse saying she was too busy to watch Bea! Hope today is another good day xx

Glad Bea is more herself Cup and gah at that nurse's attitude.