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Tinsley House Support Thread

980 replies

IndigoBell · 16/02/2012 01:55

An awful lot of us are now doing Tinsley House, either by going there, or by following the recommendations in The Brain Food Plan

So this is just a general support (and hopefully good news) thread.

Stage 1 of the TH therapy consists of:

  1. Multivitamins
  1. Healthy eating diet
  • High protein, low sugar, no artificial sweeteners, additives etc.
  1. Specific exercises done 3 times a day
OP posts:
Badvoc · 14/09/2012 07:27

He is a different child!
Obv.
Bloody auto correct!

Badvoc · 14/09/2012 19:25

Ds1 has come home from school today with the "star writer of the week" award for "great descriptive writing" :)
I am pretty sure by the end of next week he will be an independent reader too.
:)
This time last year he wasn't even using vowels in his writing!
:)
Sorry but am :)

shoppingbagsundereyes · 14/09/2012 19:59

Bloody brilliant Badvoc! So pleased for you and ds :)

Badvoc · 14/09/2012 20:51

Thank you shopping :)
Sorry my posts are a bit boastastic ATM, but it's so lovely to have things to boast about!l
It wil be you soon!
:)
Forgot that both dc have a picture entered in an art competition tomorrow!
Never thought I would see the day.......

shoppingbagsundereyes · 14/09/2012 21:10

I love the boastastic posts, really I do, they fill me with hope. We have had a pretty good week too. Ds started at new independent school. I was convinced we would have a really tough week as anything new is problematic but he has been amazing. The child who would not do writing or maths at all last year has been participating with nothing more than a bit of a moan. He did his first ever spelling test today- I was sure he wouldn't cope. When he is under pressure to get things right he tends to refuse to try at all. 16/20 entirely without fuss!!!
Teacher is fab, no nonsense but lots of praise too and I really think we may be coming to the end of six year's worth of daily meltdowns.

Beautifulpossum · 14/09/2012 21:22

Thanks Indigo and Badvoc... and well done to Indigo's DS and DD and little Badvoc! You are inspirational. We go back to Robin on 29th and I'm counting the days down- desperate to find out what is going on.
Badvoc- did you do any therapy before TH?

Indigo- do you think you would be where you are now without doing RRT first? Also, wonder if you think the Listening Programme or similar is needed after TH?

I plan to switch my two to GF/DF as have family history of celiac and DS was a terrible milk feeder as a baby. Hope it will help. Also, have arranged for a telephone appointment with Dr Goyals PA on tuesday.

DS had high levels of copper in hair report. Has anyone got any experience of this and wonder how relevant it is to DDS? Hair analyst thinks he was damaged by vaccines. Suggested DC only drink bottled water and cook with bottled water as we have old copper pipes at home. Told DH and he thinks this is going too far- I have to say our life seems so alien to what it was before DS went into yr 1.

Having a diet crisis. Loads of kids parties at the moments and DD sings in choir twice a week with party type tea thrown in. She told me she had a doughnut and millionaire's shortbread tonight. This will be a regular thing and wondered what THT thought?

Beautifulpossum · 14/09/2012 21:29

Hi Shopping...you posted whilst I was mid flow! So glad little Shopping has had a good week.

Badvoc · 14/09/2012 21:38

Possum..he did rrt and ait prior to th.
We started on our "journey" last march...we went to inpp at Chester for rrt. In may he did a course of ait.
Then in jan this year we started TH.
So all in all we have been doing therapies for 18 months.
In those 18 months ds1 has made such progress I dont really know where to start! :)
Ds1 had significant dev delay as a baby and undx iugr.
He had a tough first few months/years and just....well...you know how it is...Ill a lot, asthma, excema, delayed in all milestones.....
I knew early on that ds1 was dyslexic. And dyspraxic....in fact he still struggles with a knife and fork! ( but not for much longer!)
He can now:
Ride a bike, scooter, swim.
He can now sleep in his own.
He can draw and finds writing easier.
His imagination has taken off.
His health is much better.
He is just....ds1 but Ds1 who is fulfilling his potential iyswim?
That's all we want for them isn't it?
For them to be all that they are.
X

Badvoc · 14/09/2012 21:39

Oh, and the start of year 1 is usually when the shit hits the fan if you will excuse the expression!
With the advent of more formal learning our kids issues become much more apparent.

Badvoc · 14/09/2012 21:42

From my point of view, I am glad we did rrt and ait first.
I think ds1 has coped with th as well as he has because he did those first iyswim?
he was always hyper sensitive to noise...always, from being a new born.
My mum blames me...said I should have put the tv in when he had naps to get him used to noise..a hahahahahahaha...naps. Yeah. Like they happened :)

Badvoc · 14/09/2012 21:43

I also think that treats are important tbh...ESP for kids.
And I am pretty sure robin agrees.
Ds1 has flapjacks as his treat - and pizza!

DaftMaul · 14/09/2012 22:28

Wow! Your dcs have all been doing so well.

Ds has just started Yr 6 and struggled the first couple of days (5 lots of homework given on first day!) but then knuckled down and got on with it - which is quite unusual for him so we are hoping it continues!

We are due to see Robin tomorrow so will be interesting to see what we do next. I'd really like to have something to help his visual perception as that is one of his main areas of weakness.

Since returning to school, we have got back on track with diet and exercises - had a mega diet blip on holiday with sugar overload. He is definitely calmer when following the 'regime' but does need treats every now and again - a Friday icecream after school, homemade cake.

VinoEsmeralda · 16/09/2012 11:27

Indigo- yes we are doing stair exercises.

Both kids have taken to reading the food labels and been v good about the new way of eating. I cant agree more with treats, they both know they can have 2 treats a week and DD decided she will have birthday cake ( DS) and pancakes with honey& maple syrup for breakfast today.

She told me she felt happier whilst i was reading her her bedtime story.

So far ( food 2 weeks, vits& stair exercises 1 week) she seems calmer but that could be wishful thinking.She also has a great understanding teacher this year which should make a huge difference to the wet fart she had the two previous years. His approach, ignore or tell her she had to try harder and no empathy whatsoever. App it was her problem she didnt understand and not his teaching style.....

Badvoc · 16/09/2012 11:37

Ds1s Greek trireme project is in full swing:)
He has just hemmed and sewn a sail onto his mast :)
He just who'd not have been capable of doing that this time last year....
He was getting quite fast in the end...

Beautifulpossum · 16/09/2012 20:12

Hi Badvoc, thanks for your post.

Sorry- what is IUGR? I'm such a novice but thanks to you and Indigo am picking up speed now.

Badvoc · 16/09/2012 20:20

Iugr = intrauterine growth restriction.
Basically he stopped growing in the womb at about 34 weeks.
Was a bit of a shock to say the least when he was born at term weighing 4.5 lbs! He had lots of problems as a neo Nate and infant...feeling issues, missed all his milestones etc.
At one stage we were told he could be deaf and blind :(
We are in fact very lucky as a significant number of iugr pg end in stillbirth :(
He is 9 now, 10 next June and I cannot believe how well he is doing :)
But I well remember nights lying awake thinking about special schools, wheelchairs etc....it was a really lonely sad time :(

DaftMaul · 17/09/2012 08:40

We had our review with Robin at the weekend.

Ds' (eye) tracking scores are improving and we will continue to use the tracking program for a bit longer. Ds quite likes it, I think, because he quite quickly got to the highest level and felt that was an achievement.

We also have the Where's Wally exercise too and continue with the stair and toothbrush exercises. I am hoping that the HemiStim will help with the huge mismatch between his verbal and non-verbal scores/abilities - it would make such a difference to him and, hopefully, help to boost his confidence.

Interestingly, Robin suggested calligraphy as a good way to improve hand writing. We will try this after ds' exams in January (need to prioritise recommendations at the moment with so much homework coming his way!)

Back to see Robin again in 8 weeks.

DaftMaul · 17/09/2012 08:47

I also meant to say how lovely it is to hear of the achievements of all your dcs. It is difficult to remember where we all started sometimes and how far they have all come.

Beautifulpossum, my ds found the teeth cleaning exercise really hard too (made his leg ache, couldn't balance) but after a few weeks, he really improved and now finds it easier than the stairs!

Badvoc · 17/09/2012 09:19

I never thought da would get there with the stair exercise but he did...just takes time :)

shoppingbagsundereyes · 17/09/2012 10:07

We are still struggling with the teeth exercise tbh. He literally cannot stand on one leg and grabs me, the sink etc. I know I need to persevere with it but we are starting from zero. Stairs are going so well that I started backwards today. Useless! Will try again after school. He likes stairs as he gets the same number kisses as steps and is a soppy bugger :)
I am astounded that we have done ten days at the new school without a single melt down. At his old school he was regularly laying on the floor, purple, sobbing and yelling or running out of class. His new teacher says he has done no worse than moan when he doesn't want to do the work. Excellent new teacher but also TH to thank for that I'm certain.

Badvoc · 17/09/2012 11:12

That's good news shopping :)
Ds took so long to get the teeth and stair exercise right...weeks and weeks so don't worry.
It feels a bit strange as ds is only doing the eye tracking programme ATM, nothing else.
Wonder what we will get next time?

neverenoughtimemum · 17/09/2012 11:57

Hello everyone, I'm new to this thread though I've been following the blog for a few weeks now. Following the great advice on here I bought The Brain Food Plan at the beginning of August and began implementing the Vegepa and Floradix supplements, got rid of the junk food and started the stairs exercise.

As background my DS is 9 and struggles with dyslexic and attention type problems, particularly with spelling and maths. Its the no progress last year in maths and him being at level 1a and 2b by the end of the year that prompted to look for some other way of helping him. We've been paying for weekly lessons at Dyslexia Action for his spelling problems as didn't no where else to turn to. School have given little useful support apart from doing toe by toe with us.

I've now also booked an assessment in with Robin at the beginning of November. Unfortunately we live a long distance away so had been undecided about this at first.

I was wondering if anyone could tell me when you first began to see changes in your DC's learning. I've seen small changes in his attitude to doing homework and he amazed me last week by remembering to hand in to envelopes from his school bag last week!

Just wanted to say thanks to everyone for the great advice on here and its great to read such positive news from you all

Badvoc · 17/09/2012 12:00

Hi everyone.
I have some really sad news re: Indigobell.
MN has banned her because she has stated in some threads that dyslexia is curable.
I am sure you are all as saddened and disappointed in MNHQ as I am.
It seems you can says most things on MN, including personal attacks and disablist language and yet you can't say dyslexia can be cured.
Anyway, I would like to thank indigo for all her help and support during the last 2 years. Without her I do not know where my son would be now...
If any of you would like her e mail address to keep in touch, PM me and I will pass it on.

Badvoc · 17/09/2012 12:02

Never...welcome To the thread!
If you look on the TH website under feedback you will find my updated e mails to robin wrt my sons progress.
I guess it took about 4 months for the academic improvements, but les time for the health and sleeping improvements.
Good luck x

shoppingbagsundereyes · 17/09/2012 12:51

Badvoc yes please re indigo bell. What a bloody joke! I credit her and this thread for the life changing difference TH has made to ds already. Mumsnet will be weaker without her that's for sure.