Tinsley House Support Thread

[IndigoBell]

An awful lot of us are now doing Tinsley House, either by going there, or by following the recommendations in The Brain Food Plan

So this is just a general support (and hopefully good news) thread.

Stage 1 of the TH therapy consists of:

1. Multivitamins

• Omega
• Zinc & Magnesium
• Multivitamin

1. Healthy eating diet

• High protein, low sugar, no artificial sweeteners, additives etc.

1. Specific exercises done 3 times a day

Hi shopping Pate occasionally is fine (and v impressive!) however, make sure it is just occasionally due to the vit A content from the liver.

Ds1 still eats too much carb IMO BUT so much better than it was...we use gf pasta and I am switching to gf flour for baking/pancakes etc

hi everyone,

have been following this thread from the very beginning and VERY pleased most, if not all are seeing some good progress. I have also been following the approach with my DS for few months now but seen no progress, if not a little regression.

DS has always had a fantastic diet,protein based, little to no sweets, GFCF and on supplements as per the book and few others.

Considering that the exercises on their own havent helped at all, and if I am honest he is becoming a bit clumsier that before.

My intent is not to ruin your high hopes, its fantastic that most of your DC are getting the benefits but I also wanted to share my POV. We are not giving up but I wanted to share my story.

I have been putting off posting this for a while as I know how important to some parents on here is to hear positive feedback and I am sure with every therapy these is always some percentage of kids that dont see any benefits.

Keep up the hard work and I will be back to comment something more positive with the approach in the months to come. I just wanted to give a heads up to some that may have not had as much results with this and to say they are not alone perhaps...

BlueShark - very sorry to hear your DS is not doing so well.

I really hope that it starts to help him soon.

I know it took a while for RRT to help your DS so I'm hoping this is going to be the same.

But keep us posted either way.

thanks Indigo.

DS has progressed really well on all other areas (speech, cognitive, social) but not on those that the exercises should be developing, ie mostly gross motor skills (which he didnt have many issues to begin with) and I really hope that we are at 'regress' before progress stage :)

also I dont remember seeing someone on this thread that has only done the exercises, apart from the school trail you reported on Indigo. Most on here have done minor or major tweaks to the diet and included supplememts.

All I am saying is just the exercises didnt help, I am aware the Brain food plan is a package of feeding the brain with 'right ingreadients' being food, supplememnts and diet so perhaps we are just a minority here...

RRT helped DS enourmously (within a year) and my understaing is the this is top down approach and works similar to RRT which is bottom up approach, you are fixing the brain to fix the reast of the body..

Only time will tell if this tailored to all approach helps...

Yes, but the 10 kids at my school did just do the exercises. They didn't change their diet at all nor take any supplements.

But, your DS is 'worse' than all of the kids in my school besides 1. Only 1 of the 10 kids has a statement (for ASD) and a full time TA.

Only time will tell. And it's so hard waiting and waiting to find out what works. And so hard to know what to do when and in what combinations......

Wishing you strength.

blueshark, my DD who is dyslexic has had two visits to Tinsley House, and we have noticed no change so far. She has been doing the exercises, taking the supplements etc. Her diet was OK to begin with apart from including more protein (not easy as we are veggie), nothing needed to be changed; she has a sweet habit but not a major one. I am persisting with it because it is the only thing left for us to do, as I don't want her to continue to struggle as a dyslexic in a literate world. She has had specialist teaching, is considered able and in the top group at school but she will never reach her full potential. She has been diagnosed with eye convergence issues by TH, so that is the next step in the treatment. Don't give up, for some children it might just take longer.

blueshark ds1 took a while to benefit from RRT - although he did complete the course in 9 months! - in fact 4 months in I thought we were wasting our time!

Wrt TH we did not see any improvement in ds1's dyslexia til he started the VT. We did see HUGE improvements in his bowels though.

Hope that it works for you soon x

Thanks all.

To be honest since we are dealing with a human brain here regardless of provision, ability and disability different things will click in different time. DS doesn't have 1:1 full time either, in the unit there is ration of 1:3.

Fingers crossed it does work to some extent to all.

indigo you may know already but CPOC also have local primary school's who run Early Birds clubs, set up with support from CPOC with intial training and then led by a Senior TA with yr 6 kids helping out with various exercises. DS1 and DS2 attend Langham Primary - 30 mins per week for kids who are referred by CT - don't have to have any diagnosis or have been seen by CPOC. Set up in the days or the old head/Senco (I did mention he was wonderful) not the bastard who replaced him.

Not bragging how wonderful provision is here - just pointing out what is possible and geographical inconsistency.

i have just started my son on the three recommended suppliments and today he had violent diarrhea.. is this normal ? will it settle ?

Ds felt sick after having all the supplements in one go. So we now split them up and he has some in the morning and some after tea.

We've decided to go steady on the kindervital and florawotsit after reading about tummy troubles. Ds is having the double dose of vegepa and just 5 ml a day of the other two. Will up it a little at a time once we are sure he is ok.

I make sure ds has his tablets after food. No sure whether that helps or not!

Good news update from my SENCO.

The vision therapy program is going well - or rather the opposite - about half the kids really struggle with the eye tracking program. :)

So the SENCO is really excited to see if improving their eye tracking will improve their reading.

Should do.....

DDs eye tracking is really improving now. She's already up to level 17 on the eye tracking program. I think her reading's improving.... I'm fairly sure it is.

Brilliant news indigobell.
Anyone have a dc without the eye convergence problem? Ds' test with robin showed incredibly poor results but his reading and comprehension are about 2 yrs above his actual age so robin said either the test had gone wrong or ds was reading miraculously well essentially with just one eye. Stranger things have happened with ds but robin plans to retest in August. Wondering what the next step is if we don't need the eye tracking programme?

Ds' reading age is a few years above his chronological age but Robin sad his scores were low on the computer test. he said that he thought ds would be finding reading much harde than he should bu that does not really hold out on the tests.

However, he does find reading comprehensions quite hard - reading, remembering and extracting info.

So has ds done the eye tracking programme anyway daftmaul? Will be really interested to see if robin's test shows a problem next time we go. Wouldn't put it past ds to be a miracle one eyed reader tbh

Ds has been doing Vision Therapy, yes.

The eye tracking program is done after the vision therapy program - if you need it. But school have jumped straight to it because they can't afford the vision therapy program.

If you don't do vision therapy you go straight to where's Wally.

I'm fairly sure it is possible to essentially just use one eye to see if you have very bad convergence. Can't remember where I read that though.

That make sense Indigo.

Due to visit Robin next week . In hospital with ds tonight for EEG - wifi keeps cutting out, hence interrupted posts.

Ds1s convergence was only in one eye -his left.

Just marking my place. My brain food plan book arrived today and so far makes very interesting reading. I no doubt will have q's so wanted to mark a spot and take the time to read the whole thread!

Have started using magnsium spray today and am just trying to figure out how the hell I'm going to get the other supplements into ds! Haven't got to the whole diet plan yet but today ds as had very healthy foods, no squash's or processed foods or any junk snacks and I've really rationed the carbs too. It's interesting to see that many of our children are carb junkies.

Hi all
Just though I would be a bit boastastic and tell you all what a great school report my ds1 got yesterday!
He got very good and good for all subjects!
Such a change from last year!
He still has lots of catching up to do, especially wrt spelling but and I quote
"ds1s reading is accurate with few errors, well paced and expressive"
!!!!!
Pretty good for a severely dyslexic Kid eh? :)

That's brilliant news badvoc! I had a meeting with the TA in charge of the 'nurture room' where ds currently spends every morning and she reckons ds is calmer, more open to trying new things and concentrates better. She thinks it is because of the magical nurture room, I suspect tinsley house has a lot to do with it too.