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SN children

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Original poster

Friday night thread...

148 replies

signandsmile · 28/10/2011 17:22

Where did the week go? there have been some lovely bits to the week, first birthday party with kids from school and ds was a star, bless him!

we went to nanny's and ds was careful with the new cousin, and we went to a cafe today and ds played with the toys and sat nicely, .

Ds loves standing on the scales (cos it shows your weight in a digital display) I asked him today 'ds what do you weigh?' his reply was 'my feet!' PMSL.

I was off next week for my 4 days away, (ds and dh planned to within an inch of their lives ) however, I have a broken tooth and I need to have it out, so I will need to get it done on Tues, and thus go a day later... [cross]. BUM!

Ah well, at least I still get to go eh? my MiL asked what I was planning to do, my reply 'b*gger all!'

how have all your weeks been? how are preparations for returns to school?

OP posts:

Triggles · 28/10/2011 20:07

EllenJane - all he's wanted today are biscuits, tea cakes, and bananas. I finally told him "cream cracker or nothing". If I had made toast at that point, DS2 would have been screaming to come back downstairs to have some as toast is a huge favourite of his. LOL Ah, the juggling act, eh?

Both in bed now. DS3 asleep finally. DS2 singing and talking to himself, so hopefully asleep soon.

The dog is being ignored for the moment, as he's in a bit of a rowdy mood and I'm not trudging out into the garden where DH left his toys and bringing them in to play with him. He'll have to deal with that for tonight.

Cup of tea, and instead of tacos, spaghetti hoops. LOL easy quick and I'm hungry.Just 30 minutes of peace, that's all I'm asking for.

moosemama · 28/10/2011 20:07

Gosh, what a rollercoaster of a week slowburner. Glad it ended on a positive note though.

Enjoy your steak and well done on losing that pound.

moosemama · 28/10/2011 20:10

Glad he's asleep now Triggles, will keep everything crossed for him keeping his banana down and sleeping through for you now.

EllenJaneisnotmyname · 28/10/2011 20:10

What a crap week, slowburner. It sounds like your DD is determined to succeed despite her possible DX. I usually say at times like this to remember that it hasn't actually changed your DD, she's the same gorgeous girl. Hopefully you'll get some better therapy and support.

EllenJaneisnotmyname · 28/10/2011 20:12

Crossed with everyone, there!

Triggles · 28/10/2011 21:31

just wanted to pop back on and thank people for the support and encouragement ... breathing much better and calmer now. Both boys sleeping, and I've had a chance to do a small amount of picking up, some laundry, the dishes, and am relaxing a bit now. Still don't really know what to do about DH, but I'll deal with that later. He's with his family right now celebrating DS1's birthday and I imagine that between that and his mate's wedding tomorrow, he'll not give us a passing thought, so I'm going to try not to think about him either. I need the break from all the stress and anger. I don't want to end things, but I cannot continue with things the way they are now.

moosemama · 28/10/2011 21:37

Good to hear you have managed to get some peace Triggles, again though, so sorry you are facing tough decisions about your marriage. Maybe the weekend apart will help? At least it will give you some space from one another and hopefully some time to think. ((hugs))

TheNinjaGooseIsOnAMission · 28/10/2011 21:44

it's hard triggles when you feel you're the one left caring for everyone on your own, my dh doesn't get involved in anything to do with dd3 when it comes to the medical or school stuff it's truely draining

moose, you still baking? Have you made your halloween cakes again this year?

slowburner, horrible week, have you got any follow up to check this out properly?

Triggles · 28/10/2011 21:47

ninja - I could almost sort of deal with it if he just wasn't getting involved in stuff, but it's the constant shouting and verbal dressing down that he does, especially at DS2. Some of the things he says to and in front of the boys is completely inappropriate. And when I tell him to back off, he goes after me and start shouting at me. I just don't need it. (and don't deserve it)

Moose - baking? god, please tell me you've made something chocolate to share... lol

EllenJaneisnotmyname · 28/10/2011 21:50

I'm sorry it's not getting any better, Triggles. I was hoping things would calm down once he went back to work. I have chocolate...

moosemama · 28/10/2011 21:52

I was intending to do some baking this week Ninja, but the opportunity never arose.

I am planning to make meringue ghosts for the dcs for Monday though.

I worry about baking these days, in case I'm tempted to eat it all. Since I've been on a diet, it has become horrifyingly obvious precisely who was responsible for all my batches of baking disappearing in less than 24 hours.

I really do need to start baking for the boys' lunchboxes again though at the very least. It costs a fortune to buy gluten free treats for ds1 and home made are so much nicer, not to mention healthier for him.

moosemama · 28/10/2011 21:53

I have some of ds2's Tesco Caramel Rocky Bars if they would do?

Triggles · 28/10/2011 21:56

EllenJane - I thought it was calming down some, but maybe the small bits of normal just made the really bad lows seem intolerable? I dunno...

chocolate helps, thanks...

moose - yes, I like to bake, but don't always like the effect on my weight afterwards. ooooh never had a tesco caramel rocky bar - that sounds good!!! thanks! (never one to turn down chocolate, me... )

EllenJaneisnotmyname · 28/10/2011 22:02

How much have you lost now, moose? I've managed 1 1/2 stone in the last couple of months, just through stress, but it's slowing down now. I need a 'proper' healthy diet rather than not eating.

Triggles · 28/10/2011 22:07

not eating will do you more harm than good in the long run, as it will slow your metabolism. you need to eat regular small meals to keep your metabolism revving

moosemama · 28/10/2011 22:18

I am 3lbs off having lost 3 stone since I started trying to lose weight, but only started logging my weight and food seriously on 14 June and have 5lbs more to go until I've lost 3 stone since then. My goal was to lose 4 stone overall and I want to have achieved it by next summer, so am well on target, although its slowed down a lot now.

I've loved the inch loss from working out more than the actual weight loss to be honest. My scales are my nemesis these days, as my weightloss has slowed a lot since I started circuit training and every time I change my exercise routine around my muscles grab water and I see a couple of pounds gain. hmm

You will be losing muscle mass as well as weight if you aren't eating. To stop that happening you need to counteract it with some resistance training. It doesn't have to be extreme, but with muscles you need to use it or lose it when it comes to weightloss and the more muscle you have, the better you burn calories so it pays do what you can to keep hold of it.

I honestly can't recommend using My Fitness Pal enough to log your diet. It really opened my eyes to the fact that what I thought was a healthy diet was actually very far from it - not to mention that I had a someone generous take on portion size. Its so easy to use as well, because most of the main foods we eat have already been registered by other users so you just search and add it to your day's food intake.

Triggles · 28/10/2011 22:25

Thanks for that link to My Fitness Pal.Am going to look through that.

moosemama · 28/10/2011 22:27

You're welcome, they should pay me commission for all the people I've recommended them to - although its a free site, so not sure how that'd work.

EllenJaneisnotmyname · 28/10/2011 22:37

Thanks moose/triggles. Not eating was never a long term aim. I'm too fond of the stuff, really. It's amazing how 'unhungry' I've been, though. I could easily live off my fat for months! I am aware that starvation diets are A Bad Thing, so I'm trying to eat with the kids, at least. I still need to lose nearly 2 stone to be just into the healthy range, but I've not got there for more than 20 years.

slowburner · 28/10/2011 22:40

Thank everyone for input, we don't have anyone to turn too, DD is mild so therefore falls through the service gap, cerebra don't have a worker in the area, contact a family don't either, our local scope charity centre doesn't have space (or interest reading between the lines on the email), Brainwave is an option but not till march. Paed raised concerns about lack of physio input 4 months ago, but although I asked for a quick assessment then (o took her into the hospital for a ten min slot) the physo said she was doing great, no cp concerns, would discharge her when walking.

DH was home unexpectedly during physio appointment, am so grateful as I fell apart, I know she is still my bonny girl but this is her label forever. This is the upshot, she didn't get away unscathed from the horror that was her birth etc etc. I think what triggered the dx was a letter from our neuro which pushed the phsyio to check more closely.

I am grateful that this week is ended, but peeved I had the self control not to buy chocolate at the shops. Could really do with a nibble so to speak.

Triggles I know that I am new here but it sounds like you are having a really rough time and then some, I am so sorry.

moosemama · 28/10/2011 22:47

I thought that Ellen, I hadn't been a healthy weight for 20 years either. Started this with a BMI of 31 - so in the obese category. I now have a BMI of 25.4 - so still in the overweight category, but if I can drop the .4, which is actually less than 3lbs away I will be in the healthy category for the first time since my early twenties!

In all honesty, it hasn't really been hard either, just a case of logging my food, making sure I come close to my calories and fat goals etc and that I eat less and move more. I'm so used to it now that its pretty much second nature. I keep my digital scales on the worktop with a keyring notepad and pencil and just jot down anything I have to weigh, athough I'm pretty good at juding most things by eye now, so need to weigh less and less.

I do miss chocolate and will start to eat it again within reason when I reach my target and go onto maintenance - but this time I will eat it within reason and not like there's about to be a major worldwide chocolate shortage!

Triggles · 28/10/2011 22:47

slowburner - thanks, these things happen. I think a lot of us on this board are dealing with marital problems. It's fairly common, I believe, in families with children with SNs, simply due to the stress and sometimes finances. Ours were complicated by his father's death, followed by his depression, my father's death, and a host of other things. It's been a very difficult year or two for us, and it remains to be seen how things will turn out.

People have shared their chocolate with me, so I will in turn share it with you... chocolate is our friend!

EllenJaneisnotmyname · 28/10/2011 22:48

Yes, it's that 'forever' thing that's so hard to take, isn't it? (((hugs))) From what you've written, her determination shines through. Hopefully you'll eventually be able to use the DX, see it as a key to support rather than a label. And she'll keep you going through the hard times.

Triggles · 28/10/2011 22:49

oh god, the lakeland catalogue!!! someone help!! kitchen porn!! (another weakness for me - lakeland!! )

EllenJaneisnotmyname · 28/10/2011 22:51

Sorry, that last one was aimed at slowburner. Moose and Triggles are too fast at typing!

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