Just popping in to say HELLO.............

[devientenigma]

Been very much up and down, so been on and off here. Same old same old happening here, still struggling to get support etc, usual profs passing the buck.................anyway hope everyone elses lives are swimming smoothly!!

Hiya, nice to see you

Hi, devient. Here's hoping for more ups than downs.

Hello, mostly going well but with a few niggles in the movicol department. Hope you get somewhere soon with the lea

Well it's shit for me, but then it generally is. Amazed I'm still upright but appear to be all the same!

Hang on in there Starlight. Thinking of you.

same here pipin been off months and loving it!!! I have just been advised I should maybe go to tribunal. Sorry just thought severely disabled kids in special schools got everything handed on a plate. Now everyone's gonna shoot me.

Starlight time is a great healer, however I suppose you have heard this so many times. Keep upright, we are all thinking of you. x

hi dev - same question as pipin asked from me - is ds still school refusing or has that improved? s

pipin, my dad died yesterday, I've been reported for DLA benefit fraud and my ds has regressed according to independent EP. Not to mention the Annual review last week where the usual happened 'we don't specify hours, salt doesn't help kids with asd' etc etc. and the fact that the school we have requested is appealing against us........

sorry to hear about your dad starlight

I'm very sorry to hear that too Star.

Starlight, sorry to hear about your dad and all the other troubles too.

Hi dev.

Just to say 'hi' devient .Glad your ds is happy at home,but what about you ?

Starlight -so sorry- here's hoping something GOOD happens for you soon-

We're still swimming upstream,but hey were not drowned yet !!

Starlight - :( :( :(

Words fail me.

Hi, sorry dev. Didn't mean to ruin your thread. The thing about having a child with SN (probably a child full stop) is that you are never able to lose it or wallow in self pity.

What I find saddest was that my dad was the only family member to actually celebrate my ds' 'difference' and be proud of his character even when influenced heavily by his disability. I'm gutted at the lost relationship.

starlight I'm so sorry to hear your news .

Oh Starlight, so sorry for your loss.

Starlight I am so sorry for your loss. You are having to cope with so much.

Think we are still swimning upstream here, but we are drowning now. Every day is another fight, so no real change then.

Starlight I am so sorry about your Dad and everything else that is happening at present.

I did not go to appeal over the revised statement but have gone for an early review - which is next week.( chews fingers) I just did not feel I had the strength for an appeal - and it risked missing out on our preferred sn school choice for year 7.

Have been offline, sorry about your dad Starlight x