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Worried about ds2 and nobody coming to his birthday- advice please?

117 replies

Peachy · 25/01/2011 09:37

OK this one needs some background so:

I have my older 2 boys aged 9 and 11 in the local MS Primary.

DS1 has ASD and used to be the playground bully; after 3 years of fighting we managed to get the school (LEA had always been willing really) to agree to lunchtime supervision but I think it was too late. DS1 intimidates people- heck, knowing he's in a mood and dh won;t be here after school I am intimdated. He has no remorese if he hits and dismisses it entirely as not his fault. I think school have enabled thhis behaviour tbh. he is a high achiever thre as long as he has a TA close- vice captain of house, chair of school council etc. In September we have secured him a palce at a specilaist ASD Base where he can access mainstream work in a specilaist environment.
DS2 goes to local comp next year; there are 13 months between them.
DS2 is a socianble, likeable cheeky chappy- class clown. Not academic but the sort of small boy who delights in running around with a sea slug in his hand or a pocket of beetles. He was on SEN register for 6 months but school removed him: wrongly and I amde that clear but a new head came in and all sorts of support vanished overnight, and there's no other school local enough.

We tried to get sibling support but that is accessed via young carers and he would be 16 before there was a aplce apparently: he does go cubs for some separate social life.

So, it is ds2's 10th birthday Monday; pparty duly booked an d paid for, bowling. DS2 is happily storing party bags on his bedrrom table all made up, cake chosen.

And not one child will come. DS1 considers each a success and has amde it clear that he hs intimidated everyone invited. DS2 had a lvoely friend he was really close to but it got to the stage that he shook just knocking on the door so his Mum had to pull him from the friendship.

What the hell do I do? I don;t want to wreck ds2's tenth birthday. Family can't come (iunderstandably, hugely important exams. We don;t have the spare cash to just cancel, write off the cost of the paid for party and do something else- who does these days?

If I feel like crying how the heck do I manage this without him losing yet another important thing to ASD and ds1's behaviour? becuase this sort of thing happens a lot, it's a small place to live and everyone nows.

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asdx2 · 25/01/2011 18:22

Oh my god 16 hours Shock Shock Shock ds had 32.5 and now has 1to1 the minute he leaves the taxi until he is put back in.
Dd has 20 and has no learning difficulties(she is supposedly very gifted) or behavioural problems. It's a measure of just how poor the school is if with the difficulties ds displays they haven't secured funding for more support Angry

asdx2 · 25/01/2011 18:27

Your school could do with me there as another parent, they'd give your ds the support just to stop me complaining Grin

Peachy · 25/01/2011 18:29

They don;t like SEN kids: I think DS1 and his friend 9who joined later on) are said to be amongst the first to 'survive' IYSWIM. usually they got booted out.

ASD BAse does not normally have kids with under FT 1-1 which says a lot but Head really did not want o have to take on TAs and there were all sotrs of issues she used such as recently redundant tas they would have to rehire who had a grudge against hr (I knew the TA she's lovely); did we not relaise TAs need to eat and not just supervise all day..... until I said to ENCO I am sorry I just don't care, you get paid handsomelydone. I felt mean. But it was right.

His form tutor is amazing, amrried to ehad of a lcoal SNU: could have been worse I guess. thgere was one teacher thought ds1 coudn;t talk even though he rates above gifted verbally-? that was after a good few months too.

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Peachy · 25/01/2011 18:34

Ah ASD X23 if only.... mind you tha affillisated infants was b
y far worse- LEA said they washed their hands of SENCO (alledgedly) when she was appointed Dep Head; as did Governor. She only got it becuase Vicar is person with the say and he is her Godfather. Reportedly.
from the Governor who was at the meeting and disgusted. they sued to yell at us infront of other kids so we didn;t answer back, and told ds2 t'hat's a shame as boys are more likely to get autism' when we found out ds4 was a boy.... Paediatrician dismissed everything they sent her as it was all contradictory.

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asdx2 · 25/01/2011 19:08

I think this thread speaks volumes about how proper support in school is vital to an ASD child's well being and how without it a family can experience extreme difficulties.
I truly believe that had ds not got the support he did from his earliest days in school then either we as a family wouldn't have survived or ds would have needed residential care.
I know ds's support has been expensive but it has cost a fraction of what it would have cost to have him cared for and educated away from home as I reminded the LIO when she told me at his AR that the level of support ds has had is exceptional for a child with autism.

Peachy · 25/01/2011 19:23

I agree ASD

Although as ds1 said at dibber: how come I go to a school founded by a Murderer? It's true, it was: guilt money.

Bad start or what!

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MistyB · 25/01/2011 20:00

Peachy I've just read your whole thread through and I think you are doing a great job for your children - well done you!!

Shame on our support services that you do not get the support you need because you are "bright" and an "ASD Expert".

I hope your DS2 enjoys his birthday!!

Peachy · 25/01/2011 20:03

Ah SSD said intelligent LOL- I'm not even sure what makes an ASD expert: the closer I get to qualifying the mrore I wonder what one is tbh

But thank you X

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wendihouse22 · 26/01/2011 09:37

Sorry, Peachy......thought he was your Ex!

bullet234 · 26/01/2011 10:00

I feel very sorry for both your lads, though more so for your ds2 in this situation. The only thing I can suggest is that your ds1 is taken elsewhere on the day of the party.

bigcar · 26/01/2011 10:50

what an awful situation, I hope the lady from cubs comes through! Happy birthday to your ds2 Smile

Peachy · 26/01/2011 12:49

DS2 came home from cubs with a note saying wear casual clothes for a very special party next week.....

we've also drummed up a few other 'neglected souls' for a get together at bowling.

yes he's still upset his friends won;t come but you know, I don;t think he really does have any friends and we need to focus on that.

As for cubs- blimey they are wonderful peopel!

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bigcar · 26/01/2011 13:03

oh that's lovely, hope he has a great time Smile

RMCW · 26/01/2011 13:23

Thats lovely peachy

Am so glad he has such lovely Cubs leaders....I am an assistant Beaver leader so its great to hear positive things about the scouting movement Smile Hope he has a great time x

Spinkle · 26/01/2011 13:46

Glad you're getting it sorted Peachy. This must be a massive strain for you.

Bloody hard getting it right for all of them, all the time.

Well done Cubs! My DS (6, ASD) was 'put on the list' for Beavers, but has, somehow, never managed to get to the top of it - they were pretty unwilling to put him on the list at all (not that I think for one moment he is on the list at all Hmm)

bullet234 · 26/01/2011 14:07

The cubs sound fantastic Grin.

maryz · 26/01/2011 18:45

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Message withdrawn at poster's request.

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