Welcome to all our new memebrs

[ReclaimingMyInnerPeachy]

I will duplicate this thread in chat as well, JIC.

Some of you will have happened to pop by just now; welcome, and be aware things will calm down soon.

others will have come from the publicity- hello. If it is advice you need shout, message, if we cannot help we absolutely will know someone whose job it is to do so; if you want to help- thank you ; if you just want to be part of a supportive board, well come on in.

A few of you may be journalists: understandable, you have to pay the bills like the rest of us.
Please, I ask you to respect the dificulties that carers and aprents of disabled children on here face. Some will only have just learned their child has SN, or be facing real fears. Others have additional hardship s to deal with also. I hope you are motivated by a want to help people with challnges and that's great, but please be aware we are not hare to inform but to get advice or give it.

Thank you

ouryve - Confession from a 'soft southern shite' - I'm the one on the metro in a scarf and hat going home from work on a friday night. Everyone else looks like they're going to Ibiza!

I used to wrap up warm when I lived there, too. Them stations are draughty! Maybe if I'd lived there another 15 years I'd have got the hang of the barely dressed look - no one would have thanked me for it, though! :o

hi tall ! (sign waves back).
Just have a query about the chocopam, am presuming this is orally administered??

Hello Peachy, thanks for the welcome. I am a newbie and only knew about this due to the recent publicity. However It's only this SEN section I have lurked and commented on so far, as this is more appropriate to me.
I'm old, been a mum for 22 yrs, have 5 kids n 2 grandkids (so far...but fingers crossed for more soon!)
My 2 youngest have Fragile X Syndrome. They also have autism/complex tourettes. One also has ADHD/heart murmur and epilepsy (although this last is now being grown out of it would seem; just a shame it's not the complex tourettes he grew out of, the air would be less blue!!!)
There was a time when I didn't know about SEN. I can't remember it though. Feel like I've been caring forever (14 yrs in actuality).
Whilst I know in reality that there are 6 million carers across the UK (some of whom care for older people and some under 16) it's eye opening to see so many on here; all mums of kids with SEN and many like me who have more than one child with SLD. It's kinda nice to be less alone.
I cannot imagine my life as a non carer. I would like to and I do try but I can't see beyond the next few years. I did do a degree completed last year and got a respectable 2:1 (sheer bloody mindedness on my part, although I often thought I should be sitting on my bum watching Jeremy and eating biscuits til I exploded- the carrier status in me makes me very determined!)
But now I can't see how I can get a FT job, which pays the bills and fit it in around the boys. Quite disheartening really.
Ooh that's a bit depressin innit, sorry. I know one day Johnny Depp will knock on me door and offer me leading lady in his next blockbuster. I just gotta be patient! :o

hello unpaidcarer and welcome you will find a lot of competition here for Johnny Depps attention

just a warning for any newcomers, whilst we are all of course totally lovely, I'd avoid posting on 'am I being unreasonable' until you've read a good few threads as it does tend to get rather heated over there.

Thought I may as well introduce myself - I have been on MN (mainly lurking) for 5-6 years.
I have DD(5) and DS(3). DS has recently been diagnosed with a 4p chromosome deletion, he suffers with GDD - most significantly delayed are his Mobility and Speech & language. He also has sensory problems.

Hi Tiredmelly - I thought I'd respond to your post because my ds (2) also had GDD with significant speech, language and mobility delay. He's currently undergoing genetic testing. I've been on MN for a couple of years but only joined the SN board last September!

Hi, I see this is a very old thread, is there a rule (maybe unspoken) about resurrecting old threads? I hope not! I searched within SN for "4P" and I guess this thread was pulled up because of tiredmelly's post:

tiredmelly Fri 28-Jan-11 21:53:30
Thought I may as well introduce myself - I have been on MN (mainly lurking) for 5-6 years.
I have DD(5) and DS(3). DS has recently been diagnosed with a 4p chromosome deletion, he suffers with GDD - most significantly delayed are his Mobility and Speech & language. He also has sensory problems.

I don't know how to quote... or how to use someone's username to see if they have posted recently (I can't click on usernames!?) haha I am such a noob, sorry .

Anyway I am new (surprise!) and my son also has a deletion on 4P, not WH. His symptoms are similar to your son's and they'd be not many years apart in age, my boy was born in 2006. If you're still around - or if anyone else is with 4P kiddies, I'd love to say hi!

(I am a NZer living in Australia. I'm dreaming of moving to the UK, that's why I've stumbled across this board ;) )

Essbe, follow the username across and click Message Poster to send a private message maybe? That way, if TiredMelly is still around s/he'll definitely see your message :)

Hi essbe and welcome, this thread is a real blast from the past You can do as pidj suggests and also start your own thread with 4p chromosome deletion in the title, you may find there are others around with the same deletion who may not see this.